{"id":"https://openalex.org/W1976005391","doi":"https://doi.org/10.1016/j.nmd.2007.06.350","title":"G.P.15.07 Palliative care services in families of males with Duchenne muscular dystrophy","display_name":"G.P.15.07 Palliative care services in families of males with Duchenne muscular dystrophy","publication_year":2007,"publication_date":"2007-09-08","ids":{"openalex":"https://openalex.org/W1976005391","doi":"https://doi.org/10.1016/j.nmd.2007.06.350","mag":"1976005391"},"language":"en","primary_location":{"id":"doi:10.1016/j.nmd.2007.06.350","doi":"https://doi.org/10.1016/j.nmd.2007.06.350","is_oa":false,"landing_page_url":"https://doi.org/10.1016/j.nmd.2007.06.350","pdf_url":null,"source":{"id":"https://openalex.org/S50004817","display_name":"Neuromuscular Disorders","issn_l":"0960-8966","issn":["0960-8966","1873-2364"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Neuromuscular Disorders","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5079439435","display_name":"F. John Meaney","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I138006243","display_name":"University of Arizona","ror":"https://ror.org/03m2x1q45","country_code":"US","type":"education","lineage":["https://openalex.org/I138006243"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"F. Meaney","raw_affiliation_strings":["University of Arizona, Tucson, Arizona, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Arizona, Tucson, Arizona, United States","institution_ids":["https://openalex.org/I138006243"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018146851","display_name":"Sajal K. Pandya","orcid":"https://orcid.org/0009-0000-0363-3960","observed_orcids":["https://orcid.org/0009-0000-0363-3960"]},"institutions":[{"id":"https://openalex.org/I5388228","display_name":"University of Rochester","ror":"https://ror.org/022kthw22","country_code":"US","type":"education","lineage":["https://openalex.org/I5388228"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"S. Pandya","raw_affiliation_strings":["University of Rochester, Rochester, New York, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Rochester, Rochester, New York, United States","institution_ids":["https://openalex.org/I5388228"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090522479","display_name":"Jennifer Andrews","orcid":"https://orcid.org/0000-0002-0064-3933","observed_orcids":["https://orcid.org/0000-0002-0064-3933","https://orcid.org/0000-0001-8001-5170"]},"institutions":[{"id":"https://openalex.org/I138006243","display_name":"University of Arizona","ror":"https://ror.org/03m2x1q45","country_code":"US","type":"education","lineage":["https://openalex.org/I138006243"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"J. Andrews","raw_affiliation_strings":["University of Arizona, Tucson, Arizona, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Arizona, Tucson, Arizona, United States","institution_ids":["https://openalex.org/I138006243"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5049774081","display_name":"Melinda F. Davis","orcid":"https://orcid.org/0000-0003-4413-2112","observed_orcids":["https://orcid.org/0000-0003-4413-2112"]},"institutions":[{"id":"https://openalex.org/I138006243","display_name":"University of Arizona","ror":"https://ror.org/03m2x1q45","country_code":"US","type":"education","lineage":["https://openalex.org/I138006243"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"M. Davis","raw_affiliation_strings":["University of Arizona, Tucson, Arizona, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Arizona, Tucson, Arizona, United States","institution_ids":["https://openalex.org/I138006243"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5079439435"],"corresponding_institution_ids":["https://openalex.org/I138006243"],"apc_list":{"value":3470,"currency":"USD","value_usd":3470},"apc_paid":null,"fwci":0.3541,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.68322518,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":93},"biblio":{"volume":"17","issue":"9-10","first_page":"866","last_page":"866"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9765999913215637,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9765999913215637,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.01489999983459711,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12400","display_name":"Neurogenetic and Muscular Disorders Research","score":0.0013000000035390258,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics (clinical)"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.8870000243186951},{"id":"https://openalex.org/keywords/duchenne-muscular-dystrophy","display_name":"Duchenne muscular dystrophy","score":1.0},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.796999990940094},{"id":"https://openalex.org/keywords/palliative-care-services","display_name":"palliative care services","score":0.6740000247955322},{"id":"https://openalex.org/keywords/advance-directives","display_name":"advance directives","score":0.6449999809265137},{"id":"https://openalex.org/keywords/living-wills","display_name":"living wills","score":0.8899999856948853},{"id":"https://openalex.org/keywords/respite-care","display_name":"respite care","score":0.8600000143051147},{"id":"https://openalex.org/keywords/hospice-care","display_name":"hospice care","score":0.8809999823570251},{"id":"https://openalex.org/keywords/pain-management","display_name":"pain management","score":0.9369999766349792},{"id":"https://openalex.org/keywords/pastoral-care","display_name":"pastoral care","score":0.8360000252723694},{"id":"https://openalex.org/keywords/caregiver-needs","display_name":"caregiver needs","score":0.335999995470047}],"concepts":[{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.7334246635437012},{"id":"https://openalex.org/C82479568","wikidata":"https://www.wikidata.org/wiki/Q7315937","display_name":"Respite care","level":2,"score":0.7235906720161438},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6598072648048401},{"id":"https://openalex.org/C2778979077","wikidata":"https://www.wikidata.org/wiki/Q330190","display_name":"Receipt","level":2,"score":0.5807210206985474},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5534572005271912},{"id":"https://openalex.org/C2778943923","wikidata":"https://www.wikidata.org/wiki/Q1648484","display_name":"Duchenne muscular dystrophy","level":2,"score":0.5012454986572266},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3963732123374939},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.34962034225463867},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.0},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1016/j.nmd.2007.06.350","doi":"https://doi.org/10.1016/j.nmd.2007.06.350","is_oa":false,"landing_page_url":"https://doi.org/10.1016/j.nmd.2007.06.350","pdf_url":null,"source":{"id":"https://openalex.org/S50004817","display_name":"Neuromuscular Disorders","issn_l":"0960-8966","issn":["0960-8966","1873-2364"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Neuromuscular Disorders","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9940000176429749}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2113712101","https://openalex.org/W2922687108","https://openalex.org/W3129630052","https://openalex.org/W2340990844","https://openalex.org/W3026685936","https://openalex.org/W2906829068","https://openalex.org/W2562818745","https://openalex.org/W3090268669","https://openalex.org/W2140488432","https://openalex.org/W2887875697"],"abstract_inverted_index":null,"counts_by_year":[{"year":2023,"cited_by_count":1}],"updated_date":"2026-11-05T12:25:35.769452","created_date":"2016-06-24T00:00:00"}