{"id":"https://openalex.org/W134237613","doi":null,"title":"The public health of disabilities : functional independence, health-related quality of life, and parental stress in adolescents with disabilities","display_name":"The public health of disabilities : functional independence, health-related quality of life, and parental stress in adolescents with disabilities","publication_year":2008,"publication_date":"2008-01-01","ids":{"openalex":"https://openalex.org/W134237613","mag":"134237613"},"language":"en","primary_location":{"id":"pmh:oai:opencommons.uconn.edu:uchcgs_masters-1144","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/uchcgs_masters/145","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=1144&context=uchcgs_masters","source":{"id":"https://openalex.org/S4377196438","display_name":"OpenCommons - UConn (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"UCHC Graduate School Masters Theses 2003 - 2010","raw_type":"text"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=1144&context=uchcgs_masters","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Taylor R. Spencer","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Taylor R. Spencer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.8026999831199646,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.8026999831199646,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11097","display_name":"Cerebral Palsy and Movement Disorders","score":0.12849999964237213,"subfield":{"id":"https://openalex.org/subfields/2742","display_name":"Rehabilitation"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12811","display_name":"Aging, Health, and Disability","score":0.033900000154972076,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/adolescents-with-disabilities","display_name":"adolescents with disabilities","score":0.9449999928474426},{"id":"https://openalex.org/keywords/functional-independence","display_name":"functional independence","score":0.9950000047683716},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9990000128746033},{"id":"https://openalex.org/keywords/parenting-stress","display_name":"parental stress","score":1.0},{"id":"https://openalex.org/keywords/functional-independence-measure","display_name":"Functional Independence Measure","score":0.6570000052452087},{"id":"https://openalex.org/keywords/spina-bifida","display_name":"spina bifida","score":0.8220000267028809},{"id":"https://openalex.org/keywords/cerebral-palsy","display_name":"cerebral palsy","score":0.9940000176429749},{"id":"https://openalex.org/keywords/neuromuscular-disorders","display_name":"neuromuscular disorders","score":0.7649999856948853},{"id":"https://openalex.org/keywords/developmental-disabilities","display_name":"developmental disabilities","score":0.7059999704360962},{"id":"https://openalex.org/keywords/motor-function","display_name":"motor function","score":0.6129999756813049},{"id":"https://openalex.org/keywords/parent-adolescent-relationships","display_name":"parent-adolescent relationships","score":0.5699999928474426}],"concepts":[{"id":"https://openalex.org/C35651441","wikidata":"https://www.wikidata.org/wiki/Q625303","display_name":"Independence (probability theory)","level":2,"score":0.6485989093780518},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5747010707855225},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.5376497507095337},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.512227475643158},{"id":"https://openalex.org/C21036866","wikidata":"https://www.wikidata.org/wiki/Q181767","display_name":"Stress (linguistics)","level":2,"score":0.4369671642780304},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.36106154322624207},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3303583264350891},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.28367364406585693},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0}],"mesh":[],"locations_count":4,"locations":[{"id":"pmh:oai:opencommons.uconn.edu:uchcgs_masters-1144","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/uchcgs_masters/145","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=1144&context=uchcgs_masters","source":{"id":"https://openalex.org/S4377196438","display_name":"OpenCommons - UConn (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"UCHC Graduate School Masters Theses 2003 - 2010","raw_type":"text"},{"id":"pmh:oai:CiteSeerX.psu:10.1.1.915.205","doi":null,"is_oa":false,"landing_page_url":"http://citeseerx.ist.psu.edu/viewdoc/summary?doi=10.1.1.915.205","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"http://digitalcommons.uconn.edu/cgi/viewcontent.cgi?article%3D1144%26context%3Duchcgs_masters","raw_type":"text"},{"id":"pmh:oai:digitalcommons.lib.uconn.edu:uchcgs_masters-1144","doi":null,"is_oa":false,"landing_page_url":"https://digitalcommons.lib.uconn.edu/uchcgs_masters/145","pdf_url":null,"source":{"id":"https://openalex.org/S4306401180","display_name":"OpenCommons at University of Connecticut (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"UCHC Graduate School Masters Theses 2003 - 2010","raw_type":"text"},{"id":"mag:134237613","doi":null,"is_oa":false,"landing_page_url":"http://digitalcommons.uconn.edu/cgi/viewcontent.cgi?article=1144&context=uchcgs_masters","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:opencommons.uconn.edu:uchcgs_masters-1144","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/uchcgs_masters/145","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=1144&context=uchcgs_masters","source":{"id":"https://openalex.org/S4377196438","display_name":"OpenCommons - UConn (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"UCHC Graduate School Masters Theses 2003 - 2010","raw_type":"text"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W134237613.pdf","grobid_xml":"https://content.openalex.org/works/W134237613.grobid-xml"},"referenced_works_count":79,"referenced_works":["https://openalex.org/W206916812","https://openalex.org/W573008160","https://openalex.org/W1513559224","https://openalex.org/W1527402472","https://openalex.org/W1533240928","https://openalex.org/W1535938061","https://openalex.org/W1546393644","https://openalex.org/W1564173202","https://openalex.org/W1627777021","https://openalex.org/W1668967301","https://openalex.org/W1794618071","https://openalex.org/W1801990489","https://openalex.org/W1805498677","https://openalex.org/W1840757539","https://openalex.org/W1957417239","https://openalex.org/W1964012801","https://openalex.org/W1964598592","https://openalex.org/W1965225298","https://openalex.org/W1967595287","https://openalex.org/W1971554929","https://openalex.org/W1977136519","https://openalex.org/W1982778217","https://openalex.org/W1983035483","https://openalex.org/W1983485966","https://openalex.org/W1985264354","https://openalex.org/W1986103478","https://openalex.org/W1987014815","https://openalex.org/W1987445308","https://openalex.org/W1992245571","https://openalex.org/W1993365416","https://openalex.org/W1995007427","https://openalex.org/W1997039242","https://openalex.org/W1998971604","https://openalex.org/W1999723476","https://openalex.org/W2004519044","https://openalex.org/W2014595755","https://openalex.org/W2016719925","https://openalex.org/W2017128293","https://openalex.org/W2018860613","https://openalex.org/W2022614314","https://openalex.org/W2023912062","https://openalex.org/W2028489954","https://openalex.org/W2043888513","https://openalex.org/W2060482102","https://openalex.org/W2061767181","https://openalex.org/W2061849003","https://openalex.org/W2068186057","https://openalex.org/W2069878888","https://openalex.org/W2070639694","https://openalex.org/W2073929404","https://openalex.org/W2080062618","https://openalex.org/W2088496751","https://openalex.org/W2097024559","https://openalex.org/W2102554923","https://openalex.org/W2105640575","https://openalex.org/W2111521308","https://openalex.org/W2125923637","https://openalex.org/W2127599574","https://openalex.org/W2132306575","https://openalex.org/W2132693216","https://openalex.org/W2134928585","https://openalex.org/W2142155833","https://openalex.org/W2142610955","https://openalex.org/W2147899584","https://openalex.org/W2153717228","https://openalex.org/W2155316770","https://openalex.org/W2157441975","https://openalex.org/W2163424852","https://openalex.org/W2170756299","https://openalex.org/W2171721562","https://openalex.org/W2175943880","https://openalex.org/W2313682549","https://openalex.org/W2319189939","https://openalex.org/W2324578271","https://openalex.org/W2331574788","https://openalex.org/W2412769457","https://openalex.org/W2993793021","https://openalex.org/W3214970419","https://openalex.org/W4377995872"],"related_works":["https://openalex.org/W1521488117","https://openalex.org/W3210840627","https://openalex.org/W4381489820","https://openalex.org/W2579636291","https://openalex.org/W4408527112","https://openalex.org/W2118959861","https://openalex.org/W4386877731","https://openalex.org/W1957417239","https://openalex.org/W4409228360","https://openalex.org/W2057641000"],"abstract_inverted_index":{"Background/Objectives:":[0],"To":[1],"investigate":[2],"the":[3,49,157,243,247,256,270,274,305,333,345,353],"null":[4],"hypotheses":[5],"that":[6],"no":[7],"correlation":[8,197,236],"exists":[9,237],"between":[10,238],"functional":[11],"independence,":[12],"health":[13],"related":[14],"quality":[15,135,324,362],"of":[16,24,98,136,145,162,202,211,246,273,325,363],"life,":[17,326],"and":[18,27,36,54,72,91,109,127,175,188,220,241,282,327],"parental":[19,341],"stress\\nDesign:":[20],"Baseline":[21],"cross-sectional":[22],"analysis":[23],"a":[25,142,199,209,233,358],"population\\nParticipants":[26],"Setting:":[28],"Participants":[29],"were":[30,69,82,86,89,191],"recruited":[31],"from":[32,332],"camps,":[33],"wheelchair":[34],"sports,":[35],"disability-related":[37],"meetings.":[38],"They":[39],"are":[40,267],"10-21":[41],"years":[42],"old":[43],"with":[44,63,183,198,294,304,339],"disabilities,":[45],"in":[46,352],"school":[47],"for":[48,130,149,160,269],"prior":[50],"year,":[51],"understand":[52],"English,":[53],"demonstrate":[55],"necessary":[56],"cognitive":[57,112],"comprehension.":[58],"We":[59],"enrolled":[60],"72":[61],"youths,":[62],"39":[64,70],"completing":[65],"all":[66],"components.":[67],"There":[68],"males":[71],"33":[73],"females.":[74],"Fifty":[75],"six":[76],"subjects":[77],"self-identified":[78,93],"as":[79,94],"Caucasian.":[80],"Six":[81],"African":[83],"American,":[84],"5":[85],"Hispanic,":[87],"2":[88],"Asian,":[90],"3":[92],"\u201cother.\u201d":[95],"The":[96,114,290],"range":[97],"diagnoses":[99],"included":[100],"cerebral":[101],"palsy,":[102],"spina":[103,150],"bifida,":[104],"orthopedic":[105],"or":[106,111,255],"neuromuscular":[107],"conditions,":[108],"developmental":[110],"conditions.\\nMaterials/Methods:":[113],"Functional":[115],"Independence":[116],"Measure":[117],"(FIM)":[118],"was":[119,139,154,181,216,222,228],"given":[120],"by":[121,141,156,164],"structured":[122],"interview.":[123],"Dr.":[124],"Leger":[125],"trained":[126],"observed":[128],"interviewers":[129],"inter-rater":[131],"reliability.":[132],"Adolescent":[133,171,257],"health-related":[134,323],"life":[137],"(HRQOL)":[138],"determined":[140],"modified":[143],"version":[144],"Parkin\u2019s":[146],"(1997)":[147],"instrument":[148],"bifida.":[151],"Parental":[152,244],"stress":[153,331,342,351],"evaluated":[155],"Stress":[158],"Index":[159],"Parents":[161],"Adolescents":[163],"Sheras,":[165],"Abidin,":[166],"&":[167],"Konold.":[168],"Results":[169],"include":[170],"Domain,":[172,174],"Parent":[173],"Adolescent-Parent":[176,306],"Relationship":[177,307],"Domain":[178,245,258,308],"score.":[179],"Data":[180],"analyzed":[182],"SPSS":[184],"13.0.":[185],"Central":[186],"tendencies":[187],"bi-variate":[189],"correlations":[190,207,266],"conducted":[192],"using":[193],"two-tailed":[194],"Spearman\u2019s":[195],"rank":[196],"significance":[200],"value":[201],"\u03b1":[203],"\u2264":[204],"0.05.":[205],"Small":[206],"had":[208],"coefficient":[210],"0.10":[212],"to":[213,218,224,344],"0.29,":[214],"medium":[215],"0.30":[217],"0.49,":[219],"large":[221],"0.50":[223],"1.00.\\nResults:":[225],"Statistical":[226],"power":[227],"not":[229],"fully":[230],"reached,":[231],"yet":[232],"near":[234],"significant":[235],"FIM":[239,275,292],"score":[240],"either":[242],"SIPA":[248],"(r=":[249,259,276,296,309],"-0.243,":[250],"N=":[251,261,278,285,298,311],"52,":[252,262,279,286],"p=":[253,263,280,287,300,313],"0.082)":[254],"0.256,":[260],"0.067).":[264],"These":[265],"stronger":[268],"physical":[271,316],"components":[272],"-0.320,":[277],"0.021;":[281],"r=":[283],"0.377,":[284],"0.006":[288],"respectively).":[289],"motor":[291],"correlates":[293,303],"HRQOL":[295,302],"0.358,":[297],"48,":[299],"0.012).":[301],"-0.295,":[310],"41,":[312],"0.061).\\nConclusions/Significance:":[314],"As":[315],"independence":[317],"increases,":[318],"an":[319],"adolescent":[320],"has":[321],"higher":[322],"parents":[328],"have":[329],"less":[330,350],"parenting":[334],"role.":[335],"This":[336],"is":[337,357],"associated":[338],"more":[340],"due":[343],"child\u2019s":[346],"behavior,":[347],"though.":[348],"With":[349],"adolescent-parent":[354],"relationship,":[355],"there":[356],"trend":[359],"towards":[360],"increased":[361],"life.":[364],"(UCHC":[365],"IRB":[366],"#":[367],"05-028)":[368]},"counts_by_year":[],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}
