{"id":"https://openalex.org/W1566569150","doi":null,"title":"The development and validation of a patient-reported outcome measure of health-related quality of life for patients with pressure ulcers : PUQOL Project","display_name":"The development and validation of a patient-reported outcome measure of health-related quality of life for patients with pressure ulcers : PUQOL Project","publication_year":2011,"publication_date":"2011-09-01","ids":{"openalex":"https://openalex.org/W1566569150","mag":"1566569150"},"language":"en","primary_location":{"id":"pmh:oai:etheses.whiterose.ac.uk:2422","doi":null,"is_oa":true,"landing_page_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","pdf_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","source":{"id":"https://openalex.org/S4306401585","display_name":"White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2800616092","host_organization_name":"White Rose University Consortium","host_organization_lineage":["https://openalex.org/I2800616092"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5109804196","display_name":"Claudia Gorecki","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Claudia Gorecki","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5109804196"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":6,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11670","display_name":"Pressure Ulcer Prevention and Management","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/2708","display_name":"Dermatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11670","display_name":"Pressure Ulcer Prevention and Management","score":0.9932000041007996,"subfield":{"id":"https://openalex.org/subfields/2708","display_name":"Dermatology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13117","display_name":"Health Education and Validation","score":0.0007999999797903001,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/pressure-ulcers","display_name":"pressure ulcers","score":0.9990000128746033},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9599999785423279},{"id":"https://openalex.org/keywords/patient-reported-outcome-measures","display_name":"patient-reported outcome measures","score":0.8980000019073486},{"id":"https://openalex.org/keywords/instrument-development","display_name":"instrument development","score":0.6510000228881836},{"id":"https://openalex.org/keywords/rasch-measurement","display_name":"Rasch measurement","score":0.9399999976158142},{"id":"https://openalex.org/keywords/psychometric-validation","display_name":"psychometric validation","score":0.7170000076293945},{"id":"https://openalex.org/keywords/physical-functioning","display_name":"physical function","score":0.6060000061988831},{"id":"https://openalex.org/keywords/psychological-well-being","display_name":"psychological well-being","score":0.996999979019165},{"id":"https://openalex.org/keywords/social-participation-health-and-rehabilitation","display_name":"social participation (health and rehabilitation)","score":0.996999979019165},{"id":"https://openalex.org/keywords/patient-decision-making","display_name":"patient decision-making","score":0.4309999942779541},{"id":"https://openalex.org/keywords/quality-of-care-monitoring","display_name":"quality of care monitoring","score":0.7409999966621399}],"concepts":[{"id":"https://openalex.org/C101266164","wikidata":"https://www.wikidata.org/wiki/Q2131821","display_name":"Rasch model","level":2,"score":0.797057032585144},{"id":"https://openalex.org/C199521495","wikidata":"https://www.wikidata.org/wiki/Q181487","display_name":"Audit","level":2,"score":0.6548900008201599},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5921754240989685},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5614041090011597},{"id":"https://openalex.org/C2779517570","wikidata":"https://www.wikidata.org/wiki/Q7144954","display_name":"Patient-reported outcome","level":3,"score":0.48933857679367065},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.48707273602485657},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.46475329995155334},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.44851213693618774},{"id":"https://openalex.org/C539667460","wikidata":"https://www.wikidata.org/wiki/Q2414942","display_name":"Management science","level":1,"score":0.36190372705459595},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3591398000717163},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.34742534160614014},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.34209853410720825},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3255174160003662},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.20045003294944763},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.15624481439590454},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.13582804799079895},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C121955636","wikidata":"https://www.wikidata.org/wiki/Q4116214","display_name":"Accounting","level":1,"score":0.0},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.0}],"mesh":[],"locations_count":4,"locations":[{"id":"pmh:oai:etheses.whiterose.ac.uk:2422","doi":null,"is_oa":true,"landing_page_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","pdf_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","source":{"id":"https://openalex.org/S4306401585","display_name":"White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2800616092","host_organization_name":"White Rose University Consortium","host_organization_lineage":["https://openalex.org/I2800616092"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},{"id":"pmh:oai:uilis.unsyiah.ac.id:14093","doi":null,"is_oa":true,"landing_page_url":"http://uilis.unsyiah.ac.id/opentheses/items/show/14093","pdf_url":"http://uilis.unsyiah.ac.id/opentheses/items/show/14093","source":{"id":"https://openalex.org/S4377196378","display_name":"UPT. Syiah Kuala University Library (Syiah Kuala University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I187494767","host_organization_name":"Universitas Syiah Kuala","host_organization_lineage":["https://openalex.org/I187494767"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},{"id":"pmh:hdl:10068/995460","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10068/995460","pdf_url":null,"source":{"id":"https://openalex.org/S4377196900","display_name":"OpenGrey (Institut de l'Information Scientifique et Technique)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1295345811","host_organization_name":"Institut de l'Information Scientifique et Technique","host_organization_lineage":["https://openalex.org/I1295345811"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"U - Thesis"},{"id":"mag:1566569150","doi":null,"is_oa":false,"landing_page_url":"https://etheses.whiterose.ac.uk/2422/","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:etheses.whiterose.ac.uk:2422","doi":null,"is_oa":true,"landing_page_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","pdf_url":"http://etheses.whiterose.ac.uk/2422/3/Full_thesis_2_0_FINAL_NFC.pdf","source":{"id":"https://openalex.org/S4306401585","display_name":"White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I2800616092","host_organization_name":"White Rose University Consortium","host_organization_lineage":["https://openalex.org/I2800616092"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320319990","display_name":"National Institute for Health and Care Research","ror":"https://ror.org/0187kwz08"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W1566569150.pdf","grobid_xml":"https://content.openalex.org/works/W1566569150.grobid-xml"},"referenced_works_count":284,"referenced_works":["https://openalex.org/W12275852","https://openalex.org/W21608398","https://openalex.org/W35373074","https://openalex.org/W45419464","https://openalex.org/W81497326","https://openalex.org/W89224102","https://openalex.org/W104736325","https://openalex.org/W107339950","https://openalex.org/W121238503","https://openalex.org/W122071364","https://openalex.org/W161360644","https://openalex.org/W187865126","https://openalex.org/W192999634","https://openalex.org/W228126680","https://openalex.org/W580500858","https://openalex.org/W586302590","https://openalex.org/W595016578","https://openalex.org/W1411830207","https://openalex.org/W1484864026","https://openalex.org/W1492681742","https://openalex.org/W1493773294","https://openalex.org/W1498337915","https://openalex.org/W1507538175","https://openalex.org/W1509473538","https://openalex.org/W1537544985","https://openalex.org/W1544164856","https://openalex.org/W1551968377","https://openalex.org/W1564392956","https://openalex.org/W1577524338","https://openalex.org/W1578545771","https://openalex.org/W1581136346","https://openalex.org/W1586414640","https://openalex.org/W1588965071","https://openalex.org/W1594042954","https://openalex.org/W1595046345","https://openalex.org/W1600562067","https://openalex.org/W1603783125","https://openalex.org/W1604705633","https://openalex.org/W1628226928","https://openalex.org/W1655534105","https://openalex.org/W1658908529","https://openalex.org/W1853602163","https://openalex.org/W1869362176","https://openalex.org/W1914452183","https://openalex.org/W1941898768","https://openalex.org/W1963824520","https://openalex.org/W1964016544","https://openalex.org/W1964033072","https://openalex.org/W1964218847","https://openalex.org/W1964749510","https://openalex.org/W1964816436","https://openalex.org/W1967727461","https://openalex.org/W1968396338","https://openalex.org/W1968837953","https://openalex.org/W1970846337","https://openalex.org/W1971144995","https://openalex.org/W1971681803","https://openalex.org/W1971801927","https://openalex.org/W1973185874","https://openalex.org/W1974562534","https://openalex.org/W1975420214","https://openalex.org/W1976220763","https://openalex.org/W1977571789","https://openalex.org/W1979290264","https://openalex.org/W1979481991","https://openalex.org/W1980025493","https://openalex.org/W1980906239","https://openalex.org/W1981722242","https://openalex.org/W1983870506","https://openalex.org/W1984809543","https://openalex.org/W1985460678","https://openalex.org/W1985554918","https://openalex.org/W1987445308","https://openalex.org/W1987604705","https://openalex.org/W1989163567","https://openalex.org/W1989298714","https://openalex.org/W1989746005","https://openalex.org/W1992026647","https://openalex.org/W1993355540","https://openalex.org/W1994890664","https://openalex.org/W1995250611","https://openalex.org/W1995617856","https://openalex.org/W1996784517","https://openalex.org/W1997253732","https://openalex.org/W1998890075","https://openalex.org/W2000917923","https://openalex.org/W2002374310","https://openalex.org/W2003446392","https://openalex.org/W2004460054","https://openalex.org/W2004847643","https://openalex.org/W2009272436","https://openalex.org/W2009591781","https://openalex.org/W2009811952","https://openalex.org/W2012582298","https://openalex.org/W2012894674","https://openalex.org/W2013700562","https://openalex.org/W2013851543","https://openalex.org/W2015166934","https://openalex.org/W2015583354","https://openalex.org/W2017391495","https://openalex.org/W2019398887","https://openalex.org/W2021120388","https://openalex.org/W2023485969","https://openalex.org/W2023599146","https://openalex.org/W2024153906","https://openalex.org/W2024509488","https://openalex.org/W2025557874","https://openalex.org/W2028542810","https://openalex.org/W2030993903","https://openalex.org/W2034092396","https://openalex.org/W2034942939","https://openalex.org/W2035538583","https://openalex.org/W2037179492","https://openalex.org/W2037377025","https://openalex.org/W2037519190","https://openalex.org/W2037750876","https://openalex.org/W2040303941","https://openalex.org/W2040372064","https://openalex.org/W2040796623","https://openalex.org/W2041656211","https://openalex.org/W2041853216","https://openalex.org/W2043348492","https://openalex.org/W2045254462","https://openalex.org/W2045734984","https://openalex.org/W2046405081","https://openalex.org/W2047474682","https://openalex.org/W2049857239","https://openalex.org/W2050297321","https://openalex.org/W2051039162","https://openalex.org/W2051143449","https://openalex.org/W2052403451","https://openalex.org/W2053154970","https://openalex.org/W2056894956","https://openalex.org/W2057219742","https://openalex.org/W2058072196","https://openalex.org/W2058187469","https://openalex.org/W2058407709","https://openalex.org/W2060730244","https://openalex.org/W2061339665","https://openalex.org/W2061426354","https://openalex.org/W2062644381","https://openalex.org/W2063923378","https://openalex.org/W2064446439","https://openalex.org/W2065401305","https://openalex.org/W2065731825","https://openalex.org/W2066301387","https://openalex.org/W2066382922","https://openalex.org/W2067724039","https://openalex.org/W2068013776","https://openalex.org/W2068531129","https://openalex.org/W2069095722","https://openalex.org/W2069650657","https://openalex.org/W2069892262","https://openalex.org/W2070306496","https://openalex.org/W2070729991","https://openalex.org/W2073819054","https://openalex.org/W2073991363","https://openalex.org/W2077665322","https://openalex.org/W2078802858","https://openalex.org/W2079491620","https://openalex.org/W2079828373","https://openalex.org/W2083845154","https://openalex.org/W2084605636","https://openalex.org/W2085202758","https://openalex.org/W2086137808","https://openalex.org/W2086687292","https://openalex.org/W2087514136","https://openalex.org/W2087547305","https://openalex.org/W2087614009","https://openalex.org/W2088085542","https://openalex.org/W2089152237","https://openalex.org/W2090247445","https://openalex.org/W2094475537","https://openalex.org/W2096752855","https://openalex.org/W2101274089","https://openalex.org/W2101567646","https://openalex.org/W2103829303","https://openalex.org/W2104000083","https://openalex.org/W2104178917","https://openalex.org/W2104752977","https://openalex.org/W2108307581","https://openalex.org/W2109305774","https://openalex.org/W2110624941","https://openalex.org/W2111329151","https://openalex.org/W2111622678","https://openalex.org/W2111700774","https://openalex.org/W2112644131","https://openalex.org/W2113209792","https://openalex.org/W2113780498","https://openalex.org/W2115495766","https://openalex.org/W2116044955","https://openalex.org/W2116409392","https://openalex.org/W2116654531","https://openalex.org/W2117524179","https://openalex.org/W2117891525","https://openalex.org/W2120836888","https://openalex.org/W2120960851","https://openalex.org/W2121130539","https://openalex.org/W2122328334","https://openalex.org/W2123018963","https://openalex.org/W2126737632","https://openalex.org/W2126843316","https://openalex.org/W2127374659","https://openalex.org/W2127468653","https://openalex.org/W2131192446","https://openalex.org/W2134551844","https://openalex.org/W2135041929","https://openalex.org/W2135134136","https://openalex.org/W2136784795","https://openalex.org/W2137151134","https://openalex.org/W2138130404","https://openalex.org/W2138826734","https://openalex.org/W2139936113","https://openalex.org/W2142081066","https://openalex.org/W2142225512","https://openalex.org/W2142507445","https://openalex.org/W2143488726","https://openalex.org/W2144929301","https://openalex.org/W2145094312","https://openalex.org/W2146098954","https://openalex.org/W2146473669","https://openalex.org/W2147703164","https://openalex.org/W2148264995","https://openalex.org/W2148666746","https://openalex.org/W2148750071","https://openalex.org/W2149103558","https://openalex.org/W2151186028","https://openalex.org/W2151299853","https://openalex.org/W2153037374","https://openalex.org/W2153222072","https://openalex.org/W2153690762","https://openalex.org/W2153865797","https://openalex.org/W2155145445","https://openalex.org/W2155917496","https://openalex.org/W2156000474","https://openalex.org/W2156483942","https://openalex.org/W2156956583","https://openalex.org/W2158361633","https://openalex.org/W2159108226","https://openalex.org/W2159306398","https://openalex.org/W2159897062","https://openalex.org/W2160825483","https://openalex.org/W2161777512","https://openalex.org/W2163221773","https://openalex.org/W2164609322","https://openalex.org/W2164777277","https://openalex.org/W2164788536","https://openalex.org/W2166770399","https://openalex.org/W2167957477","https://openalex.org/W2169233645","https://openalex.org/W2170492918","https://openalex.org/W2171720443","https://openalex.org/W2171762906","https://openalex.org/W2172151487","https://openalex.org/W2232889091","https://openalex.org/W2244324403","https://openalex.org/W2254959387","https://openalex.org/W2261506502","https://openalex.org/W2274753333","https://openalex.org/W2313710689","https://openalex.org/W2322584079","https://openalex.org/W2326214720","https://openalex.org/W2396319892","https://openalex.org/W2402590919","https://openalex.org/W2411690844","https://openalex.org/W2413405930","https://openalex.org/W2487771425","https://openalex.org/W2506495997","https://openalex.org/W2510676978","https://openalex.org/W2517976559","https://openalex.org/W2528744350","https://openalex.org/W2560331420","https://openalex.org/W2560660962","https://openalex.org/W2614657141","https://openalex.org/W2766767333","https://openalex.org/W2784184130","https://openalex.org/W2790841064","https://openalex.org/W2991852645","https://openalex.org/W3003342077","https://openalex.org/W3047398590","https://openalex.org/W3141544461","https://openalex.org/W3215487237","https://openalex.org/W4239268392","https://openalex.org/W4246147341"],"related_works":["https://openalex.org/W2096014313","https://openalex.org/W2904400729","https://openalex.org/W6958809774","https://openalex.org/W6921087497","https://openalex.org/W6958697460","https://openalex.org/W2416046728","https://openalex.org/W6939969134","https://openalex.org/W2084102355","https://openalex.org/W568048112","https://openalex.org/W2116654531"],"abstract_inverted_index":{"This":[0,60,137,231],"thesis":[1,29,61],"aimed":[2],"to":[3,142,205,209,218,245],"establish":[4],"the":[5,19,58,143,166,172,181,187,194,197,211,222,228,234,249,285],"impact":[6,65,177],"of":[7,14,34,42,106,128,175,183,199,224,248,252,266],"pressure":[8],"ulcers":[9],"(PUs)":[10],"on":[11],"health-related":[12],"quality":[13,223],"life":[15],"(HRQL)":[16],"and":[17,38,40,50,67,87,91,112,130,145,178,196,217,220,271,274,278],"determine":[18],"need":[20,70],"for":[21,47,71,74,95,116,121,132,161,171,179,215,292],"a":[22,35,43,163,169,288],"PU-specific":[23,44],"patient-reported":[24],"outcome":[25],"(PRO)":[26],"instrument.":[27],"The":[28,81,150],"comprises":[30],"literature":[31],"reviews,":[32],"development":[33,39],"conceptual":[36],"framework":[37],"evaluation":[41],"PRO":[45,164],"(PU-QOLI)":[46],"future":[48],"research":[49,138,242],"clinical":[51,289],"practice.":[52],"Methodological":[53],"developments":[54],"were":[55,159],"woven":[56],"into":[57],"research.":[59],"demonstrates":[62],"that":[63,153],"PUs":[64],"HRQL":[66],"there":[68],"is":[69,119,243],"standardised":[72],"methods":[73,90],"assessing":[75],"health":[76,147,207],"outcomes":[77,105],"important":[78,140],"in":[79,123,193,227,260,268],"PUs.":[80],"PU-QOLI":[82,167,253,286],"was":[83,233],"developed":[84],"using":[85],"qualitative":[86],"quantitative":[88],"psychometric":[89],"meets":[92],"international":[93],"standards":[94],"rigorous":[96],"measurement.":[97],"Individual":[98],"scales":[99],"can":[100],"be":[101],"selected":[102],"from":[103,186],"10":[104],"PU-symptoms,":[107],"physical":[108],"functioning,":[109],"psychological":[110],"well-being,":[111],"social":[113],"participation,":[114],"intended":[115,291],"interview-administration.":[117],"It":[118],"appropriate":[120],"use":[122,198,267],"adults":[124],"with":[125],"any":[126],"type":[127],"PU":[129,144,176,184,229],"suitable":[131,160],"all":[133],"UK":[134],"healthcare":[135,214],"settings.":[136],"makes":[139],"contributions":[141],"wider":[146],"measurement":[148,239,250],"fields.":[149],"findings":[151,259],"demonstrate":[152],"mixed":[154],"methods,":[155],"including":[156],"Rasch":[157],"measurement,":[158],"developing":[162,284],"instrument,":[165],"provides":[168],"means":[170],"comprehensive":[173],"assessment":[174],"quantifying":[180],"benefits":[182],"interventions":[185],"patient\u201fs":[188],"perspective,":[189],"thus":[190],"far":[191],"lacking":[192],"area,":[195],"PROs":[200],"will":[201],"provide":[202],"evidence-based":[203],"information":[204],"allow":[206],"authorities":[208],"select":[210],"most":[212],"effective":[213],"patients":[216],"audit":[219],"monitor":[221],"care":[225],"given":[226],"field.":[230],"work":[232],"first":[235],"step":[236],"towards":[237],"establishing":[238],"precision.":[240],"Further":[241],"needed":[244],"improve":[246],"some":[247],"properties":[251],"scales,":[254],"assess":[255],"responsiveness,":[256],"confirm":[257],"study":[258],"an":[261],"independent":[262],"sample,":[263],"investigate":[264],"feasibility":[265],"specific":[269],"subgroups":[270],"economic":[272],"evaluation,":[273],"develop":[275],"proxy":[276],"measures":[277],"language":[279],"translations.":[280],"Long-term":[281],"goals":[282],"include":[283],"as":[287],"tool":[290],"individual-patient":[293],"decision":[294],"making.":[295]},"counts_by_year":[{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2019,"cited_by_count":1},{"year":2018,"cited_by_count":1},{"year":2016,"cited_by_count":1},{"year":2014,"cited_by_count":1}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}
