{"id":"https://openalex.org/W1970708342","doi":"https://doi.org/10.1353/pbm.0.0135","title":"Telling Stories about Illness and Disability: The Limits and Lessons of Narrative","display_name":"Telling Stories about Illness and Disability: The Limits and Lessons of Narrative","publication_year":2010,"publication_date":"2010-02-28","ids":{"openalex":"https://openalex.org/W1970708342","doi":"https://doi.org/10.1353/pbm.0.0135","mag":"1970708342","pmid":"https://pubmed.ncbi.nlm.nih.gov/20173300"},"language":"en","primary_location":{"id":"doi:10.1353/pbm.0.0135","doi":"https://doi.org/10.1353/pbm.0.0135","is_oa":false,"landing_page_url":"https://doi.org/10.1353/pbm.0.0135","pdf_url":null,"source":{"id":"https://openalex.org/S28937869","display_name":"Perspectives in biology and medicine","issn_l":"0031-5982","issn":["0031-5982","1529-8795"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","jufo-1","medline","norway-1","poland-40","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315678","host_organization_name":"Johns Hopkins University Press","host_organization_lineage":["https://openalex.org/P4310315678","https://openalex.org/P4310316510"],"host_organization_lineage_names":["Johns Hopkins University Press","Johns Hopkins University"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Perspectives in Biology and Medicine","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073966575","display_name":"Rebecca Elizabeth Garden","orcid":"https://orcid.org/0000-0003-2044-105X","observed_orcids":["https://orcid.org/0000-0003-2044-105X"]},"institutions":[{"id":"https://openalex.org/I20388574","display_name":"SUNY Upstate Medical University","ror":"https://ror.org/040kfrw16","country_code":"US","type":"education","lineage":["https://openalex.org/I20388574"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Rebecca Garden","raw_affiliation_strings":["Bioethics and Humanities, Upstate Medical University, 618 Irving Avenue, Syracuse, NY 13210, USA. gardenr@upstate.edu"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Bioethics and Humanities, Upstate Medical University, 618 Irving Avenue, Syracuse, NY 13210, USA. gardenr@upstate.edu","institution_ids":["https://openalex.org/I20388574"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5073966575"],"corresponding_institution_ids":["https://openalex.org/I20388574"],"apc_list":null,"apc_paid":null,"fwci":9.2041,"has_fulltext":false,"cited_by_count":64,"citation_normalized_percentile":{"value":0.97206998,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"53","issue":"1","first_page":"121","last_page":"135"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.31200000643730164,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.31200000643730164,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13474","display_name":"Autobiographical and Biographical Writing","score":0.29100000858306885,"subfield":{"id":"https://openalex.org/subfields/1208","display_name":"Literature and Literary Theory"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13662","display_name":"Qualitative research in health","score":0.1266999989748001,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/illness-narratives","display_name":"illness narratives","score":0.8709999918937683},{"id":"https://openalex.org/keywords/disability-narratives","display_name":"disability narratives","score":0.9869999885559082},{"id":"https://openalex.org/keywords/autobiographical-narrative","display_name":"autobiographical narrative","score":0.8619999885559082},{"id":"https://openalex.org/keywords/recovery-narratives","display_name":"recovery narratives","score":0.8180000185966492},{"id":"https://openalex.org/keywords/narrative-conventions","display_name":"narrative conventions","score":0.6069999933242798},{"id":"https://openalex.org/keywords/closure","display_name":"closure","score":0.6050000190734863},{"id":"https://openalex.org/keywords/illness-experience","display_name":"illness experience","score":0.75},{"id":"https://openalex.org/keywords/caregiving-expectations","display_name":"caregiving expectations","score":0.48100000619888306},{"id":"https://openalex.org/keywords/intersectionality","display_name":"intersectionality","score":0.4699999988079071}],"concepts":[{"id":"https://openalex.org/C199033989","wikidata":"https://www.wikidata.org/wiki/Q1318295","display_name":"Narrative","level":2,"score":0.9077692031860352},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.65241938829422},{"id":"https://openalex.org/C57473165","wikidata":"https://www.wikidata.org/wiki/Q7315604","display_name":"Resistance (ecology)","level":2,"score":0.5857149958610535},{"id":"https://openalex.org/C2775922551","wikidata":"https://www.wikidata.org/wiki/Q7135033","display_name":"Parallels","level":2,"score":0.5753233432769775},{"id":"https://openalex.org/C2779304628","wikidata":"https://www.wikidata.org/wiki/Q3503480","display_name":"Face (sociological concept)","level":2,"score":0.5225764513015747},{"id":"https://openalex.org/C196187386","wikidata":"https://www.wikidata.org/wiki/Q1050187","display_name":"Sociocultural evolution","level":2,"score":0.503722608089447},{"id":"https://openalex.org/C146834321","wikidata":"https://www.wikidata.org/wiki/Q2979672","display_name":"Closure (psychology)","level":2,"score":0.49341264367103577},{"id":"https://openalex.org/C117893075","wikidata":"https://www.wikidata.org/wiki/Q6966213","display_name":"Narrative inquiry","level":3,"score":0.49100616574287415},{"id":"https://openalex.org/C2776810005","wikidata":"https://www.wikidata.org/wiki/Q627208","display_name":"Disability studies","level":2,"score":0.47842222452163696},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.46954092383384705},{"id":"https://openalex.org/C520712124","wikidata":"https://www.wikidata.org/wiki/Q36279","display_name":"Biography","level":2,"score":0.42686212062835693},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.36749857664108276},{"id":"https://openalex.org/C107993555","wikidata":"https://www.wikidata.org/wiki/Q1662673","display_name":"Gender studies","level":1,"score":0.2963932752609253},{"id":"https://openalex.org/C95457728","wikidata":"https://www.wikidata.org/wiki/Q309","display_name":"History","level":0,"score":0.22197523713111877},{"id":"https://openalex.org/C124952713","wikidata":"https://www.wikidata.org/wiki/Q8242","display_name":"Literature","level":1,"score":0.17990073561668396},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.1133074164390564},{"id":"https://openalex.org/C142362112","wikidata":"https://www.wikidata.org/wiki/Q735","display_name":"Art","level":0,"score":0.09670811891555786},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0921248197555542},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.08645039796829224},{"id":"https://openalex.org/C18903297","wikidata":"https://www.wikidata.org/wiki/Q7150","display_name":"Ecology","level":1,"score":0.0},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000223","descriptor_name":"Adaptation, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D001294","descriptor_name":"Attitude to Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006233","descriptor_name":"Persons with Disabilities","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010817","descriptor_name":"Physician-Patient Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D033262","descriptor_name":"Narration","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1353/pbm.0.0135","doi":"https://doi.org/10.1353/pbm.0.0135","is_oa":false,"landing_page_url":"https://doi.org/10.1353/pbm.0.0135","pdf_url":null,"source":{"id":"https://openalex.org/S28937869","display_name":"Perspectives in biology and medicine","issn_l":"0031-5982","issn":["0031-5982","1529-8795"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","jufo-1","medline","norway-1","poland-40","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315678","host_organization_name":"Johns Hopkins University Press","host_organization_lineage":["https://openalex.org/P4310315678","https://openalex.org/P4310316510"],"host_organization_lineage_names":["Johns Hopkins University Press","Johns Hopkins University"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Perspectives in Biology and Medicine","raw_type":"journal-article"},{"id":"pmid:20173300","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/20173300","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Perspectives in biology and medicine","raw_type":"Journal Article"},{"id":"pmh:oai:muse.jhu.edu:/article/372300","doi":null,"is_oa":false,"landing_page_url":"https://muse.jhu.edu/article/372300","pdf_url":null,"source":{"id":"https://openalex.org/S4377196299","display_name":"Project Muse (Johns Hopkins University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145311948","host_organization_name":"Johns Hopkins University","host_organization_lineage":["https://openalex.org/I145311948"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"text"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.504800021648407}],"sustainable_development_goals_aurora":[{"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities","score":0.49000000953674316}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":27,"referenced_works":["https://openalex.org/W567684195","https://openalex.org/W578740330","https://openalex.org/W592796506","https://openalex.org/W595744252","https://openalex.org/W634279323","https://openalex.org/W1516306534","https://openalex.org/W1523687673","https://openalex.org/W1530541710","https://openalex.org/W1574262732","https://openalex.org/W1585093144","https://openalex.org/W1600192393","https://openalex.org/W1979163334","https://openalex.org/W1999582886","https://openalex.org/W2012599279","https://openalex.org/W2019983016","https://openalex.org/W2034590807","https://openalex.org/W2036185827","https://openalex.org/W2037342591","https://openalex.org/W2042316255","https://openalex.org/W2057129157","https://openalex.org/W2067886807","https://openalex.org/W2087682727","https://openalex.org/W2128536362","https://openalex.org/W2798563165","https://openalex.org/W2977331686","https://openalex.org/W3140523607","https://openalex.org/W3159861145"],"related_works":["https://openalex.org/W1570049601","https://openalex.org/W7168152704","https://openalex.org/W7078948566","https://openalex.org/W3110094987","https://openalex.org/W7055303643","https://openalex.org/W2913400925","https://openalex.org/W4391864737","https://openalex.org/W608204756","https://openalex.org/W4253981153","https://openalex.org/W7162058156"],"abstract_inverted_index":{"Autobiographical":[0],"narratives":[1,21,55],"of":[2,13,34,44,67,76,80,91,119,130],"illness":[3,14,23,52,68],"and":[4,10,15,24,47,53,56,69],"disability":[5,25,54],"are":[6],"influential":[7],"in":[8,17,89],"popular":[9],"medical":[11],"discourses":[12],"disability,":[16],"part":[18],"because":[19],"these":[20,59,85],"represent":[22],"within":[26],"a":[27,41,81],"sociocultural":[28],"context,":[29],"intersecting":[30],"with":[31],"other":[32],"categories":[33],"difference.":[35],"Clinicians":[36],"can":[37,61],"benefit":[38],"patients":[39],"through":[40],"critical":[42],"understanding":[43],"the":[45,57,64,73,97,104,110,117,120,126,134],"formal":[46],"social":[48],"conventions":[49,60,129],"that":[50,94,115],"shape":[51,116],"effect":[58],"have":[62],"on":[63],"lived":[65],"experience":[66],"disability.":[70],"I":[71,102],"analyze":[72],"2003":[74],"edition":[75],"Lucy":[77],"Grealy's":[78,100],"Autobiography":[79],"Face":[82],"to":[83,99,128],"illustrate":[84],"socio-narrative":[86],"conventions,":[87],"especially":[88],"light":[90],"an":[92],"afterword":[93],"significantly":[95],"revises":[96],"ending":[98],"narrative.":[101],"explore":[103],"parallels":[105],"between":[106],"narrative":[107],"conventions-such":[108],"as":[109,123,125],"\"recovery":[111],"narrative\"-and":[112],"caregivers'":[113],"expectations":[114],"role":[118],"\"good":[121],"patient,\"":[122],"well":[124],"resistance":[127],"closure,":[131],"represented":[132],"by":[133],"\"renegotiated":[135],"ending.\"":[136]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":6},{"year":2020,"cited_by_count":5},{"year":2019,"cited_by_count":3},{"year":2018,"cited_by_count":5},{"year":2017,"cited_by_count":4},{"year":2016,"cited_by_count":5},{"year":2015,"cited_by_count":6},{"year":2014,"cited_by_count":6},{"year":2013,"cited_by_count":5},{"year":2012,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}