{"id":"https://openalex.org/W1978714716","doi":"https://doi.org/10.1352/1934-9556-50.2.92","title":"Demographic Characteristics, Health Conditions, and Residential Service Use in Adults with Down Syndrome in 25 U.S. States","display_name":"Demographic Characteristics, Health Conditions, and Residential Service Use in Adults with Down Syndrome in 25 U.S. States","publication_year":2012,"publication_date":"2012-04-01","ids":{"openalex":"https://openalex.org/W1978714716","doi":"https://doi.org/10.1352/1934-9556-50.2.92","mag":"1978714716","pmid":"https://pubmed.ncbi.nlm.nih.gov/22642964"},"language":"en","primary_location":{"id":"doi:10.1352/1934-9556-50.2.92","doi":"https://doi.org/10.1352/1934-9556-50.2.92","is_oa":false,"landing_page_url":"https://doi.org/10.1352/1934-9556-50.2.92","pdf_url":null,"source":{"id":"https://openalex.org/S38824448","display_name":"Intellectual and developmental disabilities","issn_l":"1934-9491","issn":["1934-9491","1934-9556"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","jufo-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Intellectual and Developmental Disabilities","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5000796765","display_name":"Roger James Stancliffe","orcid":"https://orcid.org/0000-0003-4265-7433","observed_orcids":["https://orcid.org/0000-0003-4265-7433"]},"institutions":[{"id":"https://openalex.org/I129604602","display_name":"The University of Sydney","ror":"https://ror.org/0384j8v12","country_code":"AU","type":"education","lineage":["https://openalex.org/I129604602"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Roger J. Stancliffe","raw_affiliation_strings":["Faculty of Health Sciences, University of Sydney","Faculty of Health Sciences, University of Sydney, Lidcombe, New South Wales, Australia. roger.stancliffe@sydney.edu.au"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Faculty of Health Sciences, University of Sydney","institution_ids":["https://openalex.org/I129604602"]},{"raw_affiliation_string":"Faculty of Health Sciences, University of Sydney, Lidcombe, New South Wales, Australia. roger.stancliffe@sydney.edu.au","institution_ids":["https://openalex.org/I129604602"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5113652170","display_name":"K. Charlie Lakin","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I130238516","display_name":"University of Minnesota","ror":"https://ror.org/017zqws13","country_code":"US","type":"education","lineage":["https://openalex.org/I130238516"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"K. Charlie Lakin","raw_affiliation_strings":["University of Minnesota, Research and Training Center on Community Living","University of Minnesota Twin Cities"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Minnesota, Research and Training Center on Community Living","institution_ids":["https://openalex.org/I130238516"]},{"raw_affiliation_string":"University of Minnesota Twin Cities","institution_ids":["https://openalex.org/I130238516"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090842455","display_name":"Sheryl A. Larson","orcid":"https://orcid.org/0000-0002-4464-9085","observed_orcids":["https://orcid.org/0000-0002-4464-9085"]},"institutions":[{"id":"https://openalex.org/I130238516","display_name":"University of Minnesota","ror":"https://ror.org/017zqws13","country_code":"US","type":"education","lineage":["https://openalex.org/I130238516"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sheryl A. Larson","raw_affiliation_strings":["University of Minnesota, Research and Training Center on Community Living","Institute on Community Integration"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Minnesota, Research and Training Center on Community Living","institution_ids":["https://openalex.org/I130238516"]},{"raw_affiliation_string":"Institute on Community Integration","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036480082","display_name":"Joshua Engler","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210119591","display_name":"Human Services Research Institute","ror":"https://ror.org/02d7e3b90","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210119591"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joshua Engler","raw_affiliation_strings":["Human Services Research Institute"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Human Services Research Institute","institution_ids":["https://openalex.org/I4210119591"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Sarah Taub","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210119591","display_name":"Human Services Research Institute","ror":"https://ror.org/02d7e3b90","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210119591"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sarah Taub","raw_affiliation_strings":["Human Services Research Institute"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Human Services Research Institute","institution_ids":["https://openalex.org/I4210119591"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047683233","display_name":"Jon Fortune","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210119591","display_name":"Human Services Research Institute","ror":"https://ror.org/02d7e3b90","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210119591"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jon Fortune","raw_affiliation_strings":["Human Services Research Institute"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Human Services Research Institute","institution_ids":["https://openalex.org/I4210119591"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5023686522","display_name":"Julie Bershadsky","orcid":"https://orcid.org/0009-0000-9885-7296","observed_orcids":["https://orcid.org/0009-0000-9885-7296"]},"institutions":[{"id":"https://openalex.org/I4210119591","display_name":"Human Services Research Institute","ror":"https://ror.org/02d7e3b90","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I4210119591"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Julie Bershadsky","raw_affiliation_strings":["Human Services Research Institute"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Human Services Research Institute","institution_ids":["https://openalex.org/I4210119591"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":4.3673,"has_fulltext":false,"cited_by_count":71,"citation_normalized_percentile":{"value":0.94008652,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":99},"biblio":{"volume":"50","issue":"2","first_page":"92","last_page":"108"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11015","display_name":"Down syndrome and intellectual disability research","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11514","display_name":"Disability Education and Employment","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/down-syndrome","display_name":"Down syndrome","score":1.0},{"id":"https://openalex.org/keywords/medical-conditions","display_name":"health conditions","score":0.7020000219345093},{"id":"https://openalex.org/keywords/overweight","display_name":"overweight","score":0.503000020980835},{"id":"https://openalex.org/keywords/exercise","display_name":"physical activity","score":0.5979999899864197},{"id":"https://openalex.org/keywords/severity-of-intellectual-disability","display_name":"severity of intellectual disability","score":0.7459999918937683},{"id":"https://openalex.org/keywords/visual-impairment","display_name":"visual impairment","score":0.652999997138977},{"id":"https://openalex.org/keywords/hearing-loss","display_name":"hearing loss","score":0.9990000128746033},{"id":"https://openalex.org/keywords/physical-disability","display_name":"physical disability","score":0.9100000262260437},{"id":"https://openalex.org/keywords/alzheimer-s-dementia","display_name":"Alzheimer's dementia","score":0.9380000233650208},{"id":"https://openalex.org/keywords/cerebral-palsy","display_name":"cerebral palsy","score":0.8759999871253967},{"id":"https://openalex.org/keywords/independent-mobility","display_name":"independent mobility","score":0.6359999775886536},{"id":"https://openalex.org/keywords/sex-differences","display_name":"sex differences","score":0.5580000281333923},{"id":"https://openalex.org/keywords/age-differences","display_name":"age differences","score":0.7179999947547913}],"concepts":[{"id":"https://openalex.org/C2779954681","wikidata":"https://www.wikidata.org/wiki/Q47715","display_name":"Down syndrome","level":2,"score":0.9230009317398071},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.847070038318634},{"id":"https://openalex.org/C2780586474","wikidata":"https://www.wikidata.org/wiki/Q332428","display_name":"Overweight","level":3,"score":0.683427095413208},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.5569298267364502},{"id":"https://openalex.org/C2781240822","wikidata":"https://www.wikidata.org/wiki/Q558077","display_name":"Williams syndrome","level":3,"score":0.5192751884460449},{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.4621814489364624},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4620800018310547},{"id":"https://openalex.org/C511355011","wikidata":"https://www.wikidata.org/wiki/Q12174","display_name":"Obesity","level":2,"score":0.4527058005332947},{"id":"https://openalex.org/C2780493683","wikidata":"https://www.wikidata.org/wiki/Q16035842","display_name":"Hearing loss","level":2,"score":0.4500215947628021},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.44781258702278137},{"id":"https://openalex.org/C2779421357","wikidata":"https://www.wikidata.org/wiki/Q210427","display_name":"Cerebral palsy","level":2,"score":0.42374539375305176},{"id":"https://openalex.org/C151956035","wikidata":"https://www.wikidata.org/wiki/Q1132755","display_name":"Logistic regression","level":2,"score":0.4216553270816803},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.3272944390773773},{"id":"https://openalex.org/C548259974","wikidata":"https://www.wikidata.org/wiki/Q569965","display_name":"Audiology","level":1,"score":0.18944743275642395},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.13730525970458984},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.08083903789520264},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002547","descriptor_name":"Cerebral Palsy","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D004314","descriptor_name":"Down Syndrome","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006233","descriptor_name":"Persons with Disabilities","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D006304","descriptor_name":"Health Status","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012112","descriptor_name":"Residential Facilities","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D012737","descriptor_name":"Sex Factors","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false},{"descriptor_ui":"D015897","descriptor_name":"Comorbidity","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015995","descriptor_name":"Prevalence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D050177","descriptor_name":"Overweight","qualifier_ui":"Q000453","qualifier_name":"epidemiology","is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1352/1934-9556-50.2.92","doi":"https://doi.org/10.1352/1934-9556-50.2.92","is_oa":false,"landing_page_url":"https://doi.org/10.1352/1934-9556-50.2.92","pdf_url":null,"source":{"id":"https://openalex.org/S38824448","display_name":"Intellectual and developmental disabilities","issn_l":"1934-9491","issn":["1934-9491","1934-9556"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","jufo-1","medline","norway-1","poland-70","russia-white-list-2","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Intellectual and Developmental Disabilities","raw_type":"journal-article"},{"id":"pmid:22642964","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/22642964","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Intellectual and developmental disabilities","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.98580002784729,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"},{"score":0.4074000120162964,"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":30,"referenced_works":["https://openalex.org/W67909646","https://openalex.org/W135170103","https://openalex.org/W195773358","https://openalex.org/W1502198418","https://openalex.org/W1566936261","https://openalex.org/W1964320381","https://openalex.org/W1969365777","https://openalex.org/W1969848157","https://openalex.org/W1971530864","https://openalex.org/W1987311143","https://openalex.org/W2009224845","https://openalex.org/W2012592349","https://openalex.org/W2013639936","https://openalex.org/W2025782007","https://openalex.org/W2033245402","https://openalex.org/W2033438464","https://openalex.org/W2065898390","https://openalex.org/W2105809091","https://openalex.org/W2124255839","https://openalex.org/W2134092628","https://openalex.org/W2134491712","https://openalex.org/W2150932687","https://openalex.org/W2166928104","https://openalex.org/W2784805025","https://openalex.org/W2917906275","https://openalex.org/W4245408774","https://openalex.org/W4246672833","https://openalex.org/W4254277194","https://openalex.org/W4285719527","https://openalex.org/W6602750562"],"related_works":["https://openalex.org/W1587788145","https://openalex.org/W2910809141","https://openalex.org/W7117159549","https://openalex.org/W2148541057","https://openalex.org/W2098485738","https://openalex.org/W2770646347","https://openalex.org/W1999734066","https://openalex.org/W1964586695","https://openalex.org/W2981945726","https://openalex.org/W4402988231"],"abstract_inverted_index":{"This":[0],"study":[1],"describes":[2],"service":[3,35],"users":[4,36],"with":[5,15,42,54,61,78,98,101,134],"Down":[6,22,43,51,55,62,73,79,102,131,135,180],"syndrome":[7,23,44,56,80,103,136],"(N":[8,24],"=":[9,25],"1,199)":[10],"and":[11,17,94,184],"a":[12,112,125,155,162],"comparative":[13],"sample":[14],"intellectual":[16,85,206],"developmental":[18],"disabilities":[19],"but":[20,118,148,188],"not":[21,213],"11,182),":[26],"drawn":[27],"from":[28],"National":[29],"Core":[30],"Indicator":[31],"surveys":[32],"of":[33,69,89,161],"adult":[34],"in":[37,142,154],"25":[38],"U.S.":[39],"states.":[40],"Individuals":[41],"were":[45,48,57,104,120,137,168,182,185,190,201,212],"younger":[46],"than":[47,59,128],"individuals":[49,71],"without":[50,72,130],"syndrome.":[52,74,132],"Men":[53],"older":[58],"women":[60],"syndrome,":[63,181],"whereas":[64],"the":[65,70],"reverse":[66],"was":[67],"true":[68],"Most":[75],"(68%)":[76],"people":[77],"had":[81,179,203,208],"mild":[82],"or":[83,115,144,211],"moderate":[84],"disability.":[86],"The":[87,159],"prevalence":[88],"vision":[90],"impairment,":[91,93,114],"hearing":[92,113],"physical":[95,126],"disability":[96,127],"increased":[97],"age.":[99],"Adults":[100,133],"more":[105,150,169,204],"likely":[106,122,139,151,170,192],"to":[107,123,140,152,171,174,193,196],"have":[108,111,124],"Alzheimer's":[109],"dementia,":[110],"be":[116,172,175,194,197],"overweight,":[117],"they":[119,149,178,189,200],"less":[121,138,191],"those":[129],"live":[141,153],"institutions":[143],"their":[145],"own":[146],"home,":[147],"family":[156],"member's":[157],"home.":[158],"results":[160],"logistic":[163],"regression":[164],"showed":[165],"that":[166],"participants":[167],"reported":[173,195],"overweight":[176,198],"if":[177,199],"female,":[183],"physically":[186],"inactive,":[187],"older,":[202],"severe":[205],"disability,":[207],"cerebral":[209],"palsy,":[210],"independently":[214],"mobile.":[215]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":8},{"year":2021,"cited_by_count":7},{"year":2020,"cited_by_count":10},{"year":2019,"cited_by_count":7},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":3},{"year":2016,"cited_by_count":8},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":4},{"year":2013,"cited_by_count":4}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}