{"id":"https://openalex.org/W128240455","doi":null,"title":"Improving end-of-life care in the intensive care unit: what's to be learned from outcomes research?","display_name":"Improving end-of-life care in the intensive care unit: what's to be learned from outcomes research?","publication_year":1998,"publication_date":"1998-02-01","ids":{"openalex":"https://openalex.org/W128240455","mag":"128240455","pmid":"https://pubmed.ncbi.nlm.nih.gov/9508265"},"language":"en","primary_location":{"id":"pmid:9508265","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9508265","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"New horizons (Baltimore, Md.)","raw_type":"Journal Article"},"volume":null,"type":"article","indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008883559","display_name":"Marion Danis","orcid":"https://orcid.org/0000-0002-4749-4568","observed_orcids":["https://orcid.org/0000-0002-4749-4568"]},"institutions":[{"id":"https://openalex.org/I1299303238","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238"]},{"id":"https://openalex.org/I4210155647","display_name":"National Institutes of Health Clinical Center","ror":"https://ror.org/04vfsmv21","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210155647"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"M Danis","raw_affiliation_strings":["Department of Clinical Bioethics, Warren G. Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892-1156, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Clinical Bioethics, Warren G. Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892-1156, USA","institution_ids":["https://openalex.org/I1299303238","https://openalex.org/I4210155647"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5008883559"],"corresponding_institution_ids":["https://openalex.org/I1299303238","https://openalex.org/I4210155647"],"apc_list":null,"apc_paid":null,"fwci":0.8644,"has_fulltext":false,"cited_by_count":31,"citation_normalized_percentile":{"value":0.73889329,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":96},"biblio":{"volume":"6","issue":"1","first_page":"110","last_page":"8"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":1.0,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12860","display_name":"Family and Patient Care in Intensive Care Units","score":0.0,"subfield":{"id":"https://openalex.org/subfields/3614","display_name":"Radiological and Ultrasound Technology"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":1.0},{"id":"https://openalex.org/keywords/intensive-care-unit","display_name":"intensive care unit","score":0.9430000185966492},{"id":"https://openalex.org/keywords/dying-patients","display_name":"dying patients","score":0.781000018119812},{"id":"https://openalex.org/keywords/terminal-illness","display_name":"terminal illness","score":0.8119999766349792},{"id":"https://openalex.org/keywords/withdrawal-of-life-sustaining-treatment","display_name":"withdrawal of life-sustaining treatment","score":0.875},{"id":"https://openalex.org/keywords/support-trial","display_name":"SUPPORT trial","score":0.44699999690055847},{"id":"https://openalex.org/keywords/family-communication","display_name":"family communication","score":0.5080000162124634},{"id":"https://openalex.org/keywords/family-contact","display_name":"family contact","score":0.5},{"id":"https://openalex.org/keywords/palliative-care-team","display_name":"palliative care team","score":0.6570000052452087},{"id":"https://openalex.org/keywords/prognostic-information","display_name":"prognostic information","score":0.6079999804496765},{"id":"https://openalex.org/keywords/patient-preferences","display_name":"patient preferences","score":0.5849999785423279},{"id":"https://openalex.org/keywords/symptom-management","display_name":"symptom management","score":0.6240000128746033},{"id":"https://openalex.org/keywords/goals-of-care","display_name":"goals of care","score":0.625},{"id":"https://openalex.org/keywords/care-planning","display_name":"care planning","score":0.3269999921321869},{"id":"https://openalex.org/keywords/clinician-family-communication","display_name":"clinician-family communication","score":0.38999998569488525}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7108500599861145},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.6278478503227234},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.58690345287323},{"id":"https://openalex.org/C2777995714","wikidata":"https://www.wikidata.org/wiki/Q18209059","display_name":"Advance care planning","level":3,"score":0.5460770130157471},{"id":"https://openalex.org/C2776376669","wikidata":"https://www.wikidata.org/wiki/Q5094647","display_name":"Intensive care unit","level":2,"score":0.5433877110481262},{"id":"https://openalex.org/C2987404301","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care","level":2,"score":0.5376582741737366},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.4993908405303955},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.45722973346710205},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.42906326055526733},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.34665101766586304},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007362","descriptor_name":"Intensive Care Units","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D008962","descriptor_name":"Models, Theoretical","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011785","descriptor_name":"Quality Assurance, Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D016223","descriptor_name":"Advance Directives","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017063","descriptor_name":"Outcome Assessment, Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D028761","descriptor_name":"Withholding Treatment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D032722","descriptor_name":"Advance Care Planning","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D035501","descriptor_name":"Uncertainty","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036262","descriptor_name":"Empirical Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"pmid:9508265","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9508265","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"New horizons (Baltimore, Md.)","raw_type":"Journal Article"},{"id":"pmh:oai:repository.library.georgetown.edu:10822/755149","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10822/755149","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BRL:MEDKIE/98167690","raw_type":null},{"id":"pmh:oai:repository.library.georgetown.edu:10822/911478","doi":null,"is_oa":false,"landing_page_url":"http://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Improving+End-of-Life+Care+in+the+Intensive+Care+Unit:+What's+to+Be+Learned+from+Outcomes+Research?&title=New+Horizons+&volume=6&issue=1&spage=110-118&date=1998-02&au=Danis,+Marion","pdf_url":null,"source":{"id":"https://openalex.org/S4306402467","display_name":"DigitalGeorgetown (Georgetown University Library)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210145449","host_organization_name":"Center for Security and Emerging Technology","host_organization_lineage":["https://openalex.org/I4210145449"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"eweb:186872","raw_type":null},{"id":"mag:128240455","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/9508265","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.9907000064849854,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.6600000262260437,"display_name":"Peace, justice, and strong institutions","id":"https://metadata.un.org/sdg/16"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4253085515","https://openalex.org/W4256740479","https://openalex.org/W104774905","https://openalex.org/W2589756936","https://openalex.org/W7214235178","https://openalex.org/W2131807433","https://openalex.org/W1989045208","https://openalex.org/W7095340042","https://openalex.org/W2257521641","https://openalex.org/W2137325786"],"abstract_inverted_index":{"Current":[0],"recommendations":[1,77],"about":[2,103,193],"the":[3,15,29,53,61,79,95,119,174,224,237,259,266,270,293,306,311],"care":[4,51,64,83,112,159,221,245,273,309,315],"of":[5,21,28,39,42,49,63,81,97,110,126,138,140,154,185,204,215,226,258,261,272,283,302,308,313],"dying":[6,23,85,227,238,284,294],"patients":[7,66,156],"advise":[8],"that":[9,89,158,219,253,287],"healthcare":[10],"professionals":[11],"understand":[12],"and":[13,19,25,31,47,56,78,122,146,168,179,183,196,240,247,264,279,290,296,300,304,310],"respect":[14],"goals,":[16],"priorities,":[17],"needs,":[18],"suffering":[20],"each":[22],"patient":[24,101,132,194,295],"have":[26,212],"command":[27],"skills":[30],"resources":[32,128],"required":[33],"to":[34,59,73,93,106,114,150,166,176,223,232,243,268,319],"address":[35],"these":[36],"concerns.":[37],"Studies":[38],"important":[40],"features":[41],"terminal":[43],"illness,":[44],"current":[45],"use":[46],"outcome":[48,62],"intensive":[50,111],"for":[52,65,84,181,198],"terminally":[54],"ill,":[55],"interventions":[57],"designed":[58],"improve":[60],"who":[67],"die":[68],"in":[69,317],"ICUs":[70],"are":[71],"reviewed":[72],"examine":[74],"discrepancies":[75],"between":[76,292],"reality":[80],"ICU":[82],"patients.":[86],"Evidence":[87],"indicates":[88],"it":[90],"is":[91,123],"difficult":[92],"predict":[94],"time":[96],"death":[98,115,263],"or":[99,134],"determine":[100],"preferences":[102,197],"treatment":[104,142],"prior":[105,113],"death.":[107],"The":[108,136,170],"utilization":[109],"varies":[116,144],"widely":[117,145],"across":[118],"United":[120],"States":[121],"a":[124,229],"function":[125],"available":[127],"more":[129],"than":[130],"individual":[131],"need":[133,267],"choice.":[135],"pattern":[137],"withdrawal":[139],"life-sustaining":[141],"also":[143],"does":[147],"not":[148,201],"seem":[149],"follow":[151],"guidelines.":[152],"Families":[153],"deceased":[155],"report":[157],"could":[160],"be":[161,256],"improved":[162],"by":[163],"increased":[164],"attention":[165],"analgesia":[167],"communication.":[169],"largest":[171],"interventional":[172,210],"study,":[173],"Study":[175],"Understand":[177],"Prognoses":[178],"Preferences":[180],"Outcomes":[182],"Risks":[184],"Treatment":[186],"(SUPPORT),":[187],"which":[188],"provided":[189],"physicians":[190],"with":[191,236,249],"information":[192],"prognosis":[195],"care,":[199],"did":[200],"alter":[202],"outcomes":[203],"end-of-life":[205,321],"care.":[206,322],"Smaller":[207],"but":[208],"successful":[209],"studies":[211],"included":[213],"examination":[214],"an":[216],"alternative":[217,314],"team":[218],"provides":[220],"tailored":[222,231],"needs":[225],"patients,":[228],"service":[230],"promote":[233],"family":[234,288,297],"contact":[235,291],"patient,":[239],"proactive":[241],"consultation":[242],"facilitate":[244,298,305],"planning":[246],"communication":[248],"families.":[250],"Research":[251],"suggests":[252],"clinicians":[254],"should":[255],"cognizant":[257],"difficulty":[260],"predicting":[262],"anticipate":[265,278],"change":[269],"goals":[271],"as":[274],"therapeutic":[275],"trials":[276],"fail;":[277],"treat":[280],"bothersome":[281],"symptoms":[282],"patients;":[285],"recognize":[286],"support":[289],"decision-making":[299],"acceptance":[301],"death;":[303],"coordination":[307],"development":[312],"teams":[316],"order":[318],"optimize":[320]},"counts_by_year":[{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":2},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":2},{"year":2012,"cited_by_count":1}],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2016-06-24T00:00:00"}