{"id":"https://openalex.org/W1998892001","doi":"https://doi.org/10.3109/09638237.2013.779368","title":"Family members' of persons living with a serious mental illness: Experiences and efforts to cope with stigma","display_name":"Family members' of persons living with a serious mental illness: Experiences and efforts to cope with stigma","publication_year":2013,"publication_date":"2013-05-10","ids":{"openalex":"https://openalex.org/W1998892001","doi":"https://doi.org/10.3109/09638237.2013.779368","mag":"1998892001","pmid":"https://pubmed.ncbi.nlm.nih.gov/23662789"},"language":"en","primary_location":{"id":"doi:10.3109/09638237.2013.779368","doi":"https://doi.org/10.3109/09638237.2013.779368","is_oa":false,"landing_page_url":"https://doi.org/10.3109/09638237.2013.779368","pdf_url":null,"source":{"id":"https://openalex.org/S112414500","display_name":"Journal of Mental Health","issn_l":"0963-8237","issn":["0963-8237","1360-0567"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Mental Health","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5076673730","display_name":"Orit Karnieli\u2010Miller","orcid":"https://orcid.org/0000-0002-5790-0697","observed_orcids":["https://orcid.org/0000-0002-5790-0697"]},"institutions":[{"id":"https://openalex.org/I16391192","display_name":"Tel Aviv University","ror":"https://ror.org/04mhzgx49","country_code":"IL","type":"education","lineage":["https://openalex.org/I16391192"]}],"countries":["IL"],"is_corresponding":true,"raw_author_name":"Orit Karnieli-Miller","raw_affiliation_strings":["Department of Medical Education, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel. OritKM@gmail.com","Department of Medical Education, Sackler School of Medicine, Tel-Aviv University, Tel-Aviv, Israel"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Education, Sackler School of Medicine, Tel Aviv University, Tel Aviv, Israel. OritKM@gmail.com","institution_ids":["https://openalex.org/I16391192"]},{"raw_affiliation_string":"Department of Medical Education, Sackler School of Medicine, Tel-Aviv University, Tel-Aviv, Israel","institution_ids":["https://openalex.org/I16391192"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5050891268","display_name":"DEBORAH A. PERLICK","orcid":"https://orcid.org/0000-0001-9331-5105","observed_orcids":["https://orcid.org/0000-0001-9331-5105"]},"institutions":[{"id":"https://openalex.org/I98704320","display_name":"Icahn School of Medicine at Mount Sinai","ror":"https://ror.org/04a9tmd77","country_code":"US","type":"education","lineage":["https://openalex.org/I1320796813","https://openalex.org/I98704320"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Deborah A. Perlick","raw_affiliation_strings":["Department of Psychiatry, Mount Sinai School of Medicine, New York, NY, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychiatry, Mount Sinai School of Medicine, New York, NY, USA","institution_ids":["https://openalex.org/I98704320"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033830816","display_name":"Ann Nelson","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I29618950","display_name":"National Alliance on Mental Illness","ror":"https://ror.org/01z3wjy47","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I29618950"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ann Nelson","raw_affiliation_strings":["National Alliance on Mental Illness, Hartford, CT, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"National Alliance on Mental Illness, Hartford, CT, USA","institution_ids":["https://openalex.org/I29618950"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011728769","display_name":"Kate Mattias","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I29618950","display_name":"National Alliance on Mental Illness","ror":"https://ror.org/01z3wjy47","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I29618950"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kate Mattias","raw_affiliation_strings":["National Alliance on Mental Illness, Hartford, CT, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"National Alliance on Mental Illness, Hartford, CT, USA","institution_ids":["https://openalex.org/I29618950"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027382170","display_name":"Patrick William Corrigan","orcid":"https://orcid.org/0000-0001-7405-4173","observed_orcids":["https://orcid.org/0000-0001-7405-4173"]},"institutions":[{"id":"https://openalex.org/I180949307","display_name":"Illinois Institute of Technology","ror":"https://ror.org/037t3ry66","country_code":"US","type":"education","lineage":["https://openalex.org/I180949307"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Patrick Corrigan","raw_affiliation_strings":["Illinois Institute of Technology (IIT), Chicago, IL, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Illinois Institute of Technology (IIT), Chicago, IL, USA","institution_ids":["https://openalex.org/I180949307"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5000444313","display_name":"David Roe","orcid":"https://orcid.org/0000-0002-6197-0989","observed_orcids":["https://orcid.org/0000-0002-6197-0989"]},"institutions":[{"id":"https://openalex.org/I91203450","display_name":"University of Haifa","ror":"https://ror.org/02f009v59","country_code":"IL","type":"education","lineage":["https://openalex.org/I91203450"]}],"countries":["IL"],"is_corresponding":false,"raw_author_name":"David Roe","raw_affiliation_strings":["Department of Community Mental Health, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel","Department of Community Mental Health Faculty of Social Welfare & Health Sciences University of Haifa Haifa Israel"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Community Mental Health, Faculty of Social Welfare and Health Sciences, University of Haifa, Haifa, Israel","institution_ids":["https://openalex.org/I91203450"]},{"raw_affiliation_string":"Department of Community Mental Health Faculty of Social Welfare & Health Sciences University of Haifa Haifa Israel","institution_ids":["https://openalex.org/I91203450"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5076673730"],"corresponding_institution_ids":["https://openalex.org/I16391192"],"apc_list":null,"apc_paid":null,"fwci":5.9272,"has_fulltext":false,"cited_by_count":88,"citation_normalized_percentile":{"value":0.95385347,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":94,"max":100},"biblio":{"volume":"22","issue":"3","first_page":"254","last_page":"262"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.9262999892234802,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.9262999892234802,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10272","display_name":"Mental Health Treatment and Access","score":0.06369999796152115,"subfield":{"id":"https://openalex.org/subfields/3207","display_name":"Social Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.004999999888241291,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/relatives-of-people-with-mental-illness","display_name":"relatives of people with mental illness","score":0.8050000071525574},{"id":"https://openalex.org/keywords/mental-health-stigma","display_name":"mental health stigma","score":0.8529999852180481},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.8240000009536743},{"id":"https://openalex.org/keywords/selective-disclosure","display_name":"selective disclosure","score":0.7289999723434448},{"id":"https://openalex.org/keywords/social-rejection","display_name":"social rejection","score":0.753000020980835},{"id":"https://openalex.org/keywords/shame","display_name":"shame","score":0.625},{"id":"https://openalex.org/keywords/blame","display_name":"blame","score":0.5260000228881836},{"id":"https://openalex.org/keywords/disclosure","display_name":"disclosure","score":0.34299999475479126},{"id":"https://openalex.org/keywords/personal-resources","display_name":"personal resources","score":0.7329999804496765}],"concepts":[{"id":"https://openalex.org/C2776674806","wikidata":"https://www.wikidata.org/wiki/Q12135","display_name":"Mental illness","level":3,"score":0.6926702260971069},{"id":"https://openalex.org/C2781283010","wikidata":"https://www.wikidata.org/wiki/Q152282","display_name":"Shame","level":2,"score":0.6733481287956238},{"id":"https://openalex.org/C2779628136","wikidata":"https://www.wikidata.org/wiki/Q621206","display_name":"Disappointment","level":2,"score":0.6028212904930115},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.5517133474349976},{"id":"https://openalex.org/C2781466463","wikidata":"https://www.wikidata.org/wiki/Q621695","display_name":"Blame","level":2,"score":0.533768892288208},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5322926640510559},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.432988703250885},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.4118528962135315},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.36789458990097046},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.364474892616272},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.35566890239715576},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.2998659014701843},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D028642","descriptor_name":"Persons with Psychiatric Disorders","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057545","descriptor_name":"Social Stigma","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":2,"locations":[{"id":"doi:10.3109/09638237.2013.779368","doi":"https://doi.org/10.3109/09638237.2013.779368","is_oa":false,"landing_page_url":"https://doi.org/10.3109/09638237.2013.779368","pdf_url":null,"source":{"id":"https://openalex.org/S112414500","display_name":"Journal of Mental Health","issn_l":"0963-8237","issn":["0963-8237","1360-0567"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Mental Health","raw_type":"journal-article"},{"id":"pmid:23662789","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/23662789","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of mental health (Abingdon, England)","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9537000060081482,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.75,"display_name":"Peace, justice, and strong institutions","id":"https://metadata.un.org/sdg/16"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":29,"referenced_works":["https://openalex.org/W30670027","https://openalex.org/W102861764","https://openalex.org/W1518285894","https://openalex.org/W1530155851","https://openalex.org/W1967729323","https://openalex.org/W2004161196","https://openalex.org/W2020847012","https://openalex.org/W2022768097","https://openalex.org/W2038244408","https://openalex.org/W2044191975","https://openalex.org/W2054285772","https://openalex.org/W2065074410","https://openalex.org/W2068351378","https://openalex.org/W2070599342","https://openalex.org/W2081219703","https://openalex.org/W2091485524","https://openalex.org/W2107778213","https://openalex.org/W2112072287","https://openalex.org/W2132366254","https://openalex.org/W2141290815","https://openalex.org/W2152445877","https://openalex.org/W2154098056","https://openalex.org/W2212401464","https://openalex.org/W2799104644","https://openalex.org/W3086739746","https://openalex.org/W4205411795","https://openalex.org/W4213367093","https://openalex.org/W4297361601","https://openalex.org/W4405072725"],"related_works":["https://openalex.org/W2614524286","https://openalex.org/W2098516767","https://openalex.org/W3181352676","https://openalex.org/W7036866881","https://openalex.org/W1971048637","https://openalex.org/W4402978254","https://openalex.org/W4394873035","https://openalex.org/W7143442217","https://openalex.org/W6959936505","https://openalex.org/W2981705482"],"abstract_inverted_index":{"BACKGROUND:":[0],"Studies":[1],"have":[2],"indicated":[3],"that":[4,112],"family":[5,41,68,143],"members":[6,78],"of":[7,27,60,121],"persons":[8],"with":[9,35,48],"mental":[10,49],"illness":[11,50],"often":[12],"experience":[13,118],"stigma":[14,51],"in":[15,52],"relation":[16],"to":[17,46,66,73,107,130],"their":[18,99,104,116],"relatives'":[19,105],"illness.":[20],"Less":[21],"is":[22],"known":[23],"about":[24],"the":[25,119,140],"type":[26],"experiences":[28,43,70],"they":[29,33],"face":[30],"and":[31,44,71,83,90,103,128,142,146,153],"how":[32,126],"cope":[34,47],"these":[36],"experiences.":[37],"AIMS:":[38],"To":[39],"explore":[40],"members'":[42,69,144],"efforts":[45],"social":[53],"encounters.":[54],"METHOD:":[55],"A":[56],"qualitative":[57],"immersion/crystallization":[58],"analysis":[59],"focus":[61],"group":[62],"data":[63],"was":[64],"used":[65],"examine":[67],"responses":[72],"perceived":[74],"stigma.":[75],"RESULTS:":[76],"Family":[77],"reported":[79],"experiencing":[80],"rejection,":[81],"blame":[82],"avoidance":[84],"by":[85],"others,":[86],"engendering":[87],"hurt,":[88],"disappointment":[89],"shame.":[91],"They":[92],"employed":[93],"flexible":[94],"coping":[95],"strategies":[96,135],"depending":[97],"on":[98,139],"personal":[100,147],"resources,":[101],"motivation":[102],"willingness":[106],"disclose.":[108],"CONCLUSION:":[109],"Findings":[110],"suggest":[111],"families":[113,152],"learn":[114],"from":[115],"own":[117],"\"art":[120],"selective":[122],"disclosure\":":[123],"what,":[124],"when,":[125],"much":[127],"who":[129],"share":[131],"information":[132],"with.":[133],"Coping":[134],"are":[136],"developed":[137],"based":[138],"situation":[141],"needs":[145],"resources":[148],"which":[149],"differ":[150],"between":[151],"over":[154],"time.":[155]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":8},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":9},{"year":2021,"cited_by_count":7},{"year":2020,"cited_by_count":5},{"year":2019,"cited_by_count":5},{"year":2018,"cited_by_count":8},{"year":2017,"cited_by_count":15},{"year":2016,"cited_by_count":6},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":2},{"year":2013,"cited_by_count":2}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}