{"id":"https://openalex.org/W1576868929","doi":null,"title":"Patient with cancer : Their preferences and experiences of participation in treatment and care decisions","display_name":"Patient with cancer : Their preferences and experiences of participation in treatment and care decisions","publication_year":2004,"publication_date":"2004-05-20","ids":{"openalex":"https://openalex.org/W1576868929","mag":"1576868929"},"language":"en","primary_location":{"id":"pmh:oai:figshare.com:article/26894440","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Patient_with_cancer_their_preferences_and_experiences_of_participation_in_treatment_and_care_decisions/26894440","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://hdl.handle.net/10616/37899","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5030366958","display_name":"Ethel Ramfelt","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Ethel Ramfelt","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5030366958"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.989300012588501,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.989300012588501,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.00279999990016222,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.0010999999940395355,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/colorectal-cancer","display_name":"colorectal cancer","score":0.9800000190734863},{"id":"https://openalex.org/keywords/patient-involvement-in-care-decisions","display_name":"patient participation in treatment decisions","score":0.781000018119812},{"id":"https://openalex.org/keywords/shared-decision-making","display_name":"shared decision-making","score":0.9290000200271606},{"id":"https://openalex.org/keywords/sense-of-coherence","display_name":"sense of coherence","score":0.9309999942779541},{"id":"https://openalex.org/keywords/meaning-of-illness","display_name":"meaning of illness","score":0.8790000081062317},{"id":"https://openalex.org/keywords/coping","display_name":"coping","score":0.7260000109672546},{"id":"https://openalex.org/keywords/embodiment","display_name":"embodiment","score":0.4569999873638153},{"id":"https://openalex.org/keywords/emotional-coherence","display_name":"emotional coherence","score":0.6510000228881836},{"id":"https://openalex.org/keywords/collaborative-decision-making","display_name":"collaborative decision-making","score":0.46299999952316284}],"concepts":[{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.5963723063468933},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5566182136535645},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.5250965356826782},{"id":"https://openalex.org/C2778755073","wikidata":"https://www.wikidata.org/wiki/Q10858537","display_name":"Scale (ratio)","level":2,"score":0.4514518976211548},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.34057003259658813},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.09370279312133789},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0892462432384491},{"id":"https://openalex.org/C62520636","wikidata":"https://www.wikidata.org/wiki/Q944","display_name":"Quantum mechanics","level":1,"score":0.0},{"id":"https://openalex.org/C121332964","wikidata":"https://www.wikidata.org/wiki/Q413","display_name":"Physics","level":0,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:figshare.com:article/26894440","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/Patient_with_cancer_their_preferences_and_experiences_of_participation_in_treatment_and_care_decisions/26894440","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"pmh:oai:openarchive.ki.se:10616/37899","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/37899","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},{"id":"mag:1576868929","doi":null,"is_oa":false,"landing_page_url":"http://openarchive.ki.se/xmlui/bitstream/10616/37899/1/thesis.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:openarchive.ki.se:10616/37899","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/10616/37899","pdf_url":null,"source":{"id":"https://openalex.org/S4306400147","display_name":"Open Archive (Karolinska Institutet)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I28166907","host_organization_name":"Karolinska Institutet","host_organization_lineage":["https://openalex.org/I28166907"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"info:eu-repo/semantics/doctoralThesis"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9922999739646912}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":72,"referenced_works":["https://openalex.org/W13308760","https://openalex.org/W199391073","https://openalex.org/W199743680","https://openalex.org/W1492912697","https://openalex.org/W1501342953","https://openalex.org/W1515587369","https://openalex.org/W1525783179","https://openalex.org/W1530155851","https://openalex.org/W1550280742","https://openalex.org/W1583633459","https://openalex.org/W1594233936","https://openalex.org/W1604682389","https://openalex.org/W1720504792","https://openalex.org/W1748703215","https://openalex.org/W1833445980","https://openalex.org/W1875121236","https://openalex.org/W1963949534","https://openalex.org/W1971749549","https://openalex.org/W1972405923","https://openalex.org/W1973974771","https://openalex.org/W1978868323","https://openalex.org/W1982080704","https://openalex.org/W1982835665","https://openalex.org/W1984186949","https://openalex.org/W1986310676","https://openalex.org/W1986608493","https://openalex.org/W1988542471","https://openalex.org/W1989792827","https://openalex.org/W1998669798","https://openalex.org/W2001653954","https://openalex.org/W2002664886","https://openalex.org/W2018748652","https://openalex.org/W2020463609","https://openalex.org/W2023440667","https://openalex.org/W2028482629","https://openalex.org/W2028762003","https://openalex.org/W2028770837","https://openalex.org/W2034625941","https://openalex.org/W2034735276","https://openalex.org/W2037566012","https://openalex.org/W2037918916","https://openalex.org/W2039425019","https://openalex.org/W2041865041","https://openalex.org/W2044347998","https://openalex.org/W2045980118","https://openalex.org/W2055801893","https://openalex.org/W2056718634","https://openalex.org/W2063762546","https://openalex.org/W2069826700","https://openalex.org/W2072371179","https://openalex.org/W2073933499","https://openalex.org/W2081492310","https://openalex.org/W2087089872","https://openalex.org/W2087128127","https://openalex.org/W2094777162","https://openalex.org/W2095084687","https://openalex.org/W2096883943","https://openalex.org/W2119324195","https://openalex.org/W2123505704","https://openalex.org/W2124872896","https://openalex.org/W2126473200","https://openalex.org/W2142949859","https://openalex.org/W2143141990","https://openalex.org/W2144342585","https://openalex.org/W2145950855","https://openalex.org/W2149416757","https://openalex.org/W2150290224","https://openalex.org/W2155030706","https://openalex.org/W2158208054","https://openalex.org/W2158242434","https://openalex.org/W2287388417","https://openalex.org/W2318642034"],"related_works":["https://openalex.org/W2035625157","https://openalex.org/W2007916943","https://openalex.org/W2006247845","https://openalex.org/W4283360002","https://openalex.org/W2348556320","https://openalex.org/W2079597053","https://openalex.org/W2554495646","https://openalex.org/W1996210830","https://openalex.org/W7096159896","https://openalex.org/W2111842925"],"abstract_inverted_index":{"The":[0,105,175,271,280,303,313,333,370,376,392,538],"main":[1,289,384],"aim":[2,62,151,242,355,553],"of":[3,47,63,73,81,95,111,137,152,173,183,193,230,243,253,256,266,282,306,315,335,344,349,356,366,378,413,490,534,543,592,603,610],"this":[4,608],"thesis":[5],"was":[6,41,66,155,246,275,285,359,374,380,407,418,433],"to":[7,28,42,67,87,91,102,133,144,156,210,226,247,277,292,299,360,421,442,444,453,480,499,512,530,554,577,586,599,607],"investigate":[8],"preferences":[9,34,69,158],"for":[10,159,258],"\\nparticipating":[11,367,432],"in":[12,15,75,118,161,199,295,297,322,368,389,472,474,547,564,595,597],"treatment":[13,21,55,76,461,475,548,565],"decision-making":[14,53,596],"patients":[16,82,113],"with":[17,83,131,169,224,398,405,446,579],"colorectal":[18],"\\ncancer":[19],"before":[20,164,179,208,233],"and":[22,27,35,49,56,86,97,139,165,186,250,310,324,328,347,362,400,415,417,428,439,462,476,517,521,536,549,559,566,589],"at":[23,187,236],"a":[24,79,115,259,330,410,447,532,544,573],"one-year":[25,166,189,212,260],"followup":[26],"compare":[29,157],"the":[30,44,71,89,92,98,103,112,128,134,140,145,170,184,188,194,211,221,227,254,264,268,283,288,336,364,383,425,436,455,460,491,495,500,524,528],"\\nrelationship":[31],"between":[32,220,424],"these":[33],"coping":[36],"factors.":[37,506],"An":[38],"additional":[39],"\\naim":[40],"explore":[43,248,361],"patients'":[45,93,135,171,195,228],"meaning":[46,99,141,255,281,294,496],"illness":[48,261,284,296,501],"their":[50],"experiences":[51,365],"\\nof":[52],"concerning":[54],"care.":[57],"\\n":[58,59,60,147,148,149,238,239,240,351,352,353,465,466,467],"\\nThe":[61,150,241,354],"study":[64,153,244,357],"I":[65],"examine":[68],"about":[70,523],"degree":[72],"\\nparticipation":[74,388],"decisions":[77,163,445],"among":[78],"group":[80],"\\ncolorectal":[84],"cancer":[85,269],"relate":[88],"results":[90,106,176],"sense":[94,136,229,533],"\\ncoherence":[96,138],"they":[100,142],"attributed":[101,143],"disease.":[104,146],"\\nshow":[107],"that":[108,178,541],"62":[109],"%":[110,182,192],"preferred":[114,129,196,205,222],"collaborative":[116],"role":[117],"\\ntreatment":[119,162],"decisions.":[120,369],"There":[121],"were":[122,215],"no":[123,216],"statistically":[124,217],"significant":[125,218],"differences":[126,219],"\\nbetween":[127],"roles":[130,198,206],"respect":[132,225],"II":[154],"participation":[160,379,399,473,546,563,594],"after":[167],"surgery":[168,180,209],"\\nsense":[172],"coherence.":[174],"show":[177],"71":[181],"\\npatients":[185],"follow-up":[190],"75":[191],"\\ncollaborative":[197],"decision-making.":[200],"Sixty-four":[201],"percent":[202],"maintained":[203],"\\ntheir":[204,488,580],"from":[207],"follow-up.":[213,237],"\\nThere":[214],"\\nroles":[223],"coherence":[231,535],"either":[232],"\\nsurgery":[234],"or":[235,458,556],"III":[245],"emotional":[249,301,605],"interactional":[251],"\\nperspectives":[252],"illness,":[257],"period":[262],"\\nfrom":[263],"time":[265],"receiving":[267],"diagnosis.":[270],"constant":[272,371],"comparative":[273,372],"\\nmethod":[274],"used":[276],"analyse":[278],"data.":[279],"expressed":[286],"\\nin":[287],"theme,":[290],"'Attempting":[291],"find":[293],"order":[298],"\\nachieve":[300],"coherence'.":[302],"theme":[304,385,393],"consists":[305],"two":[307,395],"dimensions;":[308],"\\nunified":[309],"dichotomised":[311,337],"embodiment.":[312],"sub-themes":[314,334],"unified":[316],"embodiment":[317,339],"\\ndimension":[318,338],"were:":[319],"gratefulness,":[320],"confidence":[321],"oneself":[323],"others,":[325],"looking":[326],"\\nforward,":[327],"creating":[329],"new":[331],"future.":[332],"were;":[340],"altered":[341],"self-worth,":[342],"loss":[343,348],"temporality,":[345],"\\ninfringement,":[346],"integrity.":[350],"IV":[358],"conceptualise":[363],"method":[373],"used.":[375],"\\nconcept":[377],"formulated":[381],"into":[382],"as":[386,502,504,572],"'Compliant":[387],"serious":[390],"decisions'.":[391],"comprised":[394],"variations:":[396],"\\ncomplying":[397],"complying":[401],"without":[402,431,450],"participation.":[403],"\\nComplying":[404],"participating":[406],"characterised":[408,434],"by":[409,435,483],"high":[411],"level":[412],"\\nselfconfidence":[414],"selfcompetence":[416],"associated":[419],"refers":[420],"open":[422,516],"\\ndialogues":[423],"participant,":[426],"physician":[427],"nurse.":[429],"Complying":[430],"participants'":[437],"uncertainty":[438],"\\nbeing":[440],"urged":[441],"submit":[443],"minimum":[448],"delay":[449],"having":[451],"\\ntime":[452],"consider":[454],"information":[456,493,520],"provided":[457],"influence":[459],"\\ncare":[463],"process.":[464],"\\nConclusion:":[468],"A":[469],"patient's":[470,545],"preference":[471],"care":[477,550,567],"\\ndecision-making":[478,551],"seems":[479],"be":[481],"preconditioned":[482],"many":[484],"factors,":[485],"above":[486],"all":[487],"understanding":[489],"situation,":[492],"attained,":[494],"\\nthey":[497],"ascribe":[498],"well":[503],"interpersonal":[505],"To":[507],"\\nparticipate":[508],"(or":[509],"choosing":[510],"not":[511],"participate)":[513],"builds":[514],"on":[515],"affirming":[518],"\\ndialogues,":[519],"knowledge":[522],"illness.":[525,581],"This":[526],"helps":[527],"\\npatient":[529],"experience":[531],"selfcontrol.":[537],"findings":[539],"\\nsuggest":[540],"support":[542,606],"should":[552],"minimise":[555],"prevent":[557],"distress":[558],"\\nuncertainty.":[560],"Increased":[561],"patient":[562,593],"\\ndecision":[568],"making":[569],"is":[570,584],"interpreted":[571],"health":[574],"promoting":[575],"way":[576],"cope":[578],"Further":[582],"research":[583],"required":[585],"illuminate":[587],"social":[588],"\\ninterpersonal":[590],"aspects":[591],"\\norder":[598],"develop":[600],"appropriate":[601],"ways":[602],"providing":[604],"\\ngroup":[609],"patients.":[611]},"counts_by_year":[],"updated_date":"2026-09-26T08:19:03.415552","created_date":"2016-06-24T00:00:00"}
