{"id":"https://openalex.org/W1985698267","doi":"https://doi.org/10.4172/2161-069x.1000166","title":"Rationale for Using Social Media to Collect Patient-Reported Outcomes in Patients with Celiac Disease","display_name":"Rationale for Using Social Media to Collect Patient-Reported Outcomes in Patients with Celiac Disease","publication_year":2014,"publication_date":"2014-01-01","ids":{"openalex":"https://openalex.org/W1985698267","doi":"https://doi.org/10.4172/2161-069x.1000166","mag":"1985698267","pmid":"https://pubmed.ncbi.nlm.nih.gov/25392743","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/4226063"},"language":"en","primary_location":{"id":"doi:10.4172/2161-069x.1000166","doi":"https://doi.org/10.4172/2161-069x.1000166","is_oa":true,"landing_page_url":"https://doi.org/10.4172/2161-069x.1000166","pdf_url":null,"source":{"id":"https://openalex.org/S4210195026","display_name":"Journal of Gastrointestinal & Digestive System","issn_l":"2161-069X","issn":["2161-069X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":"https://openalex.org/P4310320466","host_organization_name":"OMICS Publishing Group","host_organization_lineage":["https://openalex.org/P4310320466"],"host_organization_lineage_names":["OMICS Publishing Group"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Gastrointestinal & Digestive System","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.4172/2161-069x.1000166","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Merissa Harris","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I193531525","display_name":"George Washington University","ror":"https://ror.org/00y4zzh67","country_code":"US","type":"education","lineage":["https://openalex.org/I193531525"]},{"id":"https://openalex.org/I4210137306","display_name":"Stanford Medicine","ror":"https://ror.org/03mtd9a03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]},{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Merissa Harris","raw_affiliation_strings":["School of Medicine, George Washington University, District of Columbia, USA","Division of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA ; Center for Health Policy/Primary Care Outcomes Research, Stanford University, Stanford, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Medicine, George Washington University, District of Columbia, USA","institution_ids":["https://openalex.org/I193531525"]},{"raw_affiliation_string":"Division of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA ; Center for Health Policy/Primary Care Outcomes Research, Stanford University, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I193531525","https://openalex.org/I4210137306","https://openalex.org/I97018004"],"apc_list":null,"apc_paid":null,"fwci":0.8484,"has_fulltext":false,"cited_by_count":12,"citation_normalized_percentile":{"value":0.75655497,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":97},"biblio":{"volume":"04","issue":"01","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.9692000150680542,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.9692000150680542,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11348","display_name":"Celiac Disease Research and Management","score":0.012600000016391277,"subfield":{"id":"https://openalex.org/subfields/2715","display_name":"Gastroenterology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.005900000222027302,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/celiac-disease","display_name":"celiac disease","score":0.9860000014305115},{"id":"https://openalex.org/keywords/social-media","display_name":"social media","score":0.9779999852180481},{"id":"https://openalex.org/keywords/patient-reported-outcomes","display_name":"patient-reported outcomes","score":0.9990000128746033},{"id":"https://openalex.org/keywords/gluten-free-diet-adherence","display_name":"gluten-free diet adherence","score":0.8379999995231628},{"id":"https://openalex.org/keywords/gastrointestinal-symptoms","display_name":"gastrointestinal symptoms","score":0.8799999952316284},{"id":"https://openalex.org/keywords/first-year-students","display_name":"first-year students","score":0.5849999785423279},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.7990000247955322},{"id":"https://openalex.org/keywords/mobile-health-technology","display_name":"mobile health technology","score":0.718999981880188},{"id":"https://openalex.org/keywords/patient-engagement","display_name":"patient engagement","score":0.47999998927116394}],"concepts":[{"id":"https://openalex.org/C518677369","wikidata":"https://www.wikidata.org/wiki/Q202833","display_name":"Social media","level":2,"score":0.6221417188644409},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.550517201423645},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4369678497314453},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.30124199390411377},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.21572163701057434},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.15482497215270996}],"mesh":[],"locations_count":4,"locations":[{"id":"doi:10.4172/2161-069x.1000166","doi":"https://doi.org/10.4172/2161-069x.1000166","is_oa":true,"landing_page_url":"https://doi.org/10.4172/2161-069x.1000166","pdf_url":null,"source":{"id":"https://openalex.org/S4210195026","display_name":"Journal of Gastrointestinal & Digestive System","issn_l":"2161-069X","issn":["2161-069X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":"https://openalex.org/P4310320466","host_organization_name":"OMICS Publishing Group","host_organization_lineage":["https://openalex.org/P4310320466"],"host_organization_lineage_names":["OMICS Publishing Group"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Gastrointestinal & Digestive System","raw_type":"journal-article"},{"id":"pmid:25392743","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/25392743","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of gastrointestinal & digestive system","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:4226063","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/4226063","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"J Gastrointest Dig Syst","raw_type":"Text"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.788.9083","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.788.9083","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"ftp://ftp.ncbi.nlm.nih.gov/pub/pmc/41/d7/nihms640001.PMC4226063.pdf","raw_type":"text"}],"best_oa_location":{"id":"doi:10.4172/2161-069x.1000166","doi":"https://doi.org/10.4172/2161-069x.1000166","is_oa":true,"landing_page_url":"https://doi.org/10.4172/2161-069x.1000166","pdf_url":null,"source":{"id":"https://openalex.org/S4210195026","display_name":"Journal of Gastrointestinal & Digestive System","issn_l":"2161-069X","issn":["2161-069X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":"https://openalex.org/P4310320466","host_organization_name":"OMICS Publishing Group","host_organization_lineage":["https://openalex.org/P4310320466"],"host_organization_lineage_names":["OMICS Publishing Group"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Gastrointestinal & Digestive System","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9763000011444092}],"study_designs":[],"awards":[{"id":"https://openalex.org/G7641469111","display_name":"Pharmaco-economics and Optimal Strategies of Biologics Use in Inflammatory Bowel","funder_award_id":"K08DK094868","funder_id":"https://openalex.org/F4320337357","funder_display_name":"National Institute of Diabetes and Digestive and Kidney Diseases"}],"funders":[{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"},{"id":"https://openalex.org/F4320337357","display_name":"National Institute of Diabetes and Digestive and Kidney Diseases","ror":"https://ror.org/00adh9b73"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":10,"referenced_works":["https://openalex.org/W2045885940","https://openalex.org/W2059925668","https://openalex.org/W2104755863","https://openalex.org/W2122233871","https://openalex.org/W2125269912","https://openalex.org/W2126763155","https://openalex.org/W2138976558","https://openalex.org/W2146545407","https://openalex.org/W2147073231","https://openalex.org/W2148181723"],"related_works":["https://openalex.org/W6906555546","https://openalex.org/W3004598477","https://openalex.org/W4399210675","https://openalex.org/W2894192826","https://openalex.org/W2121342611","https://openalex.org/W7124967009","https://openalex.org/W7033438616","https://openalex.org/W7017555674","https://openalex.org/W3155937810","https://openalex.org/W2803349553"],"abstract_inverted_index":{"Patients":[0],"with":[1,43,100],"celiac":[2,44,101],"disease":[3,58,102],"(CD)":[4],"are":[5],"increasingly":[6],"interconnected":[7],"through":[8,19,127],"social":[9,34,62,90,118],"media,":[10],"exchanging":[11],"patient":[12,122],"experiences":[13],"and":[14,32,41,54,84,107],"health-tracking":[15],"information":[16],"between":[17,30],"individuals":[18],"various":[20,61],"web-based":[21],"platforms.":[22],"Social":[23],"media":[24,35,63,91,119],"represents":[25],"potentially":[26],"unique":[27],"communication":[28],"interface":[29],"gastroenterologists":[31],"active":[33],"users":[36],"-":[37],"especially":[38],"young":[39],"adults":[40],"adolescents":[42],"disease-regarding":[45],"adherence":[46],"to":[47,71],"the":[48,81,111,125],"strict":[49],"gluten-free":[50],"diet,":[51],"gastrointestinal":[52],"symptoms,":[53],"meaningful":[55],"discussion":[56],"about":[57],"management.":[59],"Yet,":[60],"platforms":[64],"may":[65,120],"be":[66],"underutilized":[67],"for":[68,86],"research":[69],"purposes":[70],"collect":[72],"patient-reported":[73,93],"outcomes":[74,94],"data.":[75],"In":[76],"this":[77],"commentary,":[78],"we":[79,115],"summarize":[80],"scientific":[82],"rationale":[83],"potential":[85],"future":[87,126],"growth":[88],"of":[89,110],"in":[92,124],"research,":[95],"focusing":[96],"on":[97],"college":[98],"freshmen":[99],"as":[103],"a":[104],"case":[105],"study":[106],"provide":[108],"overview":[109],"methodological":[112],"approach.":[113],"Finally,":[114],"discuss":[116],"how":[117],"impact":[121],"care":[123],"increasing":[128],"mobile":[129],"technology":[130],"use.":[131]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":2},{"year":2020,"cited_by_count":1},{"year":2015,"cited_by_count":2}],"updated_date":"2026-10-30T12:39:25.321706","created_date":"2016-06-24T00:00:00"}