{"id":"https://openalex.org/W1741315420","doi":"https://doi.org/10.1212/wnl.82.10_supplement.s49.001","title":"Prospective Study of Cost of Care at Multidisciplinary Centers Adhering to AAN Amyotrophic Lateral Sclerosis (ALS) Practice Parameters (S49.001)","display_name":"Prospective Study of Cost of Care at Multidisciplinary Centers Adhering to AAN Amyotrophic Lateral Sclerosis (ALS) Practice Parameters (S49.001)","publication_year":2014,"publication_date":"2014-04-08","ids":{"openalex":"https://openalex.org/W1741315420","doi":"https://doi.org/10.1212/wnl.82.10_supplement.s49.001","mag":"1741315420"},"language":"en","primary_location":{"id":"doi:10.1212/wnl.82.10_supplement.s49.001","doi":"https://doi.org/10.1212/wnl.82.10_supplement.s49.001","is_oa":false,"landing_page_url":"http://dx.doi.org/10.1212/wnl.82.10_supplement.s49.001","pdf_url":null,"source":{"id":"https://openalex.org/S79704628","display_name":"Neurology","issn_l":"0028-3878","issn":["0028-3878","1526-632X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Neurology","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5075022413","display_name":"Rup Tandan","orcid":"https://orcid.org/0009-0006-8324-1580","observed_orcids":["https://orcid.org/0009-0006-8324-1580","https://orcid.org/0009-0007-6462-2684"]},"institutions":[{"id":"https://openalex.org/I111236770","display_name":"University of Vermont","ror":"https://ror.org/0155zta11","country_code":"US","type":"education","lineage":["https://openalex.org/I111236770"]},{"id":"https://openalex.org/I2801980284","display_name":"University of Vermont Medical Center","ror":"https://ror.org/04cewr321","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I2801980284"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Rup Tandan","raw_affiliation_strings":["University of Vermont/Fletcher Allen Health Care Burlington VT United States","7University of Vermont/Fletcher Allen Health Care Burlington VT United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of Vermont/Fletcher Allen Health Care Burlington VT United States","institution_ids":["https://openalex.org/I111236770","https://openalex.org/I2801980284"]},{"raw_affiliation_string":"7University of Vermont/Fletcher Allen Health Care Burlington VT United States","institution_ids":["https://openalex.org/I111236770","https://openalex.org/I2801980284"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048217446","display_name":"Khrista Boylan","orcid":"https://orcid.org/0000-0003-4137-6744","observed_orcids":["https://orcid.org/0000-0003-4137-6744"]},"institutions":[{"id":"https://openalex.org/I1330342723","display_name":"Mayo Clinic","ror":"https://ror.org/02qp3tb03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723"]},{"id":"https://openalex.org/I4210146710","display_name":"Mayo Clinic in Florida","ror":"https://ror.org/03zzw1w08","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210146710"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kevin Boylan","raw_affiliation_strings":["Mayo Clinic Jacksonville FL United States","1Mayo Clinic Jacksonville FL United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Mayo Clinic Jacksonville FL United States","institution_ids":["https://openalex.org/I1330342723","https://openalex.org/I4210146710"]},{"raw_affiliation_string":"1Mayo Clinic Jacksonville FL United States","institution_ids":["https://openalex.org/I4210146710"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112266809","display_name":"Todd Levine","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210140312","display_name":"Phoenix Neurological Associates","ror":"https://ror.org/04hk0mm26","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210140312"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Todd Levine","raw_affiliation_strings":["Phoenix Neurological Associates Ltd Phoenix AZ United States","2Phoenix Neurological Associates Ltd Phoenix AZ United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Phoenix Neurological Associates Ltd Phoenix AZ United States","institution_ids":["https://openalex.org/I4210140312"]},{"raw_affiliation_string":"2Phoenix Neurological Associates Ltd Phoenix AZ United States","institution_ids":["https://openalex.org/I4210140312"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015839919","display_name":"Catherine E. Lomen","orcid":"https://orcid.org/0000-0003-3320-5996","observed_orcids":["https://orcid.org/0000-0003-3320-5996"]},"institutions":[{"id":"https://openalex.org/I180670191","display_name":"University of California, San Francisco","ror":"https://ror.org/043mz5j54","country_code":"US","type":"education","lineage":["https://openalex.org/I180670191"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Catherine Lomen-Hoerth","raw_affiliation_strings":["UCSF San Francisco CA United States","5UCSF San Francisco CA United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"UCSF San Francisco CA United States","institution_ids":["https://openalex.org/I180670191"]},{"raw_affiliation_string":"5UCSF San Francisco CA United States","institution_ids":["https://openalex.org/I180670191"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000492757","display_name":"PETER W. CALLAS","orcid":"https://orcid.org/0000-0002-3840-4081","observed_orcids":["https://orcid.org/0000-0002-3840-4081"]},"institutions":[{"id":"https://openalex.org/I111236770","display_name":"University of Vermont","ror":"https://ror.org/0155zta11","country_code":"US","type":"education","lineage":["https://openalex.org/I111236770"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Peter Callas","raw_affiliation_strings":["Medical Biostatistics University of Vermont College of Medicine Burlington VT United States","6Medical Biostatistics University of Vermont College of Medicine Burlington VT United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Medical Biostatistics University of Vermont College of Medicine Burlington VT United States","institution_ids":["https://openalex.org/I111236770"]},{"raw_affiliation_string":"6Medical Biostatistics University of Vermont College of Medicine Burlington VT United States","institution_ids":["https://openalex.org/I111236770"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022930616","display_name":"Kimberly Maginnis","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2802461698","display_name":"Amyotrophic Lateral Sclerosis Association","ror":"https://ror.org/00mwp5989","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I2802461698"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kimberly Maginnis","raw_affiliation_strings":["The ALS Association Washington DC United States","4The ALS Association Washington DC United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The ALS Association Washington DC United States","institution_ids":["https://openalex.org/I2802461698"]},{"raw_affiliation_string":"4The ALS Association Washington DC United States","institution_ids":["https://openalex.org/I2802461698"]}]},{"author_position":"last","author":{"id":null,"display_name":"Mary Lyon","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I2802461698","display_name":"Amyotrophic Lateral Sclerosis Association","ror":"https://ror.org/00mwp5989","country_code":"US","type":"nonprofit","lineage":["https://openalex.org/I2802461698"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Mary Lyon","raw_affiliation_strings":["The ALS Association Calabasas Hills CA United States","3The ALS Association Calabasas Hills CA United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"The ALS Association Calabasas Hills CA United States","institution_ids":["https://openalex.org/I2802461698"]},{"raw_affiliation_string":"3The ALS Association Calabasas Hills CA United States","institution_ids":["https://openalex.org/I2802461698"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.6517,"has_fulltext":false,"cited_by_count":3,"citation_normalized_percentile":{"value":0.69192894,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":96,"max":97},"biblio":{"volume":"82","issue":"10_supplement","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.9839000105857849,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.9839000105857849,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.002099999925121665,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.0012000000569969416,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/amyotrophic-lateral-sclerosis","display_name":"amyotrophic lateral sclerosis","score":1.0},{"id":"https://openalex.org/keywords/multidisciplinary-care","display_name":"multidisciplinary care","score":0.8640000224113464},{"id":"https://openalex.org/keywords/cost-of-care","display_name":"cost of care","score":0.7950000166893005},{"id":"https://openalex.org/keywords/institutional-costs","display_name":"institutional expenditures","score":0.8460000157356262},{"id":"https://openalex.org/keywords/patient-satisfaction","display_name":"patient satisfaction","score":0.9549999833106995},{"id":"https://openalex.org/keywords/indirect-costs","display_name":"indirect costs","score":0.6320000290870667},{"id":"https://openalex.org/keywords/advance-directives","display_name":"advance directives","score":0.5720000267028809},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.6079999804496765}],"concepts":[{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.9754982590675354},{"id":"https://openalex.org/C22467394","wikidata":"https://www.wikidata.org/wiki/Q849359","display_name":"Multidisciplinary approach","level":2,"score":0.7552687525749207},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5468298196792603},{"id":"https://openalex.org/C99508421","wikidata":"https://www.wikidata.org/wiki/Q2678675","display_name":"Physical medicine and rehabilitation","level":1,"score":0.483452171087265},{"id":"https://openalex.org/C188816634","wikidata":"https://www.wikidata.org/wiki/Q2113324","display_name":"Prospective cohort study","level":2,"score":0.4428774416446686},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.33482179045677185},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.3304072618484497},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.241252601146698},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.232720285654068},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.23013636469841003},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.05845072865486145},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1212/wnl.82.10_supplement.s49.001","doi":"https://doi.org/10.1212/wnl.82.10_supplement.s49.001","is_oa":false,"landing_page_url":"http://dx.doi.org/10.1212/wnl.82.10_supplement.s49.001","pdf_url":null,"source":{"id":"https://openalex.org/S79704628","display_name":"Neurology","issn_l":"0028-3878","issn":["0028-3878","1526-632X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-a","doyens","jufo-3","ki-jl-2","medline","norway-2","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Neurology","raw_type":"journal-article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9789000153541565,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2177636519","https://openalex.org/W2098734403","https://openalex.org/W4394622140","https://openalex.org/W4406971771","https://openalex.org/W2313194137","https://openalex.org/W4281727891","https://openalex.org/W2058827360","https://openalex.org/W4399283215","https://openalex.org/W2107087489","https://openalex.org/W2676001006"],"abstract_inverted_index":{"OBJECTIVE:":[0],"Assess":[1],"prospectively":[2,86],"1)":[3],"institutional":[4,53,83],"costs,":[5],"2)":[6],"adherence":[7],"to":[8,64,92,191,214,226,231,267],"AAN":[9,65],"Practice":[10,67,93,192],"Parameters":[11,94,193],"and":[12,43,80,82,100,258],"3)":[13],"patient":[14,72,166],"satisfaction":[15,108,209],"associated":[16,55],"with":[17,56],"multidisciplinary":[18,57,256],"ALS":[19,24,58,66,241,252,292],"care":[20,29,59,253,286],"at":[21,60,195],"18":[22],"U.S.":[23,61],"centers":[25,62,180,257],"BACKGROUND:":[26],"Multidisciplinary":[27],"team-based":[28],"is":[30],"the":[31,182,247,269],"preferred":[32],"model":[33],"in":[34,181,280],"ALS,":[35],"demonstrating":[36],"prolonged":[37],"survival,":[38],"improved":[39],"quality":[40],"of":[41,117,131,184,240,251,273,284],"life,":[42],"reduced":[44],"hospital":[45],"admissions.":[46],"There":[47],"are":[48,265],"no":[49],"published":[50],"data":[51,264,276],"on":[52],"costs":[54,75,85,186],"benchmarked":[63],"Parameters.":[68],"DESIGN/METHODS:":[69],"Centers":[70],"reported":[71],"volumes;":[73],"direct":[74,101,248],"for":[76,198,220,287],"staff,":[77],"salary/benefits,":[78],"supplies":[79],"equipment;":[81],"indirect":[84,185,262],"over":[87,122],"a":[88,107],"3-month":[89],"period.":[90],"Adherence":[91,190],"was":[95,133,146,154,169,194,218],"documented":[96],"through":[97],"chart":[98],"review":[99],"observation":[102],"during":[103],"clinics.":[104],"Patients":[105],"completed":[106],"survey.":[109],"Data":[110],"were":[111,120],"analyzed":[112],"using":[113],"descriptive":[114],"statistics.RESULTS:A":[115],"total":[116],"1,117":[118],"patients":[119,132],"seen":[121],"3":[123],"months":[124],"(range":[125,136,156,171],"24":[126],"-":[127,138,158,173],"151/center).":[128],"Mean":[129,143,148,162],"age":[130],"61.5":[134],"years":[135],"25":[137],"91":[139],"years);":[140],"56%":[141],"male.":[142],"ALSFRS-R":[144],"score":[145,217],"29.":[147],"salary/benefit":[149,163],"cost":[150,164,263,271],"per":[151,165,167],"clinic":[152,168],"day":[153],"$2978":[155],"$1692":[157],"$5236":[159],"across":[160,175],"centers).":[161,176],"$480":[170],"$258":[172],"$806":[174],"Major":[177],"differences":[178],"among":[179],"calculation":[183],"prevented":[187],"meaningful":[188],"analysis.":[189],"least":[196],"90%":[197],"all":[199,221],"measures":[200],"except":[201],"only":[202],"51%":[203],"had":[204],"an":[205],"advance":[206],"directive.":[207],"Patient":[208],"(27":[210],"item":[211],"scale;":[212],"1=Poor":[213],"5=Great)":[215],"mean":[216],">4":[219],"items.":[222],"Highest":[223],"scores":[224,234],"related":[225],"patient-provider":[227],"interactions":[228],"(e.g.,":[229,238],"\u201cListens":[230],"you\u201d);":[232],"lowest":[233],"represented":[235],"external":[236],"factors":[237],"\u201cConvenience":[239],"Center\u2019s":[242],"location\u201d).":[243],"CONCLUSIONS:This":[244],"study":[245],"demonstrates":[246],"financial":[249],"burden":[250],"faced":[254],"by":[255],"society;":[259],"more":[260],"refined":[261],"needed":[266],"evaluate":[268],"full":[270],"impact":[272],"care.":[274],"These":[275],"may":[277],"be":[278],"useful":[279],"supporting":[281],"evidence-based":[282],"models":[283],"patient-centered":[285],"ALS.":[288],"Study":[289],"Supported":[290],"by:The":[291],"Association":[293]},"counts_by_year":[{"year":2015,"cited_by_count":3}],"updated_date":"2026-10-29T09:56:32.521200","created_date":"2016-06-24T00:00:00"}
