{"id":"https://openalex.org/W1579463155","doi":null,"title":"Starting a Support Group for Women with a Hereditary Breast Cancer Predisposition","display_name":"Starting a Support Group for Women with a Hereditary Breast Cancer Predisposition","publication_year":2005,"publication_date":"2005-06-29","ids":{"openalex":"https://openalex.org/W1579463155","mag":"1579463155"},"language":"en","primary_location":{"id":"pmh:oai:d-scholarship.pitt.edu:7184","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","pdf_url":"http://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5036807744","display_name":"Pamela Lyn Farnsworth","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Pamela Lyn Farnsworth","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5036807744"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":1.0,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":1.0,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13544","display_name":"Women's cancer prevention and management","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/hereditary-breast-cancer-predisposition","display_name":"hereditary breast cancer predisposition","score":0.972000002861023},{"id":"https://openalex.org/keywords/support-groups","display_name":"support groups","score":0.8550000190734863},{"id":"https://openalex.org/keywords/brca1","display_name":"BRCA1","score":0.8830000162124634},{"id":"https://openalex.org/keywords/brca2","display_name":"BRCA2","score":1.0},{"id":"https://openalex.org/keywords/pten","display_name":"PTEN","score":0.9769999980926514},{"id":"https://openalex.org/keywords/genetic-testing","display_name":"genetic testing","score":0.859000027179718},{"id":"https://openalex.org/keywords/perceived-cancer-risk","display_name":"cancer risk perception","score":0.722000002861023},{"id":"https://openalex.org/keywords/anxiety","display_name":"anxiety","score":0.7070000171661377},{"id":"https://openalex.org/keywords/family-support","display_name":"family support","score":0.7559999823570251},{"id":"https://openalex.org/keywords/communication-with-families","display_name":"communication with families","score":0.5809999704360962},{"id":"https://openalex.org/keywords/prophylactic-surgery","display_name":"prophylactic surgery","score":0.7170000076293945},{"id":"https://openalex.org/keywords/ovarian-cancer-risk","display_name":"ovarian cancer risk","score":0.8560000061988831},{"id":"https://openalex.org/keywords/high-risk-women","display_name":"high-risk women","score":0.6520000100135803},{"id":"https://openalex.org/keywords/decision-making","display_name":"decision-making","score":0.460999995470047}],"concepts":[{"id":"https://openalex.org/C530470458","wikidata":"https://www.wikidata.org/wiki/Q128581","display_name":"Breast cancer","level":3,"score":0.6732720136642456},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5775428414344788},{"id":"https://openalex.org/C2778996113","wikidata":"https://www.wikidata.org/wiki/Q3117735","display_name":"Support group","level":2,"score":0.5375916957855225},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.4985628128051758},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.49849462509155273},{"id":"https://openalex.org/C67636389","wikidata":"https://www.wikidata.org/wiki/Q784237","display_name":"Genetic predisposition","level":3,"score":0.4899860918521881},{"id":"https://openalex.org/C2780673598","wikidata":"https://www.wikidata.org/wiki/Q285223","display_name":"Genetic testing","level":2,"score":0.4846780598163605},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.47893911600112915},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4718085527420044},{"id":"https://openalex.org/C163355716","wikidata":"https://www.wikidata.org/wiki/Q2154783","display_name":"Risk perception","level":3,"score":0.45672330260276794},{"id":"https://openalex.org/C2781179581","wikidata":"https://www.wikidata.org/wiki/Q2857712","display_name":"Family history","level":2,"score":0.4272046685218811},{"id":"https://openalex.org/C80227256","wikidata":"https://www.wikidata.org/wiki/Q1124169","display_name":"Genetic counseling","level":2,"score":0.41580134630203247},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.33767154812812805},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3124673366546631},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.246913880109787},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.20454928278923035},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.13699546456336975},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.1366044282913208},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:d-scholarship.pitt.edu:7184","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","pdf_url":"http://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},{"id":"mag:1579463155","doi":null,"is_oa":false,"landing_page_url":"http://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:d-scholarship.pitt.edu:7184","doi":null,"is_oa":true,"landing_page_url":"https://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","pdf_url":"http://d-scholarship.pitt.edu/7184/1/Farnsworthpl3.pdf","source":{"id":"https://openalex.org/S4306402372","display_name":"D-Scholarship@Pitt (University of Pittsburgh)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I170201317","host_organization_name":"University of Pittsburgh","host_organization_lineage":["https://openalex.org/I170201317"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"PeerReviewed"},"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W1579463155.pdf","grobid_xml":"https://content.openalex.org/works/W1579463155.grobid-xml"},"referenced_works_count":47,"referenced_works":["https://openalex.org/W121553317","https://openalex.org/W130368563","https://openalex.org/W192759200","https://openalex.org/W578583900","https://openalex.org/W652924342","https://openalex.org/W1563041496","https://openalex.org/W1566394123","https://openalex.org/W1569033281","https://openalex.org/W1593342691","https://openalex.org/W1787455886","https://openalex.org/W1843582003","https://openalex.org/W1845803539","https://openalex.org/W1973690102","https://openalex.org/W1981386208","https://openalex.org/W1987687398","https://openalex.org/W2002456187","https://openalex.org/W2009074196","https://openalex.org/W2015754157","https://openalex.org/W2019983958","https://openalex.org/W2027806031","https://openalex.org/W2034251343","https://openalex.org/W2038377502","https://openalex.org/W2039211343","https://openalex.org/W2055618045","https://openalex.org/W2056627733","https://openalex.org/W2059240796","https://openalex.org/W2069208314","https://openalex.org/W2071221804","https://openalex.org/W2076733524","https://openalex.org/W2079467159","https://openalex.org/W2100556558","https://openalex.org/W2103970959","https://openalex.org/W2116554987","https://openalex.org/W2118857534","https://openalex.org/W2133451399","https://openalex.org/W2147058464","https://openalex.org/W2147323761","https://openalex.org/W2156774155","https://openalex.org/W2162193385","https://openalex.org/W2167615754","https://openalex.org/W2171439968","https://openalex.org/W2171783717","https://openalex.org/W2409715298","https://openalex.org/W2411297834","https://openalex.org/W2412441126","https://openalex.org/W2416594583","https://openalex.org/W3007680406"],"related_works":["https://openalex.org/W2162193385","https://openalex.org/W176190884","https://openalex.org/W2477012700","https://openalex.org/W2312558195","https://openalex.org/W2106871344","https://openalex.org/W2058349895","https://openalex.org/W2967635942","https://openalex.org/W4225275244","https://openalex.org/W1965792122","https://openalex.org/W1969828553"],"abstract_inverted_index":{"Genetic":[0],"testing":[1,20],"for":[2,21,65,89,95,108,132,241,293,341],"a":[3,22,36,73,86,96,120,221,294,344],"hereditary":[4,97,345],"breast":[5,98,182,235,254,282,346],"cancer":[6,44,99,183,236,283,289,300,347],"predisposition":[7],"has":[8],"been":[9],"available":[10],"since":[11,272],"1996.":[12],"Since":[13],"then,":[14],"many":[15],"at-risk":[16],"individuals":[17],"have":[18,92,104,211,220],"pursued":[19],"variety":[23],"of":[24,38,75,84,136,164,167,181,224,247,265,315],"reasons":[25],"including":[26],"medical":[27,188],"management,":[28],"surgical":[29],"decision-making,":[30],"and":[31,56,124,128,147,169,191,196,226,238,268,285,291,302,309,333],"family":[32,172,195],"planning.":[33],"However,":[34],"as":[35],"result":[37,273],"the":[39,82,137,239,245,257,263,269],"ability":[40],"to":[41,49,117,207,210,218,227],"learn":[42],"one's":[43,307],"risk,":[45,184],"women":[46,90,102,140,332,342],"often":[47],"struggle":[48],"incorporate":[50],"this":[51,66],"information":[52,320],"into":[53],"their":[54,213],"lives":[55],"are":[57,335],"faced":[58],"with":[59,156,171,253,306,330,343],"complex":[60],"decision-making.":[61],"Providing":[62],"comprehensive":[63],"services":[64,243,340],"population":[67],"that":[68,321],"address":[69],"these":[70],"concerns":[71],"is":[72],"matter":[74],"public":[76,325],"health":[77,326],"importance.":[78],"This":[79,317],"study":[80,133,318],"documents":[81,131],"process":[83],"designing":[85,338],"support":[87,193,242,295,339],"group":[88,123,145,176,202],"who":[91,103,328,334],"tested":[93,106],"positive":[94,107],"predisposition.":[100,348],"Thirty-three":[101],"previously":[105],"mutations":[109],"in":[110,119,187],"BRCA1,":[111],"BRCA2,":[112],"or":[113,249,261,337],"PTEN":[114],"were":[115,125,144,150,204],"invited":[116],"participate":[118],"monthly":[121],"support/discussion":[122],"sent":[126],"questionnaires":[127],"informed":[129],"consent":[130],"participation.":[134],"Nineteen":[135],"thirty-three":[138],"(57.6%)":[139],"responded,":[141],"five":[142],"(27.8%)":[143],"participants":[146,177,203],"fourteen":[148],"(72.2%)":[149],"non-participants.":[151,199],"The":[152],"questionnaire":[153],"addressed":[154],"experiences":[155],"cancer,":[157,225,255],"management":[158,189],"decisions,":[159,190],"risk":[160,237,284,290,301],"perceptions,":[161],"existing":[162],"levels":[163],"support,":[165],"causes":[166],"anxiety,":[168],"communication":[170],"members.":[173],"As":[174],"hypothesized,":[175],"had":[178],"higher":[179],"perceptions":[180],"lower":[185],"confidence":[186],"less":[192],"from":[194],"friends":[197],"than":[198],"In":[200],"addition,":[201],"more":[205],"likely":[206],"be":[208],"younger,":[209],"received":[212],"results":[214],"1-2":[215],"years":[216],"ago,":[217],"not":[219],"personal":[222],"history":[223],"experience":[228],"greater":[229],"overall":[230],"anxiety.":[231,316],"Factors":[232],"influencing":[233],"perceived":[234,281,287,298],"need":[240,292],"included":[244,277],"number":[246],"first":[248],"second":[250],"degree":[251],"relatives":[252],"whether":[256],"relative":[258],"was":[259],"deceased":[260],"alive,":[262],"election":[264],"preventative":[266],"surgery,":[267],"time":[270],"elapsed":[271],"disclosure.":[274],"Other":[275],"findings":[276],"correlations":[278],"between":[279],"(a)":[280],"both":[286],"ovarian":[288,299],"group,":[296],"(b)":[297],"anxiety":[303],"about":[304],"talking":[305],"partner,":[308],"(c)":[310],"all":[311],"items":[312],"addressing":[313],"sources":[314],"provides":[319],"can":[322],"potentially":[323],"aid":[324],"professionals":[327],"work":[329],"high-risk":[331],"organizing":[336]},"counts_by_year":[],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2016-06-24T00:00:00"}
