{"id":"https://openalex.org/W1963420107","doi":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","title":"Health\u2010related quality of life among community\u2010dwelling patients with intractable neurological diseases and their caregivers in Japan","display_name":"Health\u2010related quality of life among community\u2010dwelling patients with intractable neurological diseases and their caregivers in Japan","publication_year":2010,"publication_date":"2010-11-24","ids":{"openalex":"https://openalex.org/W1963420107","doi":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","mag":"1963420107","pmid":"https://pubmed.ncbi.nlm.nih.gov/21105961"},"language":"en","primary_location":{"id":"doi:10.1111/j.1440-1819.2010.02155.x","doi":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","is_oa":true,"landing_page_url":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/j.1440-1819.2010.02155.x","source":{"id":"https://openalex.org/S111042112","display_name":"Psychiatry and Clinical Neurosciences","issn_l":"1323-1316","issn":["1323-1316","1440-1819"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psychiatry and Clinical Neurosciences","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/j.1440-1819.2010.02155.x","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5024965154","display_name":"Mitsunori Miyashita","orcid":"https://orcid.org/0000-0002-7637-0409","observed_orcids":["https://orcid.org/0000-0002-7637-0409"]},"institutions":[{"id":"https://openalex.org/I201537933","display_name":"Tohoku University","ror":"https://ror.org/01dq60k83","country_code":"JP","type":"education","lineage":["https://openalex.org/I201537933"]}],"countries":["JP"],"is_corresponding":true,"raw_author_name":"Mitsunori Miyashita","raw_affiliation_strings":["Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan. miyasita-tky@umin.net","Department of Palliative Nursing, Health Sciences; Tohoku University Graduate School of Medicine; Sendai Japan"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan. miyasita-tky@umin.net","institution_ids":["https://openalex.org/I201537933"]},{"raw_affiliation_string":"Department of Palliative Nursing, Health Sciences; Tohoku University Graduate School of Medicine; Sendai Japan","institution_ids":["https://openalex.org/I201537933"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089812348","display_name":"Yugo Narita","orcid":"https://orcid.org/0000-0003-3307-7402","observed_orcids":["https://orcid.org/0000-0003-3307-7402"]},"institutions":[{"id":"https://openalex.org/I178574317","display_name":"Mie University","ror":"https://ror.org/01529vy56","country_code":"JP","type":"education","lineage":["https://openalex.org/I178574317"]},{"id":"https://openalex.org/I4210116542","display_name":"Mie University Hospital","ror":"https://ror.org/01v9g9c07","country_code":"JP","type":"healthcare","lineage":["https://openalex.org/I4210116542"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Yugo Narita","raw_affiliation_strings":["Medical Care Networking Centre, Mie University Hospital, Mie University","Mie University ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Medical Care Networking Centre, Mie University Hospital, Mie University","institution_ids":["https://openalex.org/I4210116542"]},{"raw_affiliation_string":"Mie University ,","institution_ids":["https://openalex.org/I178574317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072208761","display_name":"Aki Sakamoto","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I74801974","display_name":"The University of Tokyo","ror":"https://ror.org/057zh3y96","country_code":"JP","type":"education","lineage":["https://openalex.org/I74801974"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Aki Sakamoto","raw_affiliation_strings":["Department of Psychiatric Nursing, School of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychiatric Nursing, School of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo","institution_ids":["https://openalex.org/I74801974"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055726228","display_name":"Norikazu Kawada","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Norikazu Kawada","raw_affiliation_strings":["Department of Neurology, Matsusaka Chuo General Hospital, Mie","Matsusaka chuo General Hospital"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Neurology, Matsusaka Chuo General Hospital, Mie","institution_ids":[]},{"raw_affiliation_string":"Matsusaka chuo General Hospital","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5054009787","display_name":"Miki Onishi Akiyama","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I74801974","display_name":"The University of Tokyo","ror":"https://ror.org/057zh3y96","country_code":"JP","type":"education","lineage":["https://openalex.org/I74801974"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Miki Akiyama","raw_affiliation_strings":["Department of Psychiatric Nursing, School of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Psychiatric Nursing, School of Health Science and Nursing, Graduate School of Medicine, The University of Tokyo","institution_ids":["https://openalex.org/I74801974"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5005919352","display_name":"Mami Kayama","orcid":"https://orcid.org/0000-0001-8945-8285","observed_orcids":["https://orcid.org/0000-0001-8945-8285"]},"institutions":[{"id":"https://openalex.org/I4210092806","display_name":"St. Luke's International University","ror":"https://ror.org/00e5yzw53","country_code":"JP","type":"education","lineage":["https://openalex.org/I4210092806"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Mami Kayama","raw_affiliation_strings":["Department Psychiatric Nursing, St. Luke's College of Nursing, Tokyo","St Luke's International University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department Psychiatric Nursing, St. Luke's College of Nursing, Tokyo","institution_ids":["https://openalex.org/I4210092806"]},{"raw_affiliation_string":"St Luke's International University","institution_ids":["https://openalex.org/I4210092806"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091631963","display_name":"Yoshimi Suzukamo","orcid":"https://orcid.org/0000-0001-7162-4871","observed_orcids":["https://orcid.org/0000-0001-7162-4871"]},"institutions":[{"id":"https://openalex.org/I201537933","display_name":"Tohoku University","ror":"https://ror.org/01dq60k83","country_code":"JP","type":"education","lineage":["https://openalex.org/I201537933"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Yoshimi Suzukamo","raw_affiliation_strings":["Physical Medicine and Rehabilitation, Tohoku University Graduate School of Medicine, Sendai"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Physical Medicine and Rehabilitation, Tohoku University Graduate School of Medicine, Sendai","institution_ids":["https://openalex.org/I201537933"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5103575003","display_name":"Shunichi Fukuhara","orcid":"https://orcid.org/0000-0001-7199-1495","observed_orcids":["https://orcid.org/0000-0001-7199-1495"]},"institutions":[{"id":"https://openalex.org/I22299242","display_name":"Kyoto University","ror":"https://ror.org/02kpeqv85","country_code":"JP","type":"education","lineage":["https://openalex.org/I22299242"]}],"countries":["JP"],"is_corresponding":false,"raw_author_name":"Shunichi Fukuhara","raw_affiliation_strings":["Department of Epidemiology and Healthcare Research, School of Public Health, Kyoto University, Kyoto, Japan","Kyoto univ"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Epidemiology and Healthcare Research, School of Public Health, Kyoto University, Kyoto, Japan","institution_ids":["https://openalex.org/I22299242"]},{"raw_affiliation_string":"Kyoto univ","institution_ids":["https://openalex.org/I22299242"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5024965154"],"corresponding_institution_ids":["https://openalex.org/I201537933"],"apc_list":{"value":3240,"currency":"USD","value_usd":3240},"apc_paid":null,"fwci":2.8409,"has_fulltext":true,"cited_by_count":36,"citation_normalized_percentile":{"value":0.90444888,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"65","issue":"1","first_page":"30","last_page":"38"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.6851000189781189,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.6851000189781189,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.11599999666213989,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10009","display_name":"Dementia and Cognitive Impairment Research","score":0.032099999487400055,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9980000257492065},{"id":"https://openalex.org/keywords/intractable-neurological-diseases","display_name":"intractable neurological diseases","score":0.8880000114440918},{"id":"https://openalex.org/keywords/caregivers","display_name":"caregivers","score":0.6460000276565552},{"id":"https://openalex.org/keywords/parkinson-s-disease","display_name":"Parkinson's disease","score":0.9459999799728394},{"id":"https://openalex.org/keywords/spinocerebellar-degeneration","display_name":"spinocerebellar degeneration","score":0.9990000128746033},{"id":"https://openalex.org/keywords/multiple-system-atrophy","display_name":"multiple system atrophy","score":1.0},{"id":"https://openalex.org/keywords/amyotrophic-lateral-sclerosis","display_name":"amyotrophic lateral sclerosis","score":1.0},{"id":"https://openalex.org/keywords/caregiver-patient-relationship","display_name":"caregiver-patient relationship","score":0.8389999866485596},{"id":"https://openalex.org/keywords/community-dwelling-patients","display_name":"community-dwelling patients","score":0.9070000052452087},{"id":"https://openalex.org/keywords/sf-36","display_name":"SF-36","score":0.7419999837875366},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.6370000243186951}],"concepts":[{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.7823045253753662},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7333878874778748},{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.679095983505249},{"id":"https://openalex.org/C79544238","wikidata":"https://www.wikidata.org/wiki/Q423243","display_name":"Activities of daily living","level":2,"score":0.6016895771026611},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.5966819524765015},{"id":"https://openalex.org/C534262118","wikidata":"https://www.wikidata.org/wiki/Q177719","display_name":"Medical diagnosis","level":2,"score":0.5482535362243652},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.506841242313385},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3807256817817688},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.1830546259880066},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.11557802557945251},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000203","descriptor_name":"Activities of Daily Living","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000690","descriptor_name":"Amyotrophic Lateral Sclerosis","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003430","descriptor_name":"Cross-Sectional Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007564","descriptor_name":"Japan","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009422","descriptor_name":"Nervous System Diseases","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010300","descriptor_name":"Parkinson Disease","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012044","descriptor_name":"Regression Analysis","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013132","descriptor_name":"Spinocerebellar Degenerations","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D019578","descriptor_name":"Multiple System Atrophy","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1111/j.1440-1819.2010.02155.x","doi":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","is_oa":true,"landing_page_url":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/j.1440-1819.2010.02155.x","source":{"id":"https://openalex.org/S111042112","display_name":"Psychiatry and Clinical Neurosciences","issn_l":"1323-1316","issn":["1323-1316","1440-1819"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psychiatry and Clinical Neurosciences","raw_type":"journal-article"},{"id":"pmid:21105961","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/21105961","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psychiatry and clinical neurosciences","raw_type":"Journal Article"},{"id":"pmh:oai:arch.luke.ac.jp:10285/7730","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10285/7730","pdf_url":null,"source":{"id":"https://openalex.org/S4306401003","display_name":"SLIU Repository","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210157858","host_organization_name":"Saint Louis University","host_organization_lineage":["https://openalex.org/I4210157858"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":null}],"best_oa_location":{"id":"doi:10.1111/j.1440-1819.2010.02155.x","doi":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","is_oa":true,"landing_page_url":"https://doi.org/10.1111/j.1440-1819.2010.02155.x","pdf_url":"https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/j.1440-1819.2010.02155.x","source":{"id":"https://openalex.org/S111042112","display_name":"Psychiatry and Clinical Neurosciences","issn_l":"1323-1316","issn":["1323-1316","1440-1819"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-b","doyens","jufo-2","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Psychiatry and Clinical Neurosciences","raw_type":"journal-article"},"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W1963420107.pdf","grobid_xml":"https://content.openalex.org/works/W1963420107.grobid-xml"},"referenced_works_count":60,"referenced_works":["https://openalex.org/W33070645","https://openalex.org/W80358998","https://openalex.org/W95961711","https://openalex.org/W143452851","https://openalex.org/W1527033377","https://openalex.org/W1981664108","https://openalex.org/W1986043262","https://openalex.org/W1989137742","https://openalex.org/W1993017390","https://openalex.org/W1993555055","https://openalex.org/W1998745743","https://openalex.org/W2002381851","https://openalex.org/W2009405469","https://openalex.org/W2011506008","https://openalex.org/W2012449744","https://openalex.org/W2015058679","https://openalex.org/W2022628179","https://openalex.org/W2023812606","https://openalex.org/W2024951481","https://openalex.org/W2027365236","https://openalex.org/W2029370403","https://openalex.org/W2030052781","https://openalex.org/W2041347037","https://openalex.org/W2042094283","https://openalex.org/W2043593306","https://openalex.org/W2044448185","https://openalex.org/W2049156701","https://openalex.org/W2049233227","https://openalex.org/W2050755481","https://openalex.org/W2057026612","https://openalex.org/W2058035921","https://openalex.org/W2061782976","https://openalex.org/W2066219712","https://openalex.org/W2068242293","https://openalex.org/W2074842950","https://openalex.org/W2077567545","https://openalex.org/W2080752676","https://openalex.org/W2080813187","https://openalex.org/W2089611298","https://openalex.org/W2099500721","https://openalex.org/W2100353404","https://openalex.org/W2104879593","https://openalex.org/W2108369591","https://openalex.org/W2109824660","https://openalex.org/W2119390360","https://openalex.org/W2121087049","https://openalex.org/W2130900065","https://openalex.org/W2131107163","https://openalex.org/W2135031277","https://openalex.org/W2138437279","https://openalex.org/W2146398652","https://openalex.org/W2147614229","https://openalex.org/W2149476088","https://openalex.org/W2155524713","https://openalex.org/W2158342248","https://openalex.org/W2158644867","https://openalex.org/W2160765065","https://openalex.org/W2170170909","https://openalex.org/W2415878472","https://openalex.org/W2423151078"],"related_works":["https://openalex.org/W2188788441","https://openalex.org/W1502029719","https://openalex.org/W7099733306","https://openalex.org/W2093082827","https://openalex.org/W2575621474","https://openalex.org/W2132998893","https://openalex.org/W2160765065","https://openalex.org/W2609141478","https://openalex.org/W4281748173","https://openalex.org/W1872412285"],"abstract_inverted_index":{"AIMS:":[0],"The":[1],"aims":[2],"of":[3,13,16,28,31,40,104,116,125,130,143,160,165,185],"this":[4],"study":[5],"were:":[6],"(i)":[7],"to":[8,23,36,210],"clarify":[9,24],"the":[10,25,29,38,90,101,105,122,126,131,137,144,161,166,175,192],"general":[11,26,127],"quality":[12],"life":[14],"(QOL)":[15],"patients":[17,59,99,188,199],"with":[18,61,200],"intractable":[19],"neurological":[20,201],"disease;":[21],"(ii)":[22],"QOL":[27,41,107,128,162,186],"caregivers":[30,79,205],"these":[32],"patients;":[33],"and":[34,54,72,77,100,150,189,203,213],"(iii)":[35],"explore":[37],"association":[39],"in":[42,208],"patient-caregiver":[43],"pairs.":[44],"METHODS:":[45],"A":[46,114],"cross-sectional":[47],"survey":[48],"was":[49],"conducted":[50],"between":[51,187],"November":[52],"2003":[53],"May":[55],"2004":[56],"among":[57],"community-dwelling":[58],"diagnosed":[60],"Parkinson's":[62],"disease":[63],"(PD),":[64],"spinocerebellar":[65],"degeneration":[66],"(SCD),":[67],"multiple":[68],"system":[69],"atrophy":[70],"(MSA),":[71],"amyotrophic":[73],"lateral":[74],"sclerosis":[75],"(ALS)":[76],"their":[78,204],"using":[80],"a":[81],"mailed,":[82],"self-administered":[83],"questionnaire.":[84],"To":[85],"measure":[86],"QOL,":[87],"we":[88],"used":[89],"Medical":[91],"Outcome":[92],"Study":[93],"36-Item":[94],"Short":[95],"Form":[96],"(SF-36)":[97],"for":[98,111,141,168,198],"short":[102],"form":[103],"health-related":[106],"scale":[108],"SF-36":[109,132],"(SF-8)":[110],"caregivers.":[112],"RESULTS:":[113],"total":[115],"418":[117],"questionnaires":[118],"were":[119,133,154,171,181,194],"analyzed.":[120],"For":[121,157],"patients,":[123],"all":[124,142,159,169],"domains":[129,153],"significantly":[134,172],"lower":[135,173],"than":[136,174],"national":[138,176],"standard":[139,177],"value":[140],"diagnoses.":[145],"Physical":[146],"function,":[147],"role":[148,151],"physical,":[149],"emotional":[152],"also":[155],"low.":[156,195],"caregivers,":[158,190],"summary":[163],"scores":[164],"SF-8":[167],"diagnoses":[170],"value.":[178],"Although":[179],"there":[180],"several":[182],"significant":[183],"correlations":[184,193],"overall":[191],"CONCLUSIONS:":[196],"Support":[197],"diseases":[202],"is":[206],"needed":[207],"order":[209],"maintain":[211],"physical":[212],"mental":[214],"QOL.":[215]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":3},{"year":2017,"cited_by_count":3},{"year":2016,"cited_by_count":5},{"year":2015,"cited_by_count":3},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":1},{"year":2012,"cited_by_count":3}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}