{"id":"https://openalex.org/W1908719962","doi":"https://doi.org/10.11124/jbisrir-2011-72","title":"The needs and experiences of people with a diagnosis of skin cancer: a systematic review","display_name":"The needs and experiences of people with a diagnosis of skin cancer: a systematic review","publication_year":2011,"publication_date":"2011-01-01","ids":{"openalex":"https://openalex.org/W1908719962","doi":"https://doi.org/10.11124/jbisrir-2011-72","mag":"1908719962","pmid":"https://pubmed.ncbi.nlm.nih.gov/27819967"},"language":"en","primary_location":{"id":"doi:10.11124/jbisrir-2011-72","doi":"https://doi.org/10.11124/jbisrir-2011-72","is_oa":false,"landing_page_url":"https://doi.org/10.11124/jbisrir-2011-72","pdf_url":null,"source":{"id":"https://openalex.org/S4210218461","display_name":"JBI Library of Systematic Reviews","issn_l":"1838-2142","issn":["1838-2142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JBI Library of Systematic Reviews","raw_type":"journal-article"},"volume":null,"type":"review","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Janet Barker","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I142263535","display_name":"University of Nottingham","ror":"https://ror.org/01ee9ar58","country_code":"GB","type":"education","lineage":["https://openalex.org/I142263535"]},{"id":"https://openalex.org/I4210137227","display_name":"Queen's Medical Centre","ror":"https://ror.org/03ap6wx93","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1334287468","https://openalex.org/I4210137227"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Janet Barker","raw_affiliation_strings":["1. The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen's Medical Centre, Nottingham, NG2 7UH 01158230850"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"1. The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen's Medical Centre, Nottingham, NG2 7UH 01158230850","institution_ids":["https://openalex.org/I142263535","https://openalex.org/I4210137227"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5068712584","display_name":"Arun Kumar","orcid":"https://orcid.org/0000-0002-7874-0469","observed_orcids":["https://orcid.org/0000-0002-7874-0469","https://orcid.org/0000-0002-5497-9678"]},"institutions":[{"id":"https://openalex.org/I142263535","display_name":"University of Nottingham","ror":"https://ror.org/01ee9ar58","country_code":"GB","type":"education","lineage":["https://openalex.org/I142263535"]},{"id":"https://openalex.org/I4210137227","display_name":"Queen's Medical Centre","ror":"https://ror.org/03ap6wx93","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1334287468","https://openalex.org/I4210137227"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Arun Kumar","raw_affiliation_strings":["The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH","institution_ids":["https://openalex.org/I142263535","https://openalex.org/I4210137227"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056334940","display_name":"Wendy Stanton","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I142263535","display_name":"University of Nottingham","ror":"https://ror.org/01ee9ar58","country_code":"GB","type":"education","lineage":["https://openalex.org/I142263535"]},{"id":"https://openalex.org/I4210137227","display_name":"Queen's Medical Centre","ror":"https://ror.org/03ap6wx93","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1334287468","https://openalex.org/I4210137227"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Wendy Stanton","raw_affiliation_strings":["The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH","institution_ids":["https://openalex.org/I142263535","https://openalex.org/I4210137227"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5012261255","display_name":"Fiona J Bath-Hextall","orcid":"https://orcid.org/0000-0001-6583-029X","observed_orcids":["https://orcid.org/0000-0001-6583-029X"]},"institutions":[{"id":"https://openalex.org/I142263535","display_name":"University of Nottingham","ror":"https://ror.org/01ee9ar58","country_code":"GB","type":"education","lineage":["https://openalex.org/I142263535"]},{"id":"https://openalex.org/I4210137227","display_name":"Queen's Medical Centre","ror":"https://ror.org/03ap6wx93","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1334287468","https://openalex.org/I4210137227"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Fiona Bath-Hextall","raw_affiliation_strings":["The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The University of Nottingham Centre for Evidence-based Nursing and Midwifery (a collaborating centre of the Joanna Briggs Institute), Queen\u2019s Medical Centre, Nottingham, NG2 7UH","institution_ids":["https://openalex.org/I142263535","https://openalex.org/I4210137227"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0347,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.056467,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":93},"biblio":{"volume":"9","issue":"4","first_page":"104","last_page":"121"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.4602000117301941,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.4602000117301941,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11306","display_name":"Nonmelanoma Skin Cancer Studies","score":0.2632000148296356,"subfield":{"id":"https://openalex.org/subfields/2708","display_name":"Dermatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10392","display_name":"Cutaneous Melanoma Detection and Management","score":0.21879999339580536,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/skin-cancer","display_name":"skin cancer","score":1.0},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.7820000052452087},{"id":"https://openalex.org/keywords/patient-needs","display_name":"patient needs","score":0.9769999980926514},{"id":"https://openalex.org/keywords/early-diagnosis","display_name":"early diagnosis","score":0.7289999723434448},{"id":"https://openalex.org/keywords/patient-satisfaction","display_name":"patient satisfaction","score":0.7749999761581421},{"id":"https://openalex.org/keywords/psychosocial-needs","display_name":"psychosocial needs","score":0.8029999732971191},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.7390000224113464},{"id":"https://openalex.org/keywords/health-worker-support","display_name":"health worker support","score":0.39500001072883606}],"concepts":[{"id":"https://openalex.org/C152541439","wikidata":"https://www.wikidata.org/wiki/Q5186693","display_name":"Critical appraisal","level":3,"score":0.7419233322143555},{"id":"https://openalex.org/C2777789703","wikidata":"https://www.wikidata.org/wiki/Q192102","display_name":"Skin cancer","level":3,"score":0.666726291179657},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.583907425403595},{"id":"https://openalex.org/C189708586","wikidata":"https://www.wikidata.org/wiki/Q1504425","display_name":"Systematic review","level":3,"score":0.566740870475769},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5253190994262695},{"id":"https://openalex.org/C2777466982","wikidata":"https://www.wikidata.org/wiki/Q5227287","display_name":"Data extraction","level":3,"score":0.5253129601478577},{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.45492830872535706},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4007626473903656},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.35547637939453125},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.3453693389892578},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.33928248286247253},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.23889094591140747},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.12881845235824585},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.10118848085403442},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0780273973941803},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.11124/jbisrir-2011-72","doi":"https://doi.org/10.11124/jbisrir-2011-72","is_oa":false,"landing_page_url":"https://doi.org/10.11124/jbisrir-2011-72","pdf_url":null,"source":{"id":"https://openalex.org/S4210218461","display_name":"JBI Library of Systematic Reviews","issn_l":"1838-2142","issn":["1838-2142"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JBI Library of Systematic Reviews","raw_type":"journal-article"},{"id":"doi:10.11124/01938924-201109040-00001","doi":"https://doi.org/10.11124/01938924-201109040-00001","is_oa":false,"landing_page_url":"https://doi.org/10.11124/01938924-201109040-00001","pdf_url":null,"source":{"id":"https://openalex.org/S4210188676","display_name":"The JBI Database of Systematic Reviews and Implementation Reports","issn_l":"2202-4433","issn":["2202-4433"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","ki-jl-1","poland-40","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JBI Database of Systematic Reviews and Implementation Reports","raw_type":"journal-article"},{"id":"pmid:27819967","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/27819967","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JBI library of systematic reviews","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/systematic-review","display_name":"Systematic Review"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":11,"referenced_works":["https://openalex.org/W1583299935","https://openalex.org/W1971045436","https://openalex.org/W1976447608","https://openalex.org/W1977923680","https://openalex.org/W1983158801","https://openalex.org/W2014885058","https://openalex.org/W2017743303","https://openalex.org/W2032324944","https://openalex.org/W2040898244","https://openalex.org/W2043332793","https://openalex.org/W2101470318"],"related_works":["https://openalex.org/W2534399398","https://openalex.org/W4377097212","https://openalex.org/W7095098887","https://openalex.org/W2562928571","https://openalex.org/W4412517236","https://openalex.org/W2028137972","https://openalex.org/W7092965073","https://openalex.org/W4417364666","https://openalex.org/W4414912783","https://openalex.org/W4382058896"],"abstract_inverted_index":{"EXECUTIVE":[0],"SUMMARY:":[1],"Background":[2],"Skin":[3],"cancer":[4,9,36,226,303,394,440],"is":[5,15,249,274,294],"the":[6,13,27,34,51,55,90,142,160,176,190,270,323,348,366,386,434],"most":[7],"common":[8],"in":[10,159,218,233,265,287,310,355],"Caucasians":[11],"and":[12,29,49,57,77,92,112,257,272,322,361,370,388,397,405,424,436],"incidence":[14],"increasing":[16],"worldwide.":[17],"There":[18,248,293,413],"has":[19,399],"been":[20,98],"no":[21],"qualitative":[22,84,180],"systematic":[23,43],"review":[24,44,382],"looking":[25],"at":[26],"needs":[28,56,76,91,258,387,435],"experiences":[30,58,78,93,256,389,423],"of":[31,41,59,64,73,79,152,192,208,224,230,259,281,301,351,390,411,421,438],"patients":[32,344,364],"through":[33],"skin":[35,65,74,82,101,225,260,302,393,439],"journey.Objectives":[37],"The":[38,104,163,179,199,222],"main":[39],"objective":[40],"this":[42,352,381,398,409,419],"was":[45,121,131,170],"to":[46,54,108,124,157,172,205,210,267,284,298,346,357,362,408,429],"identify,":[47],"appraise":[48],"synthesise":[50],"literature":[52],"relating":[53],"people":[60,80,95,306],"with":[61,70,81,94,100,246,269,334,365,392],"a":[62,71,228,275,295,426],"diagnosis":[63,72,223,271,316],"cancer.":[66,261],"INCLUSION":[67],"CRITERIA:":[68],"Adults":[69],"cancer.The":[75],"cancer.All":[83],"studies":[85,196,417],"that":[86,305,372,385],"described":[87],"or":[88,336],"analysed":[89],"who":[96],"had":[97],"diagnosed":[99],"cancer.Search":[102],"strategy":[103,106,120],"search":[105,119],"sought":[107],"identify":[109],"both":[110,320],"published":[111],"unpublished":[113],"research":[114,181,253,378,432],"studies.":[115],"A":[116],"three":[117],"step":[118],"used,":[122],"limited":[123],"English":[125],"language":[126],"papers.Methodological":[127],"quality":[128],"Each":[129],"paper":[130],"independently":[132],"assessed":[133],"by":[134],"two":[135,195,219],"independent":[136],"reviewers":[137],"for":[138,277,291,342,377,401,404],"methodological":[139],"quality,":[140],"using":[141,185],"critical":[143],"appraisal":[144],"instrument":[145],"from":[146,168,175,380],"Joanna":[147],"Briggs":[148],"Institute":[149],"Qualitative":[150],"Assessment":[151],"Review":[153],"Instrument":[154],"(QARI),":[155],"prior":[156],"inclusion":[158],"review.Data":[161],"collection":[162],"standardised":[164],"data":[165,174],"extraction":[166],"tool":[167],"JBI-QARI":[169,186],"used":[171],"extract":[173],"papers.Data":[177],"synthesis":[178],"findings":[182,201],"were":[183,197,202],"pooled":[184],"approach.":[187],"This":[188],"involved":[189],"aggregation":[191],"findings.Results":[193],"Only":[194],"included.":[198],"12":[200],"grouped":[203],"according":[204],"their":[206],"similarities":[207],"meaning":[209],"form":[211,283],"4":[212],"categories.":[213],"These":[214],"four":[215],"categories":[216],"resulted":[217],"synthesised":[220],"findings.":[221],"produces":[227],"range":[229],"emotional":[231],"responses":[232],"individuals.":[234],"Individuals":[235],"also":[236],"delay":[237,286,309],"seeking":[238,288,311],"medical":[239,289,312],"help":[240,313],"however":[241],"once":[242],"treated":[243,330],"are":[244,329,414],"satisfied":[245],"care.Conclusions":[247],"very":[250,415],"little":[251],"good":[252],"on":[254],"patient's":[255],"People":[262],"require":[263],"support":[264,367],"coming":[266],"terms":[268],"there":[273],"need":[276,297,345,369,428],"an":[278],"educational":[279],"intervention":[280],"some":[282],"prevent":[285],"help.Implications":[290],"practice":[292],"real":[296,427],"increase":[299],"knowledge":[300],"so":[304],"do":[307],"not":[308],"as":[314],"early":[315,327],"can":[317,374],"dramatically":[318],"improve":[319],"prognosis":[321],"patient":[324,353],"experience":[325,437],"since":[326],"lesions":[328],"more":[331],"simply":[332],"compared":[333],"larger":[335],"neglected":[337],"lesions.":[338],"Health":[339],"professionals":[340],"caring":[341,403],"these":[343],"understand":[347],"psychosocial":[349],"concerns":[350],"group":[354,410],"order":[356],"design":[358],"services":[359,407],"appropriately":[360],"provide":[363],"they":[368,373],"information":[371],"easily":[375],"understand.Implications":[376],"Results":[379],"have":[383],"identified":[384],"individuals":[391],"remains":[395],"under-researched":[396],"implications":[400],"those":[402],"delivering":[406],"patients.":[412,441],"few":[416],"considering":[418],"aspect":[420],"patients'":[422],"therefore":[425],"conduct":[430],"further":[431],"into":[433]},"counts_by_year":[{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2015,"cited_by_count":1},{"year":2013,"cited_by_count":1}],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2016-06-24T00:00:00"}