{"id":"https://openalex.org/W173372258","doi":null,"title":"Different folks, different strokes : becoming and being a stroke family during the first six months post-stroke","display_name":"Different folks, different strokes : becoming and being a stroke family during the first six months post-stroke","publication_year":2013,"publication_date":"2013-01-01","ids":{"openalex":"https://openalex.org/W173372258","mag":"173372258"},"language":"en","primary_location":{"id":"pmh:oai:www.researchbank.ac.nz:10652/2505","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/10652/2505","pdf_url":"https://hdl.handle.net/10652/2505","source":{"id":"https://openalex.org/S4306401628","display_name":"Unitec Research Bank (Unitec Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I872614749","host_organization_name":"Unitec Institute of Technology","host_organization_lineage":["https://openalex.org/I872614749"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://hdl.handle.net/10652/2505","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5085895562","display_name":"Renee Fischer","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Renee Fischer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5085895562"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.8579000234603882,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.8579000234603882,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10510","display_name":"Stroke Rehabilitation and Recovery","score":0.0786999985575676,"subfield":{"id":"https://openalex.org/subfields/2742","display_name":"Rehabilitation"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.02250000089406967,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/stroke","display_name":"stroke","score":0.9160000085830688},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.6990000009536743},{"id":"https://openalex.org/keywords/lived-experience","display_name":"lived experience","score":0.9039999842643738},{"id":"https://openalex.org/keywords/family-strain","display_name":"family strain","score":0.49000000953674316},{"id":"https://openalex.org/keywords/health-worker-support","display_name":"health worker support","score":0.8029999732971191},{"id":"https://openalex.org/keywords/sense-of-normalcy","display_name":"sense of normalcy","score":0.7730000019073486},{"id":"https://openalex.org/keywords/loss","display_name":"loss","score":0.4790000021457672},{"id":"https://openalex.org/keywords/shared-caregiving","display_name":"shared caregiving","score":0.7279999852180481}],"concepts":[{"id":"https://openalex.org/C2780645631","wikidata":"https://www.wikidata.org/wiki/Q671554","display_name":"Stroke (engine)","level":2,"score":0.7431676387786865},{"id":"https://openalex.org/C85973986","wikidata":"https://www.wikidata.org/wiki/Q1091731","display_name":"Exploratory research","level":2,"score":0.5837380290031433},{"id":"https://openalex.org/C100363876","wikidata":"https://www.wikidata.org/wiki/Q690661","display_name":"Nonprobability sampling","level":3,"score":0.5032991766929626},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4804222583770752},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.4635995924472809},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.4411279559135437},{"id":"https://openalex.org/C3019221131","wikidata":"https://www.wikidata.org/wiki/Q55621107","display_name":"Lived experience","level":2,"score":0.4362591803073883},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4244420528411865},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.2983316481113434},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.10775014758110046},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.09821510314941406},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.08371973037719727},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.07626014947891235},{"id":"https://openalex.org/C19165224","wikidata":"https://www.wikidata.org/wiki/Q23404","display_name":"Anthropology","level":1,"score":0.0},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:www.researchbank.ac.nz:10652/2505","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/10652/2505","pdf_url":"https://hdl.handle.net/10652/2505","source":{"id":"https://openalex.org/S4306401628","display_name":"Unitec Research Bank (Unitec Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I872614749","host_organization_name":"Unitec Institute of Technology","host_organization_lineage":["https://openalex.org/I872614749"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},{"id":"mag:173372258","doi":null,"is_oa":false,"landing_page_url":"https://unitec.researchbank.ac.nz/handle/10652/2505","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:www.researchbank.ac.nz:10652/2505","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/10652/2505","pdf_url":"https://hdl.handle.net/10652/2505","source":{"id":"https://openalex.org/S4306401628","display_name":"Unitec Research Bank (Unitec Institute of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I872614749","host_organization_name":"Unitec Institute of Technology","host_organization_lineage":["https://openalex.org/I872614749"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9391000270843506,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320313894","display_name":"Unitec Institute of Technology","ror":"https://ror.org/01px84952"},{"id":"https://openalex.org/F4320320667","display_name":"Swansea University","ror":"https://ror.org/053fq8t95"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W173372258.pdf","grobid_xml":"https://content.openalex.org/works/W173372258.grobid-xml"},"referenced_works_count":73,"referenced_works":["https://openalex.org/W181997916","https://openalex.org/W330058316","https://openalex.org/W643364029","https://openalex.org/W658633940","https://openalex.org/W1506232862","https://openalex.org/W1553183615","https://openalex.org/W1574770366","https://openalex.org/W1608465513","https://openalex.org/W1857850272","https://openalex.org/W1929779517","https://openalex.org/W1935915323","https://openalex.org/W1953498835","https://openalex.org/W1968398280","https://openalex.org/W1970317338","https://openalex.org/W1970963625","https://openalex.org/W1971378231","https://openalex.org/W1976447359","https://openalex.org/W1982739233","https://openalex.org/W1989729987","https://openalex.org/W1991389279","https://openalex.org/W1995848277","https://openalex.org/W2006487319","https://openalex.org/W2007316858","https://openalex.org/W2012826849","https://openalex.org/W2032285483","https://openalex.org/W2038399850","https://openalex.org/W2046989079","https://openalex.org/W2059057642","https://openalex.org/W2061748708","https://openalex.org/W2066247960","https://openalex.org/W2068422544","https://openalex.org/W2069566045","https://openalex.org/W2072160598","https://openalex.org/W2072189579","https://openalex.org/W2076294807","https://openalex.org/W2077632054","https://openalex.org/W2087074240","https://openalex.org/W2087325529","https://openalex.org/W2096902063","https://openalex.org/W2099283319","https://openalex.org/W2104624631","https://openalex.org/W2120988635","https://openalex.org/W2123650960","https://openalex.org/W2126323206","https://openalex.org/W2128327567","https://openalex.org/W2133077981","https://openalex.org/W2138682862","https://openalex.org/W2138784235","https://openalex.org/W2141762166","https://openalex.org/W2145076759","https://openalex.org/W2146405208","https://openalex.org/W2146939720","https://openalex.org/W2147848642","https://openalex.org/W2155477484","https://openalex.org/W2156057254","https://openalex.org/W2158763269","https://openalex.org/W2161620445","https://openalex.org/W2161826385","https://openalex.org/W2164558580","https://openalex.org/W2165420365","https://openalex.org/W2166781073","https://openalex.org/W2169526514","https://openalex.org/W2183698356","https://openalex.org/W2215124385","https://openalex.org/W2258306912","https://openalex.org/W2273826813","https://openalex.org/W2280664754","https://openalex.org/W2301948417","https://openalex.org/W2317946349","https://openalex.org/W2320315658","https://openalex.org/W2328918401","https://openalex.org/W2334571769","https://openalex.org/W2506964173"],"related_works":["https://openalex.org/W2271374469","https://openalex.org/W3014787333","https://openalex.org/W6989608599","https://openalex.org/W2527041626","https://openalex.org/W2462772124","https://openalex.org/W2238448985","https://openalex.org/W89717530","https://openalex.org/W7098995396","https://openalex.org/W2991890644","https://openalex.org/W1996989998"],"abstract_inverted_index":{"Aim:":[0],"To":[1],"explore":[2],"the":[3,13,30,41,49,57,64,72,78,84,90,97,155,158,203,221,241],"lived-experience":[4,91,149],"of":[5,22,43,61,92,150,170,195,261,271],"becoming":[6,206],"and":[7,28,134,144,161,207,214,218,237,249],"being":[8,208],"a":[9,23,182,193,209,259],"stroke":[10,24,44,62,73,159,210],"family":[11,46,66,165,211,225,238,243,251],"during":[12,96],"first":[14,98],"six":[15,99,128,135],"months":[16,100,132,136],"post-stroke":[17,133,229],"event.":[18],"\\nBackground:":[19],"The":[20,148,199],"consequences":[21],"are":[25],"far":[26],"reaching":[27],"affect":[29],"whole":[31,65],"family.":[32],"Research":[33],"has":[34],"been":[35],"limited":[36],"with":[37,118,177,234,268],"its":[38],"exploration":[39],"into":[40,228],"effects":[42,156],"on":[45],"members":[47],"beyond":[48],"primary":[50,79],"caregiver.":[51],"It":[52],"is":[53,67,212],"important":[54],"to":[55,205,220,257],"understand":[56],"wider":[58],"family\u2019s":[59],"experience":[60],"because":[63],"involved":[68],"in":[69,83,154,263],"caring":[70],"for":[71],"survivor,":[74],"either":[75],"through":[76],"supporting":[77],"caregiver,":[80],"or":[81],"sharing":[82],"caregiving":[85],"tasks.":[86],"This":[87],"study":[88,106],"explores":[89],"two":[93,114,119,222],"different":[94,115,216],"families":[95,116,152,254],"post-stroke.":[101,137],"\\n":[102,197],"\\nDesign:":[103],"Exploratory":[104],"qualitative":[105],"using":[107],"hermeneutic":[108],"phenomenology.":[109],"\\nMethods:":[110],"Purposive":[111],"sampling":[112],"recruited":[113],"each":[117,164],"participants.":[120],"Interviews":[121],"were":[122,139],"conducted":[123],"at":[124],"three":[125,131,178],"time":[126],"intervals:":[127],"weeks":[129],"post-stroke,":[130],"Data":[138],"collected":[140],"between":[141],"October":[142],"2011":[143],"April":[145],"2012.":[146],"\\nFindings:":[147],"both":[151],"varied":[153],"from":[157],"event":[160],"challenges":[162,219],"that":[163,202],"faced.":[166],"An":[167],"over-arching":[168],"theme":[169],"\u2018Different":[171],"Folks:":[172],"Different":[173],"Strokes\u2019":[174],"was":[175],"identified":[176],"sub-themes:":[179],"1)":[180],"Losing":[181],"life":[183,230],"once":[184,266],"lived.":[185],"2)":[186],"Navigating":[187],"an":[188],"unfamiliar":[189],"path.":[190],"3)":[191],"Creating":[192],"sense":[194,260],"normal.":[196],"\\nConclusions:":[198],"data":[200],"revealed":[201],"journey":[204],"complicated":[213],"brought":[215],"losses":[217],"families.":[223],"One":[224],"felt":[226,244],"supported":[227],"by":[231,246],"positive":[232],"interactions":[233],"healthcare":[235,247],"professionals":[236,248],"strength;":[239],"whereas":[240],"other":[242],"unsupported":[245],"experienced":[250],"strain.":[252],"Both":[253],"then":[255],"tried":[256],"create":[258],"normal":[262],"their":[264],"lives":[265],"again":[267],"varying":[269],"degrees":[270],"success.":[272]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
