{"id":"https://openalex.org/W19803768","doi":null,"title":"Should parents be permitted to authorize genetic testing for their children?","display_name":"Should parents be permitted to authorize genetic testing for their children?","publication_year":1997,"publication_date":"1997-01-01","ids":{"openalex":"https://openalex.org/W19803768","mag":"19803768","pmid":"https://pubmed.ncbi.nlm.nih.gov/11660616"},"language":"en","primary_location":{"id":"pmid:11660616","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/11660616","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Family law quarterly","raw_type":"Journal Article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5072753262","display_name":"Julie A. Holland","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Julie Holland","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5072753262"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.445,"has_fulltext":false,"cited_by_count":9,"citation_normalized_percentile":{"value":0.61465846,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":95},"biblio":{"volume":"31","issue":"2","first_page":"321","last_page":"53"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.9434000253677368,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T14437","display_name":"Ethics and Legal Issues in Pediatric Healthcare","score":0.9434000253677368,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13275","display_name":"Medical and Health Sciences Research","score":0.053599998354911804,"subfield":{"id":"https://openalex.org/subfields/3308","display_name":"Law"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.002300000051036477,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/genetic-testing","display_name":"genetic testing","score":0.9520000219345093},{"id":"https://openalex.org/keywords/minors","display_name":"minors","score":0.7990000247955322},{"id":"https://openalex.org/keywords/genetic-privacy","display_name":"genetic privacy","score":0.7889999747276306},{"id":"https://openalex.org/keywords/genetic-susceptibility","display_name":"genetic susceptibility","score":0.6340000033378601},{"id":"https://openalex.org/keywords/informed-consent","display_name":"informed consent","score":0.5410000085830688},{"id":"https://openalex.org/keywords/institute-of-medicine-recommendations","display_name":"Institute of Medicine recommendations","score":0.8009999990463257}],"concepts":[{"id":"https://openalex.org/C2777363581","wikidata":"https://www.wikidata.org/wiki/Q15098235","display_name":"Harm","level":2,"score":0.86957848072052},{"id":"https://openalex.org/C2780673598","wikidata":"https://www.wikidata.org/wiki/Q285223","display_name":"Genetic testing","level":2,"score":0.845732569694519},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5221862196922302},{"id":"https://openalex.org/C2777267654","wikidata":"https://www.wikidata.org/wiki/Q3519023","display_name":"Test (biology)","level":2,"score":0.4333771765232086},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36379411816596985},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.3512430489063263},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.3393949270248413},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.23860198259353638},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.10420390963554382},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C151730666","wikidata":"https://www.wikidata.org/wiki/Q7205","display_name":"Paleontology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D002961","descriptor_name":"Civil Rights","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004651","descriptor_name":"Employment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005610","descriptor_name":"Freedom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005791","descriptor_name":"Patient Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005817","descriptor_name":"Genetic Counseling","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005820","descriptor_name":"Genetic Testing","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006579","descriptor_name":"Heterozygote","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006805","descriptor_name":"Human Experimentation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007258","descriptor_name":"Informed Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007603","descriptor_name":"Jurisprudence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010375","descriptor_name":"Pedigree","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011287","descriptor_name":"Prejudice","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012015","descriptor_name":"Reference Standards","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012306","descriptor_name":"Risk","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013315","descriptor_name":"Stress, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015273","descriptor_name":"Insurance Selection Bias","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017668","descriptor_name":"Age of Onset","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018570","descriptor_name":"Risk Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018907","descriptor_name":"Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D020458","descriptor_name":"Third-Party Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D026684","descriptor_name":"Personal Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D030342","descriptor_name":"Genetic Diseases, Inborn","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D030661","descriptor_name":"Genetic Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033242","descriptor_name":"Minors","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033282","descriptor_name":"Parental Consent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"pmid:11660616","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/11660616","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Family law quarterly","raw_type":"Journal Article"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/531182","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10822/531182","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"177738","raw_type":null},{"id":"mag:19803768","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/11660616","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.6240000128746033}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W324119102","https://openalex.org/W56933478","https://openalex.org/W2975149640","https://openalex.org/W162299205","https://openalex.org/W2030159001","https://openalex.org/W2061023289","https://openalex.org/W2316558441","https://openalex.org/W2007679276","https://openalex.org/W2408979799","https://openalex.org/W2025219605"],"abstract_inverted_index":{"Genetic":[0],"testing":[1,70,107,132],"is":[2,20,80,98,138],"a":[3,25],"field":[4],"that":[5,96,123],"has":[6,36],"experienced":[7],"rapid":[8],"advances":[9],"recently.":[10],"Through":[11],"genetic":[12,69,91,106,131],"testing,":[13],"doctors":[14],"can":[15],"predict":[16,35],"whether":[17,99],"an":[18,89],"individual":[19],"predisposed":[21],"to":[22,34,54,87,104,129,142],"suffer":[23],"from":[24],"particular":[26],"disorder":[27],"before":[28],"any":[29],"symptoms":[30],"manifest.":[31],"This":[32,145],"ability":[33],"many":[37],"benefits.":[38],"With":[39],"such":[40],"knowl":[41],"edge,":[42],"certain":[43],"disorders":[44],"may":[45,71],"be":[46,85,102,127],"prevented":[47],"or":[48],"slowed,":[49],"and":[50,58,82],"individuals":[51],"are":[52],"able":[53,128],"prepare":[55],"mentally,":[56],"emotionally,":[57],"financially":[59],"for":[60,108,133],"the":[61,64,117,143],"onset":[62],"of":[63,95,114,116,120],"disorder.":[65],"Despite":[66],"these":[67],"benefits,":[68],"cause":[72],"more":[73],"harm":[74],"than":[75],"good.":[76],"One":[77],"big":[78],"issue":[79,97],"privacy":[81],"who":[83],"should":[84,101,125],"permitted":[86,103],"know":[88],"individual's":[90],"make-up.":[92],"An":[93],"aspect":[94],"parents":[100,124],"authorize":[105,130],"their":[109,134],"minor":[110],"children.":[111,144],"The":[112],"Institute":[113],"Medicine":[115],"National":[118],"Academy":[119],"Sciences":[121],"recommends":[122],"not":[126],"children":[135],"when":[136],"there":[137],"no":[139],"clear":[140],"benefit":[141]},"counts_by_year":[{"year":2015,"cited_by_count":2},{"year":2014,"cited_by_count":1},{"year":2012,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}
