{"id":"https://openalex.org/W2000609131","doi":"https://doi.org/10.1037/a0023947","title":"Managing the impact of posttreatment fatigue on the family: Breast cancer survivors share their experiences.","display_name":"Managing the impact of posttreatment fatigue on the family: Breast cancer survivors share their experiences.","publication_year":2011,"publication_date":"2011-06-01","ids":{"openalex":"https://openalex.org/W2000609131","doi":"https://doi.org/10.1037/a0023947","mag":"2000609131","pmid":"https://pubmed.ncbi.nlm.nih.gov/21688904"},"language":"en","primary_location":{"id":"doi:10.1037/a0023947","doi":"https://doi.org/10.1037/a0023947","is_oa":false,"landing_page_url":"https://doi.org/10.1037/a0023947","pdf_url":null,"source":{"id":"https://openalex.org/S177918913","display_name":"Families Systems & Health","issn_l":"1091-7527","issn":["1091-7527","1939-0602"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","medline","norway-1"],"host_organization":"https://openalex.org/P4310320262","host_organization_name":"American Psychological Association","host_organization_lineage":["https://openalex.org/P4310320262"],"host_organization_lineage_names":["American Psychological Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Families, Systems, & Health","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5071398366","display_name":"Julianne S. Oktay","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I126744593","display_name":"University of Maryland, Baltimore","ror":"https://ror.org/04rq5mt64","country_code":"US","type":"education","lineage":["https://openalex.org/I126744593"]},{"id":"https://openalex.org/I66946132","display_name":"University of Maryland, College Park","ror":"https://ror.org/047s2c258","country_code":"US","type":"education","lineage":["https://openalex.org/I66946132"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Julianne S. Oktay","raw_affiliation_strings":["School of Social Work, University of Maryland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Social Work, University of Maryland","institution_ids":["https://openalex.org/I126744593","https://openalex.org/I66946132"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030009504","display_name":"Melissa Hayden Bellin","orcid":"https://orcid.org/0000-0001-9436-8858","observed_orcids":["https://orcid.org/0000-0001-9436-8858"]},"institutions":[{"id":"https://openalex.org/I126744593","display_name":"University of Maryland, Baltimore","ror":"https://ror.org/04rq5mt64","country_code":"US","type":"education","lineage":["https://openalex.org/I126744593"]},{"id":"https://openalex.org/I66946132","display_name":"University of Maryland, College Park","ror":"https://ror.org/047s2c258","country_code":"US","type":"education","lineage":["https://openalex.org/I66946132"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Melissa H. Bellin","raw_affiliation_strings":["School of Social Work, University of Maryland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Social Work, University of Maryland","institution_ids":["https://openalex.org/I126744593","https://openalex.org/I66946132"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042300863","display_name":"Susan Scarvalone","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1339176976","display_name":"Mercy Medical Center","ror":"https://ror.org/009raxq57","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1339176976"]},{"id":"https://openalex.org/I1340111290","display_name":"Mercy Medical Center","ror":"https://ror.org/051525m98","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1340111290"]},{"id":"https://openalex.org/I4210164729","display_name":"Mercy Medical Center","ror":"https://ror.org/05na1sz60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1304269903","https://openalex.org/I4210128764","https://openalex.org/I4210164729"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Susan Scarvalone","raw_affiliation_strings":["Prevention Research Center, Mercy Medical Center"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Prevention Research Center, Mercy Medical Center","institution_ids":["https://openalex.org/I1339176976","https://openalex.org/I1340111290","https://openalex.org/I4210164729"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057329485","display_name":"Sue Appling","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1339176976","display_name":"Mercy Medical Center","ror":"https://ror.org/009raxq57","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1339176976"]},{"id":"https://openalex.org/I1340111290","display_name":"Mercy Medical Center","ror":"https://ror.org/051525m98","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1340111290"]},{"id":"https://openalex.org/I4210164729","display_name":"Mercy Medical Center","ror":"https://ror.org/05na1sz60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1304269903","https://openalex.org/I4210128764","https://openalex.org/I4210164729"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sue Appling","raw_affiliation_strings":["Prevention Research Center, Mercy Medical Center"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Prevention Research Center, Mercy Medical Center","institution_ids":["https://openalex.org/I1339176976","https://openalex.org/I1340111290","https://openalex.org/I4210164729"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5108488415","display_name":"Kathy J. Helzlsouer","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1339176976","display_name":"Mercy Medical Center","ror":"https://ror.org/009raxq57","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1339176976"]},{"id":"https://openalex.org/I1340111290","display_name":"Mercy Medical Center","ror":"https://ror.org/051525m98","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1340111290"]},{"id":"https://openalex.org/I4210164729","display_name":"Mercy Medical Center","ror":"https://ror.org/05na1sz60","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1304269903","https://openalex.org/I4210128764","https://openalex.org/I4210164729"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kathy J. Helzlsouer","raw_affiliation_strings":["Prevention Research Center, Mercy Medical Center"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Prevention Research Center, Mercy Medical Center","institution_ids":["https://openalex.org/I1339176976","https://openalex.org/I1340111290","https://openalex.org/I4210164729"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.5526,"has_fulltext":false,"cited_by_count":21,"citation_normalized_percentile":{"value":0.68684211,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":"29","issue":"2","first_page":"127","last_page":"137"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9922000169754028,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9922000169754028,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.003599999938160181,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.0017000000225380063,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/breast-cancer-survivors","display_name":"breast cancer survivors","score":0.8560000061988831},{"id":"https://openalex.org/keywords/chronic-fatigue","display_name":"chronic fatigue","score":0.9739999771118164},{"id":"https://openalex.org/keywords/family-stress","display_name":"family stress","score":0.6359999775886536},{"id":"https://openalex.org/keywords/family-adaptation","display_name":"family adjustment","score":0.871999979019165},{"id":"https://openalex.org/keywords/family-roles","display_name":"family roles","score":0.8040000200271606},{"id":"https://openalex.org/keywords/family-communication","display_name":"family communication","score":0.765999972820282},{"id":"https://openalex.org/keywords/meaning-making","display_name":"meaning-making","score":0.593999981880188},{"id":"https://openalex.org/keywords/role-transition","display_name":"role transition","score":0.5180000066757202},{"id":"https://openalex.org/keywords/family-systems","display_name":"family systems","score":0.3869999945163727},{"id":"https://openalex.org/keywords/fatigue-interventions","display_name":"fatigue interventions","score":0.4580000042915344}],"concepts":[{"id":"https://openalex.org/C530470458","wikidata":"https://www.wikidata.org/wiki/Q128581","display_name":"Breast cancer","level":3,"score":0.777062714099884},{"id":"https://openalex.org/C125370674","wikidata":"https://www.wikidata.org/wiki/Q1527480","display_name":"Stressor","level":2,"score":0.6491680145263672},{"id":"https://openalex.org/C75795011","wikidata":"https://www.wikidata.org/wiki/Q917904","display_name":"Typology","level":2,"score":0.6140602231025696},{"id":"https://openalex.org/C3020395016","wikidata":"https://www.wikidata.org/wiki/Q5113974","display_name":"Chronic fatigue","level":3,"score":0.5528606176376343},{"id":"https://openalex.org/C2780876879","wikidata":"https://www.wikidata.org/wiki/Q3054749","display_name":"Meaning (existential)","level":2,"score":0.5263819694519043},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.511938214302063},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5087786316871643},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.49175480008125305},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.46418991684913635},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.4433787167072296},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4383343458175659},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.3980965316295624},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.29234248399734497},{"id":"https://openalex.org/C2779566273","wikidata":"https://www.wikidata.org/wiki/Q209733","display_name":"Chronic fatigue syndrome","level":2,"score":0.25341475009918213},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.15458601713180542},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D001943","descriptor_name":"Breast Neoplasms","qualifier_ui":"Q000188","qualifier_name":"drug therapy","is_major_topic":false},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005221","descriptor_name":"Fatigue","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005221","descriptor_name":"Fatigue","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005221","descriptor_name":"Fatigue","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008873","descriptor_name":"Mid-Atlantic Region","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008873","descriptor_name":"Mid-Atlantic Region","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008873","descriptor_name":"Mid-Atlantic Region","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017741","descriptor_name":"Survivors","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1037/a0023947","doi":"https://doi.org/10.1037/a0023947","is_oa":false,"landing_page_url":"https://doi.org/10.1037/a0023947","pdf_url":null,"source":{"id":"https://openalex.org/S177918913","display_name":"Families Systems & Health","issn_l":"1091-7527","issn":["1091-7527","1939-0602"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","medline","norway-1"],"host_organization":"https://openalex.org/P4310320262","host_organization_name":"American Psychological Association","host_organization_lineage":["https://openalex.org/P4310320262"],"host_organization_lineage_names":["American Psychological Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Families, Systems, & Health","raw_type":"journal-article"},{"id":"pmid:21688904","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21688904","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Families, systems & health : the journal of collaborative family healthcare","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.8299999833106995,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320306867","display_name":"American Breast Cancer Foundation","ror":"https://ror.org/03p9d3z47"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":12,"referenced_works":["https://openalex.org/W259764166","https://openalex.org/W615572723","https://openalex.org/W630326116","https://openalex.org/W1517515042","https://openalex.org/W1658908529","https://openalex.org/W1684809301","https://openalex.org/W1688483634","https://openalex.org/W2005791479","https://openalex.org/W2070504353","https://openalex.org/W2135897145","https://openalex.org/W2171848569","https://openalex.org/W2904920079"],"related_works":["https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W2031024199","https://openalex.org/W1976300921","https://openalex.org/W2052398576","https://openalex.org/W2995352435","https://openalex.org/W2138133709","https://openalex.org/W1970999377","https://openalex.org/W4230789904","https://openalex.org/W2139937656"],"abstract_inverted_index":{"With":[0],"improvements":[1],"in":[2,18,125,176,210],"both":[3],"early":[4],"detection":[5],"and":[6,40,60,133,162,195,207],"treatments":[7],"for":[8,29],"breast":[9,62,82,126],"cancer,":[10],"the":[11,23,52,66,93,100,146,149,157,160,165,174,180,211],"number":[12],"of":[13,22,43,51,54,72,81,95,102,112,151,159],"survivors":[14,31,64,80,147],"has":[15],"increased":[16],"dramatically":[17],"recent":[19],"decades.":[20],"One":[21],"most":[24],"common":[25],"lingering":[26],"symptoms":[27],"posttreatment":[28,56,194],"cancer":[30,63,83,97,127],"is":[32,182],"chronic":[33,74,192],"fatigue.":[34],"Based":[35],"on":[36,58,153],"family":[37,67,135,169,177,181,198,212],"stress":[38,199],"theory":[39,200],"Rolland's":[41],"typology":[42],"illness,":[44],"this":[45,73],"qualitative":[46],"study":[47],"extends":[48],"our":[49],"understanding":[50],"impact":[53,150],"persistent":[55],"fatigue":[57,91,119,124,152,161],"families":[59],"how":[61,145],"manage":[65,148],"issues":[68],"that":[69,143],"arise":[70],"because":[71],"stressor.":[75],"Participants":[76],"included":[77],"35":[78],"female":[79],"(mean":[84],"age":[85],"=":[86],"54":[87],"years)":[88],"who":[89],"experienced":[90],"after":[92],"completion":[94],"active":[96],"treatment,":[98],"with":[99,164],"exception":[101],"long-term":[103],"hormonal":[104],"therapy.":[105],"Data":[106],"were":[107],"generated":[108],"from":[109,115],"(a)":[110],"observations":[111],"group":[113],"sessions":[114],"a":[116,187,191],"randomized":[117],"controlled":[118],"intervention":[120],"designed":[121],"to":[122,167,185,190],"reduce":[123],"survivors,":[128],"(b)":[129],"individual":[130],"in-depth":[131],"interviews,":[132],"(c)":[134],"sessions.":[136],"Qualitative":[137],"analysis":[138],"revealed":[139],"two":[140],"broad":[141],"themes":[142],"illustrate":[144],"their":[154],"families:":[155],"Interpreting":[156],"meaning":[158,189],"Dealing":[163],"inability":[166],"perform":[168],"roles.":[170],"Study":[171],"findings":[172],"describe":[173],"difficulties":[175],"adaptation":[178],"when":[179],"not":[183],"able":[184],"assign":[186],"clear":[188],"symptom":[193],"build":[196],"upon":[197],"by":[201],"highlighting":[202],"interrelationships":[203],"among":[204],"communication":[205],"patterns":[206],"role":[208],"shifts":[209],"system.":[213]},"counts_by_year":[{"year":2026,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":2},{"year":2020,"cited_by_count":3},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":3},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":3},{"year":2012,"cited_by_count":1}],"updated_date":"2026-09-22T06:50:58.402377","created_date":"2025-10-10T00:00:00"}