{"id":"https://openalex.org/W1533473370","doi":null,"title":"Adaptation of informal care relationships following Acquired Brain Injury","display_name":"Adaptation of informal care relationships following Acquired Brain Injury","publication_year":2012,"publication_date":"2012-01-01","ids":{"openalex":"https://openalex.org/W1533473370","mag":"1533473370"},"language":"en","primary_location":{"id":"pmh:oai:dspace.stir.ac.uk:1893/11094","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1893/11094","pdf_url":"http://dspace.stir.ac.uk/bitstream/1893/11094/1/Helen%20Moore%201721038%20PhD%20Thesis%202012.pdf","source":{"id":"https://openalex.org/S4306400268","display_name":"Stirling Online Research Repository (University of Stirling)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I12093191","host_organization_name":"University of Stirling","host_organization_lineage":["https://openalex.org/I12093191"],"host_organization_lineage_names":[],"type":"repository"},"license":"public-domain","license_id":"https://openalex.org/licenses/public-domain","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://dspace.stir.ac.uk/bitstream/1893/11094/1/Helen%20Moore%201721038%20PhD%20Thesis%202012.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Helen Moore","orcid":"https://orcid.org/0000-0001-6508-7424","observed_orcids":["https://orcid.org/0000-0001-6508-7424"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Helen Moore","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-6508-7424","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10416","display_name":"Traumatic Brain Injury Research","score":0.6122999787330627,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10416","display_name":"Traumatic Brain Injury Research","score":0.6122999787330627,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.2281000018119812,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.04309999942779541,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/acquired-brain-injury","display_name":"acquired brain injury","score":0.8980000019073486},{"id":"https://openalex.org/keywords/informal-caregivers","display_name":"informal caregivers","score":0.8169999718666077},{"id":"https://openalex.org/keywords/carer-identity","display_name":"carer identity","score":0.9259999990463257},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.421999990940094},{"id":"https://openalex.org/keywords/disability-identity","display_name":"disability identity","score":0.4519999921321869},{"id":"https://openalex.org/keywords/caregiver-patient-relationship","display_name":"caregiver-patient relationship","score":0.3799999952316284},{"id":"https://openalex.org/keywords/scaffolding","display_name":"scaffolding","score":0.9549999833106995},{"id":"https://openalex.org/keywords/disability-living-allowance","display_name":"Disability Living Allowance","score":0.8629999756813049},{"id":"https://openalex.org/keywords/caregiver-support-groups","display_name":"caregiver support groups","score":0.35899999737739563},{"id":"https://openalex.org/keywords/dyadic-interaction","display_name":"dyadic interaction","score":0.3370000123977661}],"concepts":[{"id":"https://openalex.org/C2779224077","wikidata":"https://www.wikidata.org/wiki/Q4674782","display_name":"Acquired brain injury","level":3,"score":0.6407256126403809},{"id":"https://openalex.org/C139807058","wikidata":"https://www.wikidata.org/wiki/Q352374","display_name":"Adaptation (eye)","level":2,"score":0.63694828748703},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.40362676978111267},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3699274957180023},{"id":"https://openalex.org/C169760540","wikidata":"https://www.wikidata.org/wiki/Q207011","display_name":"Neuroscience","level":1,"score":0.32343876361846924},{"id":"https://openalex.org/C2778818304","wikidata":"https://www.wikidata.org/wiki/Q1819478","display_name":"Rehabilitation","level":2,"score":0.18057188391685486}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:dspace.stir.ac.uk:1893/11094","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1893/11094","pdf_url":"http://dspace.stir.ac.uk/bitstream/1893/11094/1/Helen%20Moore%201721038%20PhD%20Thesis%202012.pdf","source":{"id":"https://openalex.org/S4306400268","display_name":"Stirling Online Research Repository (University of Stirling)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I12093191","host_organization_name":"University of Stirling","host_organization_lineage":["https://openalex.org/I12093191"],"host_organization_lineage_names":[],"type":"repository"},"license":"public-domain","license_id":"https://openalex.org/licenses/public-domain","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},{"id":"mag:1533473370","doi":null,"is_oa":false,"landing_page_url":"https://dspace.stir.ac.uk/bitstream/1893/11094/1/Helen%20Moore%201721038%20PhD%20Thesis%202012.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:dspace.stir.ac.uk:1893/11094","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/1893/11094","pdf_url":"http://dspace.stir.ac.uk/bitstream/1893/11094/1/Helen%20Moore%201721038%20PhD%20Thesis%202012.pdf","source":{"id":"https://openalex.org/S4306400268","display_name":"Stirling Online Research Repository (University of Stirling)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I12093191","host_organization_name":"University of Stirling","host_organization_lineage":["https://openalex.org/I12093191"],"host_organization_lineage_names":[],"type":"repository"},"license":"public-domain","license_id":"https://openalex.org/licenses/public-domain","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},"sustainable_development_goals":[{"score":0.9391000270843506,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"},{"score":0.7365999817848206,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320321096","display_name":"University of Stirling","ror":"https://ror.org/045wgfr59"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W1533473370.pdf","grobid_xml":"https://content.openalex.org/works/W1533473370.grobid-xml"},"referenced_works_count":200,"referenced_works":["https://openalex.org/W1103879","https://openalex.org/W4275762","https://openalex.org/W92679810","https://openalex.org/W160705576","https://openalex.org/W197645440","https://openalex.org/W307618196","https://openalex.org/W393180982","https://openalex.org/W573631758","https://openalex.org/W588910165","https://openalex.org/W622386309","https://openalex.org/W636286863","https://openalex.org/W659625159","https://openalex.org/W746395452","https://openalex.org/W1504678047","https://openalex.org/W1532372023","https://openalex.org/W1543243825","https://openalex.org/W1566006885","https://openalex.org/W1572365269","https://openalex.org/W1578604245","https://openalex.org/W1608777487","https://openalex.org/W1697719804","https://openalex.org/W1756429714","https://openalex.org/W1882290130","https://openalex.org/W1965563984","https://openalex.org/W1967966396","https://openalex.org/W1968889708","https://openalex.org/W1970061980","https://openalex.org/W1970209023","https://openalex.org/W1970530776","https://openalex.org/W1970784131","https://openalex.org/W1972333622","https://openalex.org/W1974020160","https://openalex.org/W1977421054","https://openalex.org/W1978830176","https://openalex.org/W1981746926","https://openalex.org/W1984040672","https://openalex.org/W1984398013","https://openalex.org/W1985083883","https://openalex.org/W1985195193","https://openalex.org/W1987138256","https://openalex.org/W1987930784","https://openalex.org/W1989938630","https://openalex.org/W1990376147","https://openalex.org/W1993141767","https://openalex.org/W1993220778","https://openalex.org/W1994169842","https://openalex.org/W1994391291","https://openalex.org/W1994434576","https://openalex.org/W1994909282","https://openalex.org/W1997427448","https://openalex.org/W2003333281","https://openalex.org/W2004578054","https://openalex.org/W2004859351","https://openalex.org/W2007496259","https://openalex.org/W2008182317","https://openalex.org/W2009613010","https://openalex.org/W2009877883","https://openalex.org/W2010641233","https://openalex.org/W2010681077","https://openalex.org/W2011130712","https://openalex.org/W2011904065","https://openalex.org/W2014049610","https://openalex.org/W2014121089","https://openalex.org/W2015104175","https://openalex.org/W2017049435","https://openalex.org/W2020696338","https://openalex.org/W2022040774","https://openalex.org/W2022312395","https://openalex.org/W2022379554","https://openalex.org/W2022768097","https://openalex.org/W2025195386","https://openalex.org/W2027215638","https://openalex.org/W2027721622","https://openalex.org/W2028177538","https://openalex.org/W2029605781","https://openalex.org/W2029876956","https://openalex.org/W2033292389","https://openalex.org/W2034284909","https://openalex.org/W2035443255","https://openalex.org/W2038484894","https://openalex.org/W2038897237","https://openalex.org/W2039079133","https://openalex.org/W2039810785","https://openalex.org/W2041656727","https://openalex.org/W2043814675","https://openalex.org/W2045275231","https://openalex.org/W2045838233","https://openalex.org/W2046308219","https://openalex.org/W2048139211","https://openalex.org/W2048972940","https://openalex.org/W2049191041","https://openalex.org/W2049890080","https://openalex.org/W2050068243","https://openalex.org/W2050911951","https://openalex.org/W2053737195","https://openalex.org/W2055228734","https://openalex.org/W2056897159","https://openalex.org/W2057087087","https://openalex.org/W2059466112","https://openalex.org/W2059879492","https://openalex.org/W2061750049","https://openalex.org/W2062733035","https://openalex.org/W2065596536","https://openalex.org/W2065724104","https://openalex.org/W2066893057","https://openalex.org/W2067277868","https://openalex.org/W2068342347","https://openalex.org/W2069564355","https://openalex.org/W2069906590","https://openalex.org/W2073543087","https://openalex.org/W2073951439","https://openalex.org/W2075139588","https://openalex.org/W2076013820","https://openalex.org/W2077026199","https://openalex.org/W2079508111","https://openalex.org/W2082450928","https://openalex.org/W2082800282","https://openalex.org/W2086183898","https://openalex.org/W2086990238","https://openalex.org/W2087969061","https://openalex.org/W2089444174","https://openalex.org/W2090410945","https://openalex.org/W2092535510","https://openalex.org/W2095144276","https://openalex.org/W2099017354","https://openalex.org/W2101348300","https://openalex.org/W2102544750","https://openalex.org/W2103171527","https://openalex.org/W2104180655","https://openalex.org/W2105716093","https://openalex.org/W2106026823","https://openalex.org/W2107258061","https://openalex.org/W2107786627","https://openalex.org/W2108034908","https://openalex.org/W2108540867","https://openalex.org/W2109153461","https://openalex.org/W2110004568","https://openalex.org/W2113782382","https://openalex.org/W2116314504","https://openalex.org/W2116426434","https://openalex.org/W2119410612","https://openalex.org/W2120248485","https://openalex.org/W2121790431","https://openalex.org/W2124437638","https://openalex.org/W2128320223","https://openalex.org/W2129003851","https://openalex.org/W2134208257","https://openalex.org/W2134232492","https://openalex.org/W2136451825","https://openalex.org/W2137032744","https://openalex.org/W2137375087","https://openalex.org/W2137845228","https://openalex.org/W2138682862","https://openalex.org/W2138794280","https://openalex.org/W2142425652","https://openalex.org/W2142744573","https://openalex.org/W2145483933","https://openalex.org/W2145793489","https://openalex.org/W2145813346","https://openalex.org/W2146314521","https://openalex.org/W2147092776","https://openalex.org/W2148298950","https://openalex.org/W2148318876","https://openalex.org/W2149575581","https://openalex.org/W2150582999","https://openalex.org/W2152581334","https://openalex.org/W2154188220","https://openalex.org/W2156545709","https://openalex.org/W2157641738","https://openalex.org/W2158493971","https://openalex.org/W2159050701","https://openalex.org/W2159210845","https://openalex.org/W2162040794","https://openalex.org/W2162153512","https://openalex.org/W2162812585","https://openalex.org/W2163808732","https://openalex.org/W2165516787","https://openalex.org/W2166281097","https://openalex.org/W2167029214","https://openalex.org/W2167315939","https://openalex.org/W2167853029","https://openalex.org/W2169619824","https://openalex.org/W2171810782","https://openalex.org/W2254930206","https://openalex.org/W2282798787","https://openalex.org/W2284333427","https://openalex.org/W2291400033","https://openalex.org/W2335841795","https://openalex.org/W2474565605","https://openalex.org/W2481456933","https://openalex.org/W2487022057","https://openalex.org/W2499035358","https://openalex.org/W2751379301","https://openalex.org/W2771995552","https://openalex.org/W2945424237","https://openalex.org/W2990792920","https://openalex.org/W3214956175","https://openalex.org/W4213456552","https://openalex.org/W4236052347","https://openalex.org/W4292542163"],"related_works":["https://openalex.org/W7126393520","https://openalex.org/W3092453217","https://openalex.org/W7007643312","https://openalex.org/W7113236277","https://openalex.org/W2896542340","https://openalex.org/W6962925752","https://openalex.org/W7202078099","https://openalex.org/W2760104337","https://openalex.org/W1985762135","https://openalex.org/W2754666381"],"abstract_inverted_index":{"The":[0,22,647],"number":[1,268],"of":[2,13,27,41,67,90,112,190,201,224,231,269,283,302,308,317,321,378,399,402,435,445,461,469,504,508,521,523,539,542,574,605,616,629,649,663,675,686,693,695],"informal":[3,16,28,676],"carers":[4,51,79,98,116,135,152,181,202,225,288,379,476,531,575,584,637],"in":[5,102,126,141,160,206,229,296,467,497,518,571,609,627],"the":[6,11,65,88,110,118,127,142,161,232,241,297,300,319,376,386,397,433,459,462,470,478,490,493,498,502,527,540,543,564,572,590,595,624,640],"UK":[7],"is":[8,392,396,453,510],"rising,":[9],"yet":[10],"dynamics":[12],"care":[14,17,29,677],"within":[15],"relationships":[18,30,654],"remain":[19],"poorly":[20],"understood.":[21],"present":[23],"research":[24,37],"examined":[25],"adaptation":[26],"affected":[31],"by":[32,115,178,530],"Acquired":[33,55],"Brain":[34,56],"Injury.":[35],"\\nThe":[36],"addresses":[38,256,349,439],"four":[39],"pairs":[40],"questions:":[42,173],"(1a)":[43],"Are":[44,72],"there":[45,73],"any":[46,74],"disagreements":[47,75,270],"and/or":[48,76],"misunderstandings":[49,77],"between":[50,78,192,375],"and":[52,80,99,136,180,186,194,203,221,226,259,262,352,355,363,380,430,442,480,483,501,532,534,557,618,634,642,655,688],"people":[53],"with":[54],"Injury":[57],"(PwABI)":[58],"regarding":[59,82,271,366,382,631],"carer":[60,272,393],"identity?":[61,84],"(1b)":[62],"How":[63,86],"can":[64,87,535],"pattern":[66,89,604],"divergences":[68,91,187,401],"be":[69,92,659],"explained?":[70,93],"(2a)":[71],"PwABI":[81,83,100,137,157,179,204,227,367,381,383,405,465,485,533,614,643],"(2b)":[85],"(3a)":[94],"What":[95,132],"strategies":[96,446,499,528],"do":[97,151],"use":[101],"collaboration":[103,524],"on":[104,117,623,653],"a":[105,207,213,219,267,306,315,411,418,450,454,547,603,690],"joint":[106,119,208,451],"task?":[107],"(3b)":[108],"Is":[109],"type":[111],"input":[113],"provided":[114],"task":[120,209,452,463,473],"comparable":[121],"to":[122,139,170,182,279,294,299,332,385,420,516,589,593,600,638,644,658,682],"scaffolding":[123,496,544],"as":[124,314,341,407,417,423,428,621],"described":[125],"child":[128],"development":[129,662],"literature?":[130],"(4a)":[131],"happens":[133],"when":[134,158,562],"collaborate":[138],"fill":[140],"Disability":[143],"Living":[144],"Allowance":[145],"(DLA)":[146],"claim":[147,234],"form?":[148,163],"(4b)":[149],"Why":[150],"see":[153,585],"more":[154,250,325],"disability":[155,578,587,641,664],"than":[156,579],"filling":[159,228],"DLA":[162,233,565],"\\nFour":[164],"mixed-method":[165],"data":[166,237],"sets":[167],"were":[168,247,560,568],"used":[169,529],"answer":[171],"these":[172],"(1)":[174],"numerical":[175],"ratings":[176,265,358],"given":[177],"map":[183],"out":[184],"convergences":[185],"(2)":[188],"videos":[189,200,223],"discussions":[191],"participants":[193],"researcher":[195],"during":[196,661],"rating":[197,388,413],"tasks":[198],"(3)":[199],"engaging":[205],"-":[210],"planning":[211],"inviting":[212],"friend":[214],"or":[215,249],"relative":[216],"round":[217],"for":[218,310,337,495,546],"meal":[220],"(4)":[222],"part":[230],"form.":[235,566,596],"All":[236],"was":[238,373],"collected":[239],"from":[240,329],"same":[242],"28":[243],"PwABI/carer":[244],"dyads":[245],"who":[246],"two":[248],"years":[251],"post":[252],"injury.":[253],"\\nChapter":[254,347,437,552],"4":[255],"questions":[257,350,440,555],"1a":[258],"1b.":[260],"Carers\u2019":[261,354],"PwABIs\u2019":[263,356],"perspective":[264,357,434],"revealed":[266,359],"identity.":[273,368],"Carers":[274,323,457,612],"perceived":[275],"themselves":[276,292,620],"negatively":[277,290],"compared":[278],"their":[280,338],"partners\u2019":[281],"view":[282,617],"them.":[284],"Regarding":[285,369,487,581],"question":[286,370,488,582],"1b,":[287],"feel":[289],"about":[291],"due":[293,384,588],"difficulties":[295],"transition":[298],"role":[301,313],"\u2018carer\u2019.":[303],"They":[304],"experience":[305],"lack":[307],"recognition":[309,336],"this":[311],"caring":[312],"result":[316],"concealing":[318],"burden":[320],"care.":[322],"require":[324],"long":[326],"term":[327],"support":[328,345],"health":[330],"services":[331],"help":[333],"them":[334],"achieve":[335],"role,":[339],"such":[340],"facilitating":[342],"attendance":[343],"at":[344],"groups.":[346],"5":[348],"2a":[351],"2b.":[353],"only":[360],"one":[361],"disagreement":[362],"corresponding":[364],"misunderstanding":[365],"2b,":[371],"alignment":[372],"found":[374],"perspectives":[377,422],"relational":[387,412,669],"method":[389,414],"used.":[390],"It":[391],"identity":[394,406,656],"which":[395,671],"source":[398],"most":[400],"perspective,":[403],"not":[404],"commonly":[408],"assumed.":[409],"Using":[410],"shows":[415,447],"promise":[416],"tool":[419],"explore":[421],"it":[424],"treats":[425],"all":[426],"viewpoints":[427],"equal":[429],"avoids":[431],"pathologising":[432],"PwABI.":[436,580,625],"6":[438],"3a":[441],"3b.":[443],"Analysis":[444],"that":[448],"completing":[449,563,650],"collaborative":[455],"process.":[456],"direct":[458],"background":[460],"but":[464],"are":[466,598],"charge":[468],"foreground,":[471],"making":[472],"decisions.":[474],"However,":[475,506],"dominate":[477],"process":[479],"control":[481],"where":[482],"how":[484],"contribute.":[486],"3b,":[489],"interaction":[491,606],"meets":[492],"criteria":[494],"chosen":[500],"flexibility":[503],"collaboration.":[505],"removal":[507],"supports":[509],"often":[511],"an":[512],"unrealistic":[513],"goal,":[514],"leading":[515],"frustration":[517],"carers.":[519],"Examination":[520],"processes":[522,694],"has":[525],"elucidated":[526],"enhance":[536],"theoretical":[537],"discussion":[538],"applicability":[541],"metaphor":[545],"cognitively":[548],"impaired":[549],"adult":[550],"sample.":[551],"7":[553],"address":[554],"4a":[556],"4b.":[558],"Disagreements":[559],"frequent":[561],"Contestations":[567],"almost":[569],"exclusively":[570],"direction":[573],"seeing":[576],"greater":[577,586,691],"4b,":[583],"communication":[591],"required":[592],"complete":[594],"Dyads":[597],"forced":[599],"confront":[601],"disability,":[602],"they":[607],"avoid":[608],"everyday":[610],"life.":[611],"marginalise":[613],"point":[615],"position":[619],"\u2018expert\u2019":[622],"Differences":[626],"frames":[628],"reference":[630],"audience,":[632],"aim":[633],"scope":[635],"lead":[636],"maximise":[639],"minimise":[645],"this.":[646],"impact":[648],"complex":[651],"forms":[652],"needs":[657],"considered":[660],"benefit":[665],"assessment":[666],"methods.":[667],"\\nA":[668],"approach":[670],"studies":[672],"both":[673],"halves":[674],"partnerships":[678],"simultaneously":[679],"allows":[680],"us":[681],"go":[683],"beyond":[684],"outcomes":[685],"ABI":[687],"affords":[689],"understanding":[692],"adaptation.":[696],"\\n":[697]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}