{"id":"https://openalex.org/W181028570","doi":null,"title":"Advocacy in disability policy: parents and consumers as advocates.","display_name":"Advocacy in disability policy: parents and consumers as advocates.","publication_year":1996,"publication_date":"1996-12-01","ids":{"openalex":"https://openalex.org/W181028570","mag":"181028570","pmid":"https://pubmed.ncbi.nlm.nih.gov/8990819"},"language":"en","primary_location":{"id":"pmid:8990819","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/8990819","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Mental retardation","raw_type":"Journal Article"},"volume":null,"type":"article","indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5067372328","display_name":"R Cunconan-Lahr","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I173911158","display_name":"Iowa State University","ror":"https://ror.org/04rswrd78","country_code":"US","type":"education","lineage":["https://openalex.org/I173911158"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"R Cunconan-Lahr","raw_affiliation_strings":["Department of Human Development and Family Studies, Iowa State University, Ames 50011, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Human Development and Family Studies, Iowa State University, Ames 50011, USA","institution_ids":["https://openalex.org/I173911158"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5081778193","display_name":"Mary Jane Brotherson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"M J Brotherson","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":3.4509,"has_fulltext":false,"cited_by_count":31,"citation_normalized_percentile":{"value":0.91062176,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":88,"max":100},"biblio":{"volume":"34","issue":"6","first_page":"352","last_page":"8"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.6298999786376953,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.6298999786376953,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.2506999969482422,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.09719999879598618,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/disability-policy","display_name":"disability policy","score":0.6990000009536743},{"id":"https://openalex.org/keywords/advocacy","display_name":"advocacy","score":0.9449999928474426},{"id":"https://openalex.org/keywords/parents-of-children-with-disabilities","display_name":"parents of children with disabilities","score":0.9639999866485596},{"id":"https://openalex.org/keywords/professional-collaboration","display_name":"professional collaboration","score":0.6119999885559082},{"id":"https://openalex.org/keywords/barriers-to-advocacy","display_name":"barriers to advocacy","score":0.847000002861023}],"concepts":[{"id":"https://openalex.org/C71750763","wikidata":"https://www.wikidata.org/wiki/Q646164","display_name":"General partnership","level":2,"score":0.7642698287963867},{"id":"https://openalex.org/C2910772403","wikidata":"https://www.wikidata.org/wiki/Q1329436","display_name":"Consumer Advocacy","level":2,"score":0.7318106889724731},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.6265805959701538},{"id":"https://openalex.org/C2780478730","wikidata":"https://www.wikidata.org/wiki/Q7448012","display_name":"Self-advocacy","level":2,"score":0.5664366483688354},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.5557493567466736},{"id":"https://openalex.org/C2780791683","wikidata":"https://www.wikidata.org/wiki/Q846785","display_name":"Action (physics)","level":2,"score":0.5275202393531799},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45697343349456787},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.27242472767829895},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.189829021692276},{"id":"https://openalex.org/C19417346","wikidata":"https://www.wikidata.org/wiki/Q7922","display_name":"Pedagogy","level":1,"score":0.1486697793006897},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003254","descriptor_name":"Consumer Advocacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006291","descriptor_name":"Health Policy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007484","descriptor_name":"Iowa","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007857","descriptor_name":"Leadership","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008607","descriptor_name":"Intellectual Disability","qualifier_ui":"Q000534","qualifier_name":"rehabilitation","is_major_topic":true},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":"Q000193","qualifier_name":"education","is_major_topic":true},{"descriptor_ui":"D010344","descriptor_name":"Patient Advocacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011209","descriptor_name":"Power, Psychological","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"pmid:8990819","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/8990819","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Mental retardation","raw_type":"Journal Article"},{"id":"mag:181028570","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/8990819","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.5683000087738037},{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.4074000120162964}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2615752207","https://openalex.org/W3107045232","https://openalex.org/W2973006550","https://openalex.org/W2054571197","https://openalex.org/W4394796571","https://openalex.org/W222018352","https://openalex.org/W3003817407","https://openalex.org/W4293121330","https://openalex.org/W7124306796","https://openalex.org/W3198436506"],"abstract_inverted_index":{"Advocacy":[0,58],"for":[1,68,75],"change,":[2],"which":[3],"stems":[4],"from":[5],"commitment":[6],"and":[7,16,27,34,41,51,60,62,70,78],"vision,":[8],"should":[9],"be":[10],"a":[11],"collaborative":[12],"process":[13],"among":[14],"parents":[15,40,69],"consumers":[17,71],"in":[18,56],"partnership":[19],"with":[20,43],"professionals.":[21],"Using":[22],"surveys,":[23],"interactive":[24],"focus":[25],"groups,":[26],"telephone":[28],"interviews,":[29],"we":[30],"explored":[31],"the":[32],"concept":[33],"activities":[35,59],"of":[36],"advocacy":[37,50,66],"experienced":[38],"by":[39],"individuals":[42],"disabilities.":[44],"Participants":[45],"were":[46,72,80],"identified":[47],"through":[48],"an":[49],"leadership":[52],"training":[53],"program,":[54],"Partners":[55],"Policymaking.":[57],"supports":[61],"barriers":[63],"to":[64],"successful":[65],"both":[67],"identified.":[73],"Suggestions":[74],"further":[76],"research":[77],"action":[79],"proposed.":[81]},"counts_by_year":[{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":1},{"year":2018,"cited_by_count":1},{"year":2016,"cited_by_count":13},{"year":2015,"cited_by_count":2}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}
