{"id":"https://openalex.org/W1990947718","doi":"https://doi.org/10.1080/13691457.2013.802225","title":"Mutual help without borders? Plurality and heterogeneity of online mutual help practices for people with long-term chronic conditions","display_name":"Mutual help without borders? Plurality and heterogeneity of online mutual help practices for people with long-term chronic conditions","publication_year":2013,"publication_date":"2013-05-30","ids":{"openalex":"https://openalex.org/W1990947718","doi":"https://doi.org/10.1080/13691457.2013.802225","mag":"1990947718"},"language":"en","primary_location":{"id":"doi:10.1080/13691457.2013.802225","doi":"https://doi.org/10.1080/13691457.2013.802225","is_oa":false,"landing_page_url":"https://doi.org/10.1080/13691457.2013.802225","pdf_url":null,"source":{"id":"https://openalex.org/S100564699","display_name":"European Journal of Social Work","issn_l":"1369-1457","issn":["1369-1457","1468-2664"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","jufo-2","ki-jl-2","norway-2","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European Journal of Social Work","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5100623953","display_name":"Paolo Dionigi Rossi","orcid":"https://orcid.org/0000-0002-1202-5454","observed_orcids":["https://orcid.org/0000-0002-1202-5454"]},"institutions":[{"id":"https://openalex.org/I66752286","display_name":"University of Milano-Bicocca","ror":"https://ror.org/01ynf4891","country_code":"IT","type":"education","lineage":["https://openalex.org/I66752286"]}],"countries":["IT"],"is_corresponding":true,"raw_author_name":"Paolo Rossi","raw_affiliation_strings":["Department of Sociology and Social Research, University of Milano Bicocca, Milano, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Sociology and Social Research, University of Milano Bicocca, Milano, Italy","institution_ids":["https://openalex.org/I66752286"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5079117339","display_name":"Mara Tognetti Bordogna","orcid":"https://orcid.org/0000-0001-9940-5304","observed_orcids":["https://orcid.org/0000-0001-9940-5304"]},"institutions":[{"id":"https://openalex.org/I66752286","display_name":"University of Milano-Bicocca","ror":"https://ror.org/01ynf4891","country_code":"IT","type":"education","lineage":["https://openalex.org/I66752286"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Mara Tognetti Bordogna","raw_affiliation_strings":["Department of Sociology and Social Research, University of Milano Bicocca, Milano, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Sociology and Social Research, University of Milano Bicocca, Milano, Italy","institution_ids":["https://openalex.org/I66752286"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5100623953"],"corresponding_institution_ids":["https://openalex.org/I66752286"],"apc_list":null,"apc_paid":null,"fwci":0.602,"has_fulltext":false,"cited_by_count":3,"citation_normalized_percentile":{"value":0.77351886,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":"17","issue":"4","first_page":"523","last_page":"538"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9937000274658203,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.9937000274658203,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.002400000113993883,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11120","display_name":"Nonprofit Sector and Volunteering","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/online-support-groups","display_name":"online support groups","score":0.8759999871253967},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.7649999856948853},{"id":"https://openalex.org/keywords/online-communities","display_name":"online communities","score":0.6740000247955322},{"id":"https://openalex.org/keywords/mutual-aid","display_name":"mutual aid","score":0.640999972820282},{"id":"https://openalex.org/keywords/digital-health","display_name":"digital health","score":0.3700000047683716},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.46700000762939453}],"concepts":[{"id":"https://openalex.org/C2776636807","wikidata":"https://www.wikidata.org/wiki/Q766238","display_name":"Mutual aid","level":2,"score":0.8418498039245605},{"id":"https://openalex.org/C50335755","wikidata":"https://www.wikidata.org/wiki/Q483247","display_name":"Phenomenon","level":2,"score":0.6341327428817749},{"id":"https://openalex.org/C136197465","wikidata":"https://www.wikidata.org/wiki/Q1729295","display_name":"Variety (cybernetics)","level":2,"score":0.5145058631896973},{"id":"https://openalex.org/C2776291640","wikidata":"https://www.wikidata.org/wiki/Q2912517","display_name":"Value (mathematics)","level":2,"score":0.5066879391670227},{"id":"https://openalex.org/C33676613","wikidata":"https://www.wikidata.org/wiki/Q13415176","display_name":"Dimension (graph theory)","level":2,"score":0.5011048316955566},{"id":"https://openalex.org/C61797465","wikidata":"https://www.wikidata.org/wiki/Q1188986","display_name":"Term (time)","level":2,"score":0.4787156581878662},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.35933035612106323},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.24515771865844727},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.1761663854122162},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.16644015908241272},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.10063710808753967},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C202444582","wikidata":"https://www.wikidata.org/wiki/Q837863","display_name":"Pure mathematics","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1080/13691457.2013.802225","doi":"https://doi.org/10.1080/13691457.2013.802225","is_oa":false,"landing_page_url":"https://doi.org/10.1080/13691457.2013.802225","pdf_url":null,"source":{"id":"https://openalex.org/S100564699","display_name":"European Journal of Social Work","issn_l":"1369-1457","issn":["1369-1457","1468-2664"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","jufo-2","ki-jl-2","norway-2","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"European Journal of Social Work","raw_type":"journal-article"},{"id":"pmh:oai:boa.unimib.it:10281/44292","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10281/44292","pdf_url":null,"source":{"id":"https://openalex.org/S4306401259","display_name":"BOA (University of Milano-Bicocca)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I66752286","host_organization_name":"University of Milano-Bicocca","host_organization_lineage":["https://openalex.org/I66752286"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.6240000128746033}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":31,"referenced_works":["https://openalex.org/W578583900","https://openalex.org/W1486582777","https://openalex.org/W1584687312","https://openalex.org/W1881839772","https://openalex.org/W1968998821","https://openalex.org/W1974895542","https://openalex.org/W1999434819","https://openalex.org/W2000660784","https://openalex.org/W2006245747","https://openalex.org/W2007138079","https://openalex.org/W2024911075","https://openalex.org/W2043274254","https://openalex.org/W2058303157","https://openalex.org/W2091226615","https://openalex.org/W2093157360","https://openalex.org/W2098949227","https://openalex.org/W2106150739","https://openalex.org/W2114250796","https://openalex.org/W2124929378","https://openalex.org/W2127652303","https://openalex.org/W2128404949","https://openalex.org/W2141085468","https://openalex.org/W2147625757","https://openalex.org/W2150262257","https://openalex.org/W2151006059","https://openalex.org/W2152266634","https://openalex.org/W2167737341","https://openalex.org/W2264879016","https://openalex.org/W2326904965","https://openalex.org/W2342362069","https://openalex.org/W4255695306"],"related_works":["https://openalex.org/W2294059060","https://openalex.org/W2991453787","https://openalex.org/W1983323517","https://openalex.org/W3096382628","https://openalex.org/W2802696618","https://openalex.org/W7160211556","https://openalex.org/W2135716417","https://openalex.org/W4384559723","https://openalex.org/W2886041853","https://openalex.org/W2306166015"],"abstract_inverted_index":{"Online":[0],"mutual":[1,31,46,106,110,119,146,180],"help":[2,107,120,147,181],"experiences":[3,44,55,133],"may":[4],"represent":[5],"an":[6,187],"opportunity":[7],"for":[8,76,162],"people":[9],"with":[10],"long-term":[11],"chronic":[12],"(LTC)":[13],"conditions":[14],"and":[15,82,108,134,137,151,167],"their":[16,123,170],"caregivers.":[17],"However,":[18,67],"there":[19],"are":[20],"very":[21],"few":[22],"accounts":[23],"of":[24,30,42,45,63,70,79,84,90,105,117,144,178],"or":[25],"research":[26],"on":[27],"online":[28,43,109,118,145,188],"practices":[29],"support":[32,65],"about":[33],"such":[34,85],"issues.":[35],"On":[36,87],"the":[37,40,61,68,77,88,99,114,128,157,175,179],"other":[38],"hand,":[39],"growth":[41],"aid":[47],"has":[48],"been":[49,57],"extensive":[50],"in":[51],"recent":[52],"decades.":[53],"These":[54],"have":[56,161],"conventionally":[58],"classified":[59],"under":[60],"notion":[62,69],"\u2018online":[64],"groups\u2019.":[66],"group":[71],"seems":[72],"to":[73,186],"be":[74],"reductive":[75],"variety":[78],"forms,":[80],"meanings":[81],"implications":[83],"experiences.":[86],"basis":[89],"these":[91],"assumptions,":[92],"our":[93],"paper":[94],"aims":[95],"at:":[96],"a)":[97],"describing":[98],"main":[100,142],"differences":[101],"between":[102,131],"traditional":[103],"forms":[104,116],"help;":[111],"b)":[112],"identifying":[113],"emerging":[115],"experience,":[121],"emphasizing":[122,169],"distinctive":[124],"features;":[125],"c)":[126],"tracing":[127],"potential":[129],"connections":[130],"different":[132],"people,":[135,164],"practitioners":[136,166],"institutions.":[138],"We":[139,154],"identify":[140],"three":[141],"types":[143],"experience:":[148],"groups,":[149],"communities":[150],"extemporary":[152],"practices.":[153],"then":[155],"analyze":[156],"value":[158],"they":[159],"can":[160],"LTC":[163],"caregivers,":[165],"institutions,":[168],"heterogeneity.":[171],"Finally":[172],"we":[173],"discuss":[174],"overall":[176],"evolution":[177],"phenomenon,":[182],"considering":[183],"its":[184],"transition":[185],"dimension.":[189]},"counts_by_year":[{"year":2023,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2014,"cited_by_count":1}],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2016-06-24T00:00:00"}