{"id":"https://openalex.org/W2007199137","doi":"https://doi.org/10.1332/147084411x581916","title":"\u2018Choice is a small word with a huge meaning\u2019: autonomy and decision making at the end of life","display_name":"\u2018Choice is a small word with a huge meaning\u2019: autonomy and decision making at the end of life","publication_year":2012,"publication_date":"2012-04-01","ids":{"openalex":"https://openalex.org/W2007199137","doi":"https://doi.org/10.1332/147084411x581916","mag":"2007199137"},"language":"en","primary_location":{"id":"doi:10.1332/147084411x581916","doi":"https://doi.org/10.1332/147084411x581916","is_oa":false,"landing_page_url":"https://doi.org/10.1332/147084411x581916","pdf_url":null,"source":{"id":"https://openalex.org/S17167983","display_name":"Policy & Politics","issn_l":"0305-5736","issn":["0305-5736","1470-8442"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","cwts-core","erih-plus","jufo-2","norway-2"],"host_organization":"https://openalex.org/P4310320460","host_organization_name":"Policy Press","host_organization_lineage":["https://openalex.org/P4310320460"],"host_organization_lineage_names":["Policy Press"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Policy & Politics","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5034872660","display_name":"Eileen J. Sutton","orcid":"https://orcid.org/0000-0003-4105-8471","observed_orcids":["https://orcid.org/0000-0003-4105-8471"]},"institutions":[{"id":"https://openalex.org/I36234482","display_name":"University of Bristol","ror":"https://ror.org/0524sp257","country_code":"GB","type":"education","lineage":["https://openalex.org/I36234482"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Eileen Sutton","raw_affiliation_strings":["School for Policy Studies, University of Bristol, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School for Policy Studies, University of Bristol, UK","institution_ids":["https://openalex.org/I36234482"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5009309999","display_name":"Joanna Coast","orcid":"https://orcid.org/0000-0002-3537-5166","observed_orcids":["https://orcid.org/0000-0002-3537-5166"]},"institutions":[{"id":"https://openalex.org/I79619799","display_name":"University of Birmingham","ror":"https://ror.org/03angcq70","country_code":"GB","type":"education","lineage":["https://openalex.org/I79619799"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Joanna Coast","raw_affiliation_strings":["Health Economics Unit, University of Birmingham, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Health Economics Unit, University of Birmingham, UK","institution_ids":["https://openalex.org/I79619799"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.1636,"has_fulltext":false,"cited_by_count":9,"citation_normalized_percentile":{"value":0.7970701,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":"40","issue":"2","first_page":"211","last_page":"226"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9937000274658203,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9937000274658203,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.0044999998062849045,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.878000020980835},{"id":"https://openalex.org/keywords/autonomy","display_name":"autonomy","score":0.7360000014305115},{"id":"https://openalex.org/keywords/decision-making","display_name":"decision-making","score":0.9319999814033508},{"id":"https://openalex.org/keywords/older-adults","display_name":"older adults","score":0.871999979019165},{"id":"https://openalex.org/keywords/patient-preferences","display_name":"patient preferences","score":0.6359999775886536},{"id":"https://openalex.org/keywords/relational-autonomy","display_name":"relational autonomy","score":0.7310000061988831},{"id":"https://openalex.org/keywords/family-impact","display_name":"family impact","score":0.48899999260902405},{"id":"https://openalex.org/keywords/structural-barriers-to-care","display_name":"structural barriers to care","score":0.5690000057220459},{"id":"https://openalex.org/keywords/advance-care-planning","display_name":"advance care planning","score":0.628000020980835}],"concepts":[{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.783319354057312},{"id":"https://openalex.org/C2780876879","wikidata":"https://www.wikidata.org/wiki/Q3054749","display_name":"Meaning (existential)","level":2,"score":0.7537089586257935},{"id":"https://openalex.org/C90805587","wikidata":"https://www.wikidata.org/wiki/Q10944557","display_name":"Word (group theory)","level":2,"score":0.5649776458740234},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.4349150061607361},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3950788080692291},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.3838215172290802},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.2888954281806946},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.1493494212627411},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.09136143326759338},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.05406835675239563}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1332/147084411x581916","doi":"https://doi.org/10.1332/147084411x581916","is_oa":false,"landing_page_url":"https://doi.org/10.1332/147084411x581916","pdf_url":null,"source":{"id":"https://openalex.org/S17167983","display_name":"Policy & Politics","issn_l":"0305-5736","issn":["0305-5736","1470-8442"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["abdc-a","cwts-core","erih-plus","jufo-2","norway-2"],"host_organization":"https://openalex.org/P4310320460","host_organization_name":"Policy Press","host_organization_lineage":["https://openalex.org/P4310320460"],"host_organization_lineage_names":["Policy Press"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Policy & Politics","raw_type":"journal-article"},{"id":"pmh:oai:research-information.bris.ac.uk:openaire_cris_publications/64e7ea74-f705-440e-9e02-11a6d84b3c03","doi":null,"is_oa":false,"landing_page_url":"https://research-information.bris.ac.uk/en/publications/64e7ea74-f705-440e-9e02-11a6d84b3c03","pdf_url":null,"source":{"id":"https://openalex.org/S4306400895","display_name":"Bristol Research (University of Bristol)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I36234482","host_organization_name":"University of Bristol","host_organization_lineage":["https://openalex.org/I36234482"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sutton, EJ & Coast, J 2011, '\"Choice is a small word with a huge meaning\" : Autonomy and decision-making at the end-of-life', Policy and Politics, vol. (In press).","raw_type":"info:eu-repo/semantics/publishedVersion"},{"id":"pmh:oai:pure.atira.dk:openaire_cris_publications/9d3ce3d0-9518-4215-b84a-a140fcd143ce","doi":null,"is_oa":false,"landing_page_url":"https://research.birmingham.ac.uk/en/publications/9d3ce3d0-9518-4215-b84a-a140fcd143ce","pdf_url":null,"source":{"id":"https://openalex.org/S4306402634","display_name":"University of Birmingham Research Portal (University of Birmingham)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I79619799","host_organization_name":"University of Birmingham","host_organization_lineage":["https://openalex.org/I79619799"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Sutton, E & Coast, J 2012, ''Choice is a small word with a huge meaning': Autonomy and decision making at the end of life', Policy and politics, vol. 40, no. 2, pp. 211-226. https://doi.org/10.1332/147084411X581916","raw_type":"article"}],"best_oa_location":null,"sustainable_development_goals":[],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/16","display_name":"Peace, justice, and strong institutions","score":0.8199999928474426}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2248413686","https://openalex.org/W2490200650","https://openalex.org/W2976841845","https://openalex.org/W2106827941","https://openalex.org/W3000329571","https://openalex.org/W2560927802","https://openalex.org/W3175748353","https://openalex.org/W2077837701","https://openalex.org/W2500214378","https://openalex.org/W2121999578","https://openalex.org/W2999110569","https://openalex.org/W2204254","https://openalex.org/W2184828097","https://openalex.org/W2989956325","https://openalex.org/W135123598","https://openalex.org/W182979018","https://openalex.org/W3121307102","https://openalex.org/W1933724479","https://openalex.org/W2361771859","https://openalex.org/W3010178236"],"abstract_inverted_index":{"The":[0,90],"United":[1],"Kingdom":[2],"(UK)":[3],"End-of-Life":[4],"Care":[5],"Strategy,":[6],"published":[7],"in":[8],"June":[9],"2008,":[10],"recommends":[11],"the":[12,24,44,59,72,80,96],"identification,":[13],"documentation":[14],"and":[15,22,55],"review":[16],"of":[17,26,47,61,82,86,92,98],"people's":[18,53],"preferences":[19,54,99],"for":[20],"care":[21],"highlights":[23],"importance":[25],"choice":[27],"at":[28,58],"an":[29],"individual":[30],"level.":[31],"Drawing":[32],"on":[33,43,51,74,95],"data":[34],"from":[35],"a":[36,83],"qualitative":[37],"research":[38],"study,":[39],"this":[40],"article":[41],"reflects":[42],"complex":[45],"range":[46],"interconnected":[48],"factors":[49],"impacting":[50],"older":[52,64],"decision-making":[56],"processes":[57],"end":[60],"life.":[62],"As":[63],"people":[65],"consider":[66],"not":[67],"only":[68],"themselves":[69],"but":[70],"also":[71,101],"impact":[73,91],"loved":[75],"ones":[76],"when":[77],"making":[78],"decisions,":[79],"pertinence":[81],"relational":[84],"conceptualisation":[85],"autonomy":[87],"is":[88,100],"considered.":[89],"structural":[93],"issues":[94],"realisation":[97],"explored.":[102]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2025,"cited_by_count":1},{"year":2017,"cited_by_count":2},{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":1},{"year":2013,"cited_by_count":1}],"updated_date":"2026-09-22T06:50:58.402377","created_date":"2025-10-10T00:00:00"}