{"id":"https://openalex.org/W1601280720","doi":null,"title":"Living with heart failure: effects of an educational programme on patients and family members","display_name":"Living with heart failure: effects of an educational programme on patients and family members","publication_year":2011,"publication_date":"2011-09-28","ids":{"openalex":"https://openalex.org/W1601280720","mag":"1601280720"},"language":"en","primary_location":{"id":"pmh:oai:figshare.com:article/26896078","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Living_with_heart_failure_effects_of_an_educational_programme_on_patients_and_family_members/26896078","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/10616/40655","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008165258","display_name":"Caroline L\u00f6fvenmark","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Caroline L\u00f6fvenmark","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5008165258"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10198","display_name":"Heart Failure Treatment and Management","score":0.7519999742507935,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10198","display_name":"Heart Failure Treatment and Management","score":0.7519999742507935,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.17640000581741333,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11083","display_name":"Cardiac Health and Mental Health","score":0.03750000149011612,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/chronic-heart-failure","display_name":"chronic heart failure","score":0.9850000143051147},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.722000002861023},{"id":"https://openalex.org/keywords/patient-education","display_name":"patient education","score":0.7459999918937683},{"id":"https://openalex.org/keywords/educational-programs","display_name":"educational programs","score":0.6679999828338623},{"id":"https://openalex.org/keywords/loneliness","display_name":"loneliness","score":0.8669999837875366},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.9940000176429749},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.8569999933242798},{"id":"https://openalex.org/keywords/anxiety","display_name":"anxiety","score":0.9509999752044678},{"id":"https://openalex.org/keywords/depression","display_name":"depression","score":1.0},{"id":"https://openalex.org/keywords/sense-of-coherence","display_name":"sense of coherence","score":0.8479999899864197},{"id":"https://openalex.org/keywords/health-care-utilization","display_name":"health care utilization","score":0.6179999709129333},{"id":"https://openalex.org/keywords/hospital-readmission","display_name":"hospital readmission","score":0.8550000190734863},{"id":"https://openalex.org/keywords/disease-knowledge","display_name":"disease knowledge","score":0.4569999873638153},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.39899998903274536},{"id":"https://openalex.org/keywords/family-involvement-in-care","display_name":"family involvement in care","score":0.42399999499320984},{"id":"https://openalex.org/keywords/gender-differences","display_name":"gender differences","score":0.45100000500679016},{"id":"https://openalex.org/keywords/interprofessional-education","display_name":"interprofessional education","score":0.4749999940395355}],"concepts":[{"id":"https://openalex.org/C2778198053","wikidata":"https://www.wikidata.org/wiki/Q181754","display_name":"Heart failure","level":2,"score":0.6875914335250854},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.48936980962753296},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3776310086250305},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.37203943729400635},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.36223238706588745},{"id":"https://openalex.org/C164705383","wikidata":"https://www.wikidata.org/wiki/Q10379","display_name":"Cardiology","level":1,"score":0.2118263840675354}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:figshare.com:article/26896078","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Living_with_heart_failure_effects_of_an_educational_programme_on_patients_and_family_members/26896078","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"pmh:oai:openarchive.ki.se:10616/40655","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/40655","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:1601280720","doi":null,"is_oa":false,"landing_page_url":"http://publications.ki.se/xmlui/handle/10616/40655","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:openarchive.ki.se:10616/40655","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/40655","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":1.0,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":117,"referenced_works":["https://openalex.org/W157850094","https://openalex.org/W228126680","https://openalex.org/W1488777945","https://openalex.org/W1492912697","https://openalex.org/W1498337915","https://openalex.org/W1507130713","https://openalex.org/W1521578411","https://openalex.org/W1526486931","https://openalex.org/W1544739423","https://openalex.org/W1550331687","https://openalex.org/W1572092804","https://openalex.org/W1729472568","https://openalex.org/W1826117193","https://openalex.org/W1964714332","https://openalex.org/W1970289013","https://openalex.org/W1970770105","https://openalex.org/W1971502527","https://openalex.org/W1974340200","https://openalex.org/W1977488747","https://openalex.org/W1977776314","https://openalex.org/W1982413221","https://openalex.org/W1984995534","https://openalex.org/W1991307440","https://openalex.org/W1993464145","https://openalex.org/W1997625873","https://openalex.org/W2000460140","https://openalex.org/W2003507526","https://openalex.org/W2003791842","https://openalex.org/W2007946529","https://openalex.org/W2008531554","https://openalex.org/W2012469534","https://openalex.org/W2012643874","https://openalex.org/W2013147647","https://openalex.org/W2013149970","https://openalex.org/W2014718757","https://openalex.org/W2015416509","https://openalex.org/W2018224650","https://openalex.org/W2018763145","https://openalex.org/W2021042180","https://openalex.org/W2022060785","https://openalex.org/W2022436084","https://openalex.org/W2024311825","https://openalex.org/W2026424619","https://openalex.org/W2027015649","https://openalex.org/W2027083446","https://openalex.org/W2034855067","https://openalex.org/W2035338481","https://openalex.org/W2041367957","https://openalex.org/W2042225570","https://openalex.org/W2042507422","https://openalex.org/W2044253543","https://openalex.org/W2048706232","https://openalex.org/W2050752826","https://openalex.org/W2053499671","https://openalex.org/W2055802019","https://openalex.org/W2056818707","https://openalex.org/W2063960425","https://openalex.org/W2064240175","https://openalex.org/W2065581343","https://openalex.org/W2067402277","https://openalex.org/W2068321090","https://openalex.org/W2069981737","https://openalex.org/W2070055660","https://openalex.org/W2070358447","https://openalex.org/W2071467814","https://openalex.org/W2072079765","https://openalex.org/W2082029312","https://openalex.org/W2083129021","https://openalex.org/W2085755432","https://openalex.org/W2086038447","https://openalex.org/W2087853344","https://openalex.org/W2091406985","https://openalex.org/W2095349644","https://openalex.org/W2095618060","https://openalex.org/W2095812275","https://openalex.org/W2096481379","https://openalex.org/W2098646038","https://openalex.org/W2099940587","https://openalex.org/W2103206717","https://openalex.org/W2107263464","https://openalex.org/W2110356839","https://openalex.org/W2110499304","https://openalex.org/W2111841126","https://openalex.org/W2113540114","https://openalex.org/W2114847699","https://openalex.org/W2120532708","https://openalex.org/W2121482062","https://openalex.org/W2122328334","https://openalex.org/W2129634336","https://openalex.org/W2130114735","https://openalex.org/W2131048204","https://openalex.org/W2131856648","https://openalex.org/W2131960982","https://openalex.org/W2135094099","https://openalex.org/W2138618551","https://openalex.org/W2140978519","https://openalex.org/W2142981011","https://openalex.org/W2143144897","https://openalex.org/W2143761888","https://openalex.org/W2149209542","https://openalex.org/W2155411553","https://openalex.org/W2157905266","https://openalex.org/W2158834228","https://openalex.org/W2161546419","https://openalex.org/W2162056994","https://openalex.org/W2163380041","https://openalex.org/W2163418502","https://openalex.org/W2165958453","https://openalex.org/W2166281097","https://openalex.org/W2166457692","https://openalex.org/W2166769318","https://openalex.org/W2167811530","https://openalex.org/W2168351226","https://openalex.org/W2170317257","https://openalex.org/W2321027407","https://openalex.org/W2416897121","https://openalex.org/W2570702423"],"related_works":["https://openalex.org/W2023170825","https://openalex.org/W2055873610","https://openalex.org/W1590156004","https://openalex.org/W1899995267","https://openalex.org/W2538568884","https://openalex.org/W7132363663","https://openalex.org/W3030747048","https://openalex.org/W2053144443","https://openalex.org/W3045705977","https://openalex.org/W4292209055"],"abstract_inverted_index":{"Chronic":[0],"heart":[1,616,651,691,714],"failure":[2],"(CHF)":[3],"is":[4,15],"a":[5,166,172,453,541,707],"syndrome":[6],"with":[7,17,53,71,79,117,154,221,427,441,464,495,498,506,519,536,614,649,690],"various":[8],"underlying":[9],"causes":[10],"and":[11,26,40,45,65,73,85,98,110,113,120,138,147,209,235,239,255,297,321,325,334,348,352,362,367,371,380,433,449,475,513,516,525,553,582,609,656,663],"when":[12],"an":[13,77,160,213,306,410,681],"individual":[14],"diagnosed":[16],"CHF":[18,72,155,507,537],"it":[19,560],"affects":[20],"daily":[21],"life":[22,294],"of":[23,42,92,152,191,218,266,270,293,317,327,359,365,378,408,438,468,478,481,484,534,555,579,591,595,620,647,680,687,706],"both":[24,231],"him/her":[25],"family":[27,43,150,203,260,302,320,381,392,405,414,431,446,460,486,532,547,585,645,685],"members.":[28],"An":[29],"educational":[30,168,207,307,411,529,573,682,710],"programme":[31,169,208,530,574,643,683,711],"may":[32],"have":[33,489,540],"the":[34,38,51,58,93,206,219,247,263,280,285,315,337,356,400,423,439,456,465,472,476,485,493,496,556,566,592],"capability":[35],"to":[36,49,61,159,171,195,259,289,313,355,403,451,491,539,564],"increase":[37],"knowledge":[39,200,227,252,429,655],"understanding":[41,437,554],"members":[44,151,181,204,245,261,303,393,415,432,487,533,548,586,646,686],"improve":[46],"their":[47,569],"possibility":[48],"support":[50,67,565,611],"patient":[52,220,322,567,613],"CHF.":[54,222,499],"In":[55,144,282,397,500],"paper":[56,145,192,283,398],"I":[57],"aim":[59,287,311,401],"was":[60,76,88,194,212,288,312,402,508,517],"investigate":[62,196,290,314],"perceived":[63,104],"loneliness":[64,105,132,503,608],"social":[66,108,122,318,360,523,610],"in":[68,136,183,202,230,246,262,301,331,345,471,504,568,584,612],"149":[69],"patients":[70,153,505,535,648,688],"whether":[74],"there":[75,211],"association":[78],"gender,":[80],"age,":[81],"health":[82,520,588,658],"care":[83,480,521,589,659],"utilization":[84,217,590],"mortality.":[86],"Loneliness":[87],"reported":[89],"by":[90],"20%":[91],"patients,":[94],"who":[95,103,164],"were":[96,114,156,299,384,416],"younger":[97,514],"more":[99,127,134,139],"often":[100],"women.":[101],"Those":[102],"had":[106,133,249,394,549],"fewer":[107],"contacts":[109,112],"emotional":[111],"less":[115],"satisfied":[116],"close":[118],"relationships":[119],"available":[121],"contacts.":[123],"Despite":[124],"not":[125,277,576],"having":[126],"severe":[128],"CHF,":[129],"those":[130],"feeling":[131],"days":[135,271],"hospital":[137],"readmissions":[140],"during":[141,187,273,336],"12":[142],"months.":[143],"II":[146,193],"III":[148,284],"128":[149],"randomly":[157],"assigned":[158],"intervention":[161],"group":[162,174],"(IG)":[163],"received":[165],"multi-professional":[167,641,709],"or":[170,268],"control":[173],"(CG)":[175],"receiving":[176],"routine":[177],"ward":[178],"information.":[179],"Family":[180,244,703],"filled":[182],"questionnaires":[184],"three":[185],"times":[186],"one":[188],"year.":[189],"Aim":[190],"if":[197,210,291],"disease-":[198],"related":[199,323],"increased":[201,228,428,550],"through":[205],"effect":[214],"on":[215,329,654],"healthcare":[216],"Findings":[223,340],"showed":[224,341],"that":[225],"disease-specific":[226],"significantly":[229,250],"groups":[232],"from":[233],"baseline":[234,363],"at":[236,241,253,373,388],"second":[237,254],"measurement":[238,257,364,377],"remained":[240],"third":[242,256,374,389],"measurement.":[243,375,390],"IG":[248,351],"higher":[251,395],"compared":[258],"CG.":[264],"Frequency":[265],"readmission":[267],"number":[269],"hospitalised":[272],"18":[274],"months":[275],"did":[276,575],"differ":[278],"between":[279,350],"groups.":[281],"primary":[286],"quality":[292],"(QoL),":[295],"anxiety":[296,333,347,366,370,581],"depression":[298,335,349,368,372,583],"affected":[300],"after":[304],"attending":[305,409],"programme.":[308,412],"The":[309,527,546,572],"secondary":[310],"impact":[316],"support,":[319],"variables":[324],"sense":[326],"coherence":[328],"changes":[330],"QoL,":[332,346,580],"study":[338],"period.":[339],"no":[342],"significant":[343],"differences":[344],"CG":[353],"due":[354],"education.":[357],"Adequacy":[358],"network":[361,524],"predicted":[369],"Baseline":[376],"QoL":[379,387],"member\u2018s":[382],"age":[383],"predictors":[385],"for":[386,455,531,562,644,684],"Younger":[391],"QoL.":[396],"IV":[399],"describe":[404],"members\u2019":[406,447,461,704],"experiences":[407,705],"Eleven":[413],"interviewed.":[417],"Three":[418],"main":[419],"categories":[420],"emerged:":[421],"\u201cmaking":[422],"disease":[424],"comprehensible\u201d":[425],"deals":[426,463],"among":[430,511],"thereby":[434],"attaining":[435],"greater":[436],"person":[440,497],"CHF;":[442],"\u201cincreasing":[443],"involvement\u201d":[444],"comprises":[445],"self-confidence":[448],"ability":[450],"become":[452],"resource":[454],"ill":[457],"person;":[458],"\u201cinfluencing":[459],"wellness\u201d":[462],"positive":[466,544],"experience":[467],"meeting":[469],"others":[470],"same":[473],"situation":[474],"importance":[477],"taking":[479],"themselves.":[482],"Several":[483],"would":[488],"preferred":[490],"attend":[492],"education":[494,642],"conclusion":[501],"Perceived":[502,607],"most":[509],"common":[510],"women":[512],"persons,":[515],"associated":[518],"utilization,":[522],"support.":[526],"implemented":[528],"seemed":[538],"subjectively":[542],"experienced":[543],"effect.":[545],"knowledge,":[551],"confidence":[552],"disease,":[557],"which":[558],"made":[559],"easier":[561],"them":[563],"self-care":[570],"management.":[571],"affect":[577],"levels":[578],"nor":[587],"patients.":[593],"List":[594],"scientific":[596],"papers":[597],"I.":[598],"L\u00f6fvenmark":[599,628,669,695],"C,":[600,629,670,696],"Mattiasson":[601,637,677,701],"A-C,":[602],"Billing":[603,635,675,697],"E,":[604,636,676,698],"Edner":[605,633,673,699],"M.":[606],"chronic":[615,650,713],"failure.":[617,692,715],"European":[618],"Journal":[619],"Cardiovascular":[621],"Nursing.":[622],"8":[623],"(2009)":[624],"251-8.":[625],"https://doi.org/10.1016/j.ejcnurse.2009.05.001":[626],"II.":[627],"Rydell":[630],"Karlsson":[631],"M,":[632,634,674,700],"A-C.":[638,678,702],"A":[639],"group-based":[640,708],"failure:":[652],"Effects":[653],"patients\u2019":[657],"utilization.":[660],"Patient":[661],"Education":[662],"Counseling.":[664],"(2010)":[665],"[Accepted]":[666],"https://doi.org/10.1016/j.pec.2010.09.026":[667],"III.":[668],"Saboonchi":[671],"F,":[672],"Evaluation":[679],"living":[689],"[Submitted]":[693,716],"IV.":[694],"about":[712]},"counts_by_year":[{"year":2016,"cited_by_count":2}],"updated_date":"2026-09-11T09:22:31.653822","created_date":"2016-06-24T00:00:00"}