{"id":"https://openalex.org/W1598686264","doi":null,"title":"Parental reactions in childhood cancer: distress, risk and resilience","display_name":"Parental reactions in childhood cancer: distress, risk and resilience","publication_year":2011,"publication_date":"2011-05-04","ids":{"openalex":"https://openalex.org/W1598686264","mag":"1598686264"},"language":"en","primary_location":{"id":"pmh:oai:figshare.com:article/26911537","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Parental_reactions_in_childhood_cancer_distress_risk_and_resilience/26911537","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/10616/40597","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5065678012","display_name":"Eygl\u00f3 Gudmundsd\u00f3ttir","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Eygl\u00f3 Gudmundsd\u00f3ttir","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5065678012"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9702000021934509,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.9702000021934509,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.015599999576807022,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.008899999782443047,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/parents-of-children-with-cancer","display_name":"parents of children with cancer","score":0.8830000162124634},{"id":"https://openalex.org/keywords/parental-distress","display_name":"parental distress","score":0.8330000042915344},{"id":"https://openalex.org/keywords/parental-resilience","display_name":"parental resilience","score":0.9330000281333923},{"id":"https://openalex.org/keywords/sense-of-coherence","display_name":"sense of coherence","score":0.9769999980926514},{"id":"https://openalex.org/keywords/pediatric-cancer-survivors","display_name":"childhood cancer survivors","score":0.765999972820282},{"id":"https://openalex.org/keywords/psychosocial-follow-up","display_name":"psychosocial follow-up","score":0.8669999837875366},{"id":"https://openalex.org/keywords/gender-differences-in-parenting","display_name":"gender differences in parenting","score":0.48899999260902405},{"id":"https://openalex.org/keywords/anxiety-and-depression","display_name":"anxiety and depression","score":0.47200000286102295},{"id":"https://openalex.org/keywords/uncertainty","display_name":"uncertainty","score":0.44699999690055847},{"id":"https://openalex.org/keywords/information-needs","display_name":"information needs","score":0.6050000190734863},{"id":"https://openalex.org/keywords/cross-national-comparison","display_name":"cross-national comparison","score":0.5479999780654907},{"id":"https://openalex.org/keywords/sweden","display_name":"Sweden","score":0.3970000147819519},{"id":"https://openalex.org/keywords/iceland","display_name":"Iceland","score":1.0},{"id":"https://openalex.org/keywords/psychosocial-support","display_name":"psychosocial support","score":0.6010000109672546},{"id":"https://openalex.org/keywords/parental-adjustment","display_name":"parental adjustment","score":0.3659999966621399},{"id":"https://openalex.org/keywords/risk-factors-for-distress","display_name":"risk factors for distress","score":0.5230000019073486},{"id":"https://openalex.org/keywords/parental-self-esteem","display_name":"parental self-esteem","score":0.3160000145435333},{"id":"https://openalex.org/keywords/loneliness","display_name":"loneliness","score":0.7110000252723694},{"id":"https://openalex.org/keywords/sleep-disturbance","display_name":"sleep disorders","score":0.7279999852180481}],"concepts":[{"id":"https://openalex.org/C139265228","wikidata":"https://www.wikidata.org/wiki/Q5283089","display_name":"Distress","level":2,"score":0.6666661500930786},{"id":"https://openalex.org/C2992894027","wikidata":"https://www.wikidata.org/wiki/Q5097977","display_name":"Childhood cancer","level":3,"score":0.5045744180679321},{"id":"https://openalex.org/C2779585090","wikidata":"https://www.wikidata.org/wiki/Q3457762","display_name":"Resilience (materials science)","level":2,"score":0.4813997745513916},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.46277913451194763},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4028673768043518},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3842232823371887},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3811032772064209},{"id":"https://openalex.org/C112930515","wikidata":"https://www.wikidata.org/wiki/Q4389547","display_name":"Risk analysis (engineering)","level":1,"score":0.3481580317020416},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.27171891927719116},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.1087251603603363},{"id":"https://openalex.org/C97355855","wikidata":"https://www.wikidata.org/wiki/Q11473","display_name":"Thermodynamics","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:figshare.com:article/26911537","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Parental_reactions_in_childhood_cancer_distress_risk_and_resilience/26911537","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"pmh:oai:openarchive.ki.se:10616/40597","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/40597","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/other"},{"id":"mag:1598686264","doi":null,"is_oa":false,"landing_page_url":"http://publications.ki.se/xmlui/handle/10616/40597","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:openarchive.ki.se:10616/40597","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/40597","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/other"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":63,"referenced_works":["https://openalex.org/W1506532314","https://openalex.org/W1520402351","https://openalex.org/W1979784966","https://openalex.org/W1980016974","https://openalex.org/W1991525612","https://openalex.org/W1992714858","https://openalex.org/W1994371895","https://openalex.org/W1997218696","https://openalex.org/W1999530076","https://openalex.org/W2006762356","https://openalex.org/W2008354340","https://openalex.org/W2011542695","https://openalex.org/W2014575778","https://openalex.org/W2016901171","https://openalex.org/W2019685630","https://openalex.org/W2023546331","https://openalex.org/W2026374991","https://openalex.org/W2033465567","https://openalex.org/W2037075600","https://openalex.org/W2041731932","https://openalex.org/W2044457158","https://openalex.org/W2046773260","https://openalex.org/W2049240686","https://openalex.org/W2050905691","https://openalex.org/W2069679832","https://openalex.org/W2077018800","https://openalex.org/W2078885599","https://openalex.org/W2084861257","https://openalex.org/W2091132564","https://openalex.org/W2093755762","https://openalex.org/W2097931771","https://openalex.org/W2102871061","https://openalex.org/W2109457146","https://openalex.org/W2114488868","https://openalex.org/W2114723363","https://openalex.org/W2120792757","https://openalex.org/W2122245945","https://openalex.org/W2123870033","https://openalex.org/W2125644205","https://openalex.org/W2128604360","https://openalex.org/W2132855013","https://openalex.org/W2134286714","https://openalex.org/W2136149714","https://openalex.org/W2137947682","https://openalex.org/W2138662200","https://openalex.org/W2142023933","https://openalex.org/W2142383423","https://openalex.org/W2144654439","https://openalex.org/W2145218345","https://openalex.org/W2145547718","https://openalex.org/W2149859140","https://openalex.org/W2151697274","https://openalex.org/W2153019333","https://openalex.org/W2154777700","https://openalex.org/W2157193034","https://openalex.org/W2158112454","https://openalex.org/W2159489108","https://openalex.org/W2161120550","https://openalex.org/W2167811530","https://openalex.org/W2170250067","https://openalex.org/W2279574376","https://openalex.org/W2325898774","https://openalex.org/W2418253770"],"related_works":["https://openalex.org/W2768672778","https://openalex.org/W2007305026","https://openalex.org/W2603076842","https://openalex.org/W2111503817","https://openalex.org/W2728868961","https://openalex.org/W1794281644","https://openalex.org/W3134868114","https://openalex.org/W2559577752","https://openalex.org/W2002319442","https://openalex.org/W2011591460"],"abstract_inverted_index":{"Parents":[0],"of":[1,21,39,66,73,80,94,110,114,127,165,197,203,218,236,242,263,277,304,326,346,396,399,411,421,538,589],"children":[2],"with":[3,51,270,298,384,460],"cancer":[4,130,584],"encounter":[5],"an":[6],"exceptionally":[7],"difficult":[8],"life":[9],"experience.":[10],"Acute":[11],"and":[12,41,56,64,69,97,99,112,133,175,177,211,222,239,265,286,291,318,356,418,426,483,528,552,557,578,592],"long-lasting":[13],"distress":[14,87,101,224,301,322,343,382,554],"adds":[15],"to":[16,234,359,380,405,448,453,507,532,561],"the":[17,37,78,90,137,144,152,187,227,257,316,319,324,368,397,437,508,587],"initial":[18],"traumatic":[19],"experience":[20],"being":[22],"told":[23],"that":[24,119,266,313,377,390,401,472],"a":[25,30,260,327,391,444,457,517,582],"family":[26],"member":[27],"suffers":[28],"from":[29,124,136],"potentially":[31],"fatal":[32],"illness.":[33],"This":[34,388,441],"thesis":[35,375],"investigates":[36],"determinants":[38,241],"short":[40],"long-term":[42,553],"psychological":[43,116,176,287],"effects":[44],"in":[45,47,157,207,226,273,315,342,373,419,475,497,500,555,576,586],"parents":[46,126,135,196,338,366,415,435,580],"two":[48,204,228,369],"Nordic":[49],"sites":[50],"different":[52],"routines":[53,447],"for":[54,83,185,256,428,446,463,480,515],"care":[55],"follow-up.":[57,466],"A":[58,231],"general":[59,138,282],"aim":[60],"was":[61,141,233,279,296,306,431],"increased":[62],"knowledge":[63],"understanding":[65,395],"parental":[67,84,107,220,243,378,403,450,490,501,522],"reactions":[68],"psychosocial":[70,423,465],"follow-up":[71],"needs":[72,427],"families.":[74],"Study":[75,192,252,310],"I":[76,253],"examined":[77],"significance":[79],"individual":[81],"strengths":[82],"resilience":[85,271,379,409,533,551],"against":[86,248,534],"by":[88,488],"studying":[89],"relationships":[91],"between":[92,365,468],"Sense":[93],"Coherence":[95],"(SOC)":[96],"illness-specific":[98,354],"generic":[100],"symptoms.":[102],"We":[103,215],"also":[104,272],"studied":[105,216],"whether":[106],"gender,":[108],"level":[109,325],"education,":[111],"use":[113],"professional":[115],"support":[117,255,527],"influenced":[118],"relationship.":[120],"Data":[121],"were":[122,149,183,246,363],"collected":[123],"190":[125],"126":[128],"childhood":[129,406,562],"(CC)":[131],"survivors,":[132],"208":[134,212],"population.":[139,275],"SOC":[140,267,278,295,305],"assessed":[142],"using":[143,151,186],"SOC-13":[145],"questionnaire.":[146],"Distress":[147,156,425],"outcomes":[148,336,502,575],"measured":[150],"multi-dimensional":[153],"Parental":[154],"Psychosocial":[155],"Cancer":[158],"(PPD-C)":[159],"questionnaire,":[160],"which":[161,489],"covers":[162],"uncertainty,":[163,451],"loss":[164],"control,":[166],"self-esteem,":[167],"anxiety,":[168],"disease-related":[169],"fear,":[170],"loneliness,":[171],"sleep":[172],"disturbances,":[173],"depression,":[174,292],"physical":[178,285],"distress.":[179,536],"Non-pathological":[180],"psychiatric":[181,283],"symptoms":[182,225],"screened":[184],"General":[188],"Health":[189],"Questionnaire":[190],"(GHQ-12).":[191],"II,":[193],"included":[194],"328":[195],"211":[198],"CC":[199],"patients":[200],"at":[201,367,416,436,456],"one":[202],"sites,":[205],"either":[206],"Sweden":[208],"or":[209],"Iceland,":[210],"control":[213],"parents.":[214],"occurrence":[217],"cancer-related":[219,381],"reactions,":[221],"compared":[223],"national":[229],"samples.":[230],"goal":[232],"identify":[235],"nation-,":[237],"site-":[238],"organisation-related":[240],"experiences.":[244],"Outcomes":[245],"evaluated":[247],"non-clinical":[249,328],"norm":[250,329],"data.":[251],"provided":[254],"hypothesis":[258],"about":[259],"protective":[261],"influence":[262],"SOC,":[264],"is":[268],"associated":[269,297],"this":[274,374,498],"Influence":[276,303],"strongest":[280],"regarding":[281],"symptoms,":[284,289],"stress":[288],"anxiety":[290],"although":[293],"low":[294],"more":[299,432,512],"severe":[300],"general.":[302],"stronger":[307],"among":[308,434],"mothers.":[309],"II":[311],"showed":[312],"both":[314],"Swedish":[317,556,577],"Icelandic":[320,337,439,558,579],"groups,":[321],"exceeded":[323],"group.":[330],"In":[331],"adjusted":[332],"analyses":[333],"comparing":[334],"parent":[335],"scored":[339],"significantly":[340],"higher":[341],"on":[344],"5":[345],"11":[347],"PPD-C":[348],"subscales.":[349],"Significant":[350],"differences,":[351],"primarily":[352],"concerning":[353],"distress,":[355],"uncertainty":[357],"due":[358,506],"unmet":[360],"informational":[361],"needs,":[362],"found":[364],"sites.":[370],"The":[371],"findings":[372],"indicate":[376,471],"varies":[383],"identifiable":[385],"strength":[386],"factors.":[387],"suggests":[389],"strengths-oriented":[392],"approach":[393],"facilitates":[394],"kind":[398],"factors":[400],"govern":[402],"adjustment":[404,560],"cancer.":[407,563],"Addressing":[408],"instead":[410],"pathology":[412],"helps":[413],"identifying":[414],"risk":[417],"need":[420,445],"intensified":[422],"support.":[424],"illness-related":[429,535],"information":[430,484,530],"prominent":[433],"smaller":[438],"site.":[440],"finding":[442],"indicates":[443],"meet":[449],"adapted":[452],"conditions":[454],"prevailing":[455],"low-influx":[458],"centre":[459,510],"limited":[461],"resources":[462],"specialised":[464],"Differences":[467,496],"study":[469,499],"groups":[470],"compensatory":[473],"measures":[474],"local/national":[476],"and/or":[477],"site-related":[478,590],"arrangements":[479],"care,":[481],"surveillance":[482],"are":[485],"possible":[486],"means":[487],"psycho-social":[491],"services":[492],"can":[493],"be":[494,505],"improved.":[495],"may":[503],"partly":[504],"larger":[509],"having":[511],"favourable":[513],"preconditions":[514],"providing":[516],"multifaceted":[518],"caring":[519],"context,":[520],"including":[521],"fellowship":[523],"where":[524],"informal":[525],"mutual":[526],"shared":[529],"contribute":[531],"List":[537],"scientific":[539],"papers":[540],"I.":[541],"Gudmundsd\u00f3ttir,":[542,570],"E.,":[543,571],"Schirren,":[544],"M.,":[545],"Boman,":[546,572],"K.":[547,548],"(2011).":[549],"Psychological":[550,574],"parents'":[559],"Acta":[564],"Oncol.":[565],"50(3),":[566],"373-380.":[567],"https://doi.org/10.3109/0284186X.2010.489572":[568],"II.":[569],"K.K.":[573],"following":[581],"child's":[583],"-":[585],"light":[588],"differences":[591],"organisation.":[593],"[Manuscript]":[594]},"counts_by_year":[],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}