{"id":"https://openalex.org/W1242380702","doi":null,"title":"Wayfinding: A grounded theory about family carers learning to manage technical health procedures at home","display_name":"Wayfinding: A grounded theory about family carers learning to manage technical health procedures at home","publication_year":2015,"publication_date":"2015-01-01","ids":{"openalex":"https://openalex.org/W1242380702","mag":"1242380702"},"language":"en","primary_location":{"id":"pmh:oai:alma.64OTAGO_INST:11396616570001891","doi":null,"is_oa":true,"landing_page_url":"https://ourarchive.otago.ac.nz/esploro/outputs/doctoral/Wayfinding-A-grounded-theory-about-family/9926479078301891","pdf_url":"https://ourarchive.otago.ac.nz/view/delivery/64OTAGO_INST/12396616560001891/13397316000001891","source":{"id":"https://openalex.org/S4306402094","display_name":"Otago University Research Archive (University of Otago)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80281795","host_organization_name":"University of Otago","host_organization_lineage":["https://openalex.org/I80281795"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Doctoral Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://ourarchive.otago.ac.nz/view/delivery/64OTAGO_INST/12396616560001891/13397316000001891","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5103331988","display_name":"Janet Rose McDonald","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Janet Rose McDonald","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5103331988"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9961000084877014,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9961000084877014,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.002400000113993883,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.9900000095367432},{"id":"https://openalex.org/keywords/home-care","display_name":"home care","score":0.9020000100135803},{"id":"https://openalex.org/keywords/wound-dressings","display_name":"wound dressings","score":0.42500001192092896},{"id":"https://openalex.org/keywords/tracheostomy-management","display_name":"tracheostomy management","score":0.9190000295639038},{"id":"https://openalex.org/keywords/peritoneal-dialysis","display_name":"peritoneal dialysis","score":0.8650000095367432},{"id":"https://openalex.org/keywords/stoma-care","display_name":"stoma care","score":0.6570000052452087},{"id":"https://openalex.org/keywords/urinary-catheter","display_name":"urinary catheter","score":0.6169999837875366},{"id":"https://openalex.org/keywords/enteral-nutrition","display_name":"enteral nutrition","score":0.7170000076293945},{"id":"https://openalex.org/keywords/drug-administration","display_name":"medication administration","score":0.6179999709129333},{"id":"https://openalex.org/keywords/caregiver-support","display_name":"caregiver support","score":0.6579999923706055},{"id":"https://openalex.org/keywords/community-based-care","display_name":"community-based care","score":0.6430000066757202},{"id":"https://openalex.org/keywords/population-aging","display_name":"population aging","score":0.5360000133514404},{"id":"https://openalex.org/keywords/caregiver-role-stress","display_name":"caregiver role stress","score":0.3370000123977661}],"concepts":[{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.8470644950866699},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.41019898653030396},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3455843925476074},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.32740554213523865},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.2719031274318695},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.2675055265426636},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.09894207119941711}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:alma.64OTAGO_INST:11396616570001891","doi":null,"is_oa":true,"landing_page_url":"https://ourarchive.otago.ac.nz/esploro/outputs/doctoral/Wayfinding-A-grounded-theory-about-family/9926479078301891","pdf_url":"https://ourarchive.otago.ac.nz/view/delivery/64OTAGO_INST/12396616560001891/13397316000001891","source":{"id":"https://openalex.org/S4306402094","display_name":"Otago University Research Archive (University of Otago)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80281795","host_organization_name":"University of Otago","host_organization_lineage":["https://openalex.org/I80281795"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Doctoral Thesis"},{"id":"pmh:oai:ourarchive.otago.ac.nz:10523/5813","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/10523/5813","pdf_url":null,"source":{"id":"https://openalex.org/S4306402094","display_name":"Otago University Research Archive (University of Otago)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80281795","host_organization_name":"University of Otago","host_organization_lineage":["https://openalex.org/I80281795"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis or Dissertation"},{"id":"mag:1242380702","doi":null,"is_oa":false,"landing_page_url":"https://ourarchive.otago.ac.nz/handle/10523/5813","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:alma.64OTAGO_INST:11396616570001891","doi":null,"is_oa":true,"landing_page_url":"https://ourarchive.otago.ac.nz/esploro/outputs/doctoral/Wayfinding-A-grounded-theory-about-family/9926479078301891","pdf_url":"https://ourarchive.otago.ac.nz/view/delivery/64OTAGO_INST/12396616560001891/13397316000001891","source":{"id":"https://openalex.org/S4306402094","display_name":"Otago University Research Archive (University of Otago)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80281795","host_organization_name":"University of Otago","host_organization_lineage":["https://openalex.org/I80281795"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Doctoral Thesis"},"sustainable_development_goals":[{"score":0.9074000120162964,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320321837","display_name":"Ministerio de Econom\u00eda y Competitividad","ror":"https://ror.org/034900433"},{"id":"https://openalex.org/F4320334749","display_name":"Health Research Council of New Zealand","ror":"https://ror.org/00zbf3d93"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W1242380702.pdf","grobid_xml":"https://content.openalex.org/works/W1242380702.grobid-xml"},"referenced_works_count":242,"referenced_works":["https://openalex.org/W22609304","https://openalex.org/W75897325","https://openalex.org/W134175258","https://openalex.org/W169932015","https://openalex.org/W171057779","https://openalex.org/W578593197","https://openalex.org/W1274913993","https://openalex.org/W1492835342","https://openalex.org/W1494913828","https://openalex.org/W1509381641","https://openalex.org/W1510384301","https://openalex.org/W1518339953","https://openalex.org/W1521418907","https://openalex.org/W1533574204","https://openalex.org/W1535946105","https://openalex.org/W1562517844","https://openalex.org/W1575424496","https://openalex.org/W1575778036","https://openalex.org/W1576239699","https://openalex.org/W1579166169","https://openalex.org/W1592317583","https://openalex.org/W1603882355","https://openalex.org/W1605824561","https://openalex.org/W1607675442","https://openalex.org/W1658908529","https://openalex.org/W1765319080","https://openalex.org/W1767339332","https://openalex.org/W1847028836","https://openalex.org/W1872106550","https://openalex.org/W1938771967","https://openalex.org/W1951384579","https://openalex.org/W1963893873","https://openalex.org/W1964354426","https://openalex.org/W1965626106","https://openalex.org/W1966294215","https://openalex.org/W1967295495","https://openalex.org/W1968097047","https://openalex.org/W1968979241","https://openalex.org/W1971075509","https://openalex.org/W1971294547","https://openalex.org/W1972001371","https://openalex.org/W1972073259","https://openalex.org/W1973109233","https://openalex.org/W1974976491","https://openalex.org/W1975966190","https://openalex.org/W1980266357","https://openalex.org/W1980473331","https://openalex.org/W1980920669","https://openalex.org/W1982611456","https://openalex.org/W1984989721","https://openalex.org/W1985267323","https://openalex.org/W1985410520","https://openalex.org/W1986212514","https://openalex.org/W1986483087","https://openalex.org/W1987209112","https://openalex.org/W1988772747","https://openalex.org/W1988781843","https://openalex.org/W1988858827","https://openalex.org/W1991858445","https://openalex.org/W1992231646","https://openalex.org/W1993425335","https://openalex.org/W1993620674","https://openalex.org/W1994334512","https://openalex.org/W1995513771","https://openalex.org/W1996435579","https://openalex.org/W1999191198","https://openalex.org/W1999589537","https://openalex.org/W2000117884","https://openalex.org/W2002120228","https://openalex.org/W2002171951","https://openalex.org/W2004051647","https://openalex.org/W2011239332","https://openalex.org/W2011683928","https://openalex.org/W2012584261","https://openalex.org/W2012990220","https://openalex.org/W2013564668","https://openalex.org/W2013928160","https://openalex.org/W2014255683","https://openalex.org/W2015861576","https://openalex.org/W2018674814","https://openalex.org/W2019127418","https://openalex.org/W2019476360","https://openalex.org/W2021263959","https://openalex.org/W2023333770","https://openalex.org/W2025157506","https://openalex.org/W2028030777","https://openalex.org/W2029397284","https://openalex.org/W2030405581","https://openalex.org/W2030708183","https://openalex.org/W2031179793","https://openalex.org/W2034735276","https://openalex.org/W2036837396","https://openalex.org/W2038244867","https://openalex.org/W2039226220","https://openalex.org/W2039291831","https://openalex.org/W2040523897","https://openalex.org/W2042180775","https://openalex.org/W2045294160","https://openalex.org/W2045359443","https://openalex.org/W2045984290","https://openalex.org/W2046145431","https://openalex.org/W2046906258","https://openalex.org/W2047627353","https://openalex.org/W2048931946","https://openalex.org/W2049165922","https://openalex.org/W2053605753","https://openalex.org/W2054307185","https://openalex.org/W2054868845","https://openalex.org/W2055817291","https://openalex.org/W2056390404","https://openalex.org/W2056798843","https://openalex.org/W2056874158","https://openalex.org/W2056926031","https://openalex.org/W2057230718","https://openalex.org/W2057240336","https://openalex.org/W2060852595","https://openalex.org/W2061748708","https://openalex.org/W2062572231","https://openalex.org/W2062711226","https://openalex.org/W2063246881","https://openalex.org/W2063817582","https://openalex.org/W2063954891","https://openalex.org/W2065303914","https://openalex.org/W2065670534","https://openalex.org/W2065819991","https://openalex.org/W2069602269","https://openalex.org/W2069746424","https://openalex.org/W2069861438","https://openalex.org/W2070544835","https://openalex.org/W2070749172","https://openalex.org/W2070810822","https://openalex.org/W2070873405","https://openalex.org/W2071505838","https://openalex.org/W2072073595","https://openalex.org/W2072730469","https://openalex.org/W2073479868","https://openalex.org/W2075975441","https://openalex.org/W2076007735","https://openalex.org/W2076667247","https://openalex.org/W2076758805","https://openalex.org/W2077000245","https://openalex.org/W2077602405","https://openalex.org/W2077609361","https://openalex.org/W2078355653","https://openalex.org/W2079844693","https://openalex.org/W2080698354","https://openalex.org/W2081854153","https://openalex.org/W2082295427","https://openalex.org/W2084927245","https://openalex.org/W2085081981","https://openalex.org/W2085580706","https://openalex.org/W2086202483","https://openalex.org/W2089334483","https://openalex.org/W2093831376","https://openalex.org/W2095888273","https://openalex.org/W2098437298","https://openalex.org/W2099844765","https://openalex.org/W2100380315","https://openalex.org/W2101120491","https://openalex.org/W2102622396","https://openalex.org/W2103679614","https://openalex.org/W2104685824","https://openalex.org/W2105550022","https://openalex.org/W2108042761","https://openalex.org/W2109331262","https://openalex.org/W2109477435","https://openalex.org/W2110702392","https://openalex.org/W2112028594","https://openalex.org/W2112249980","https://openalex.org/W2112896053","https://openalex.org/W2113017733","https://openalex.org/W2113140773","https://openalex.org/W2115251441","https://openalex.org/W2116173151","https://openalex.org/W2119936656","https://openalex.org/W2121634576","https://openalex.org/W2122258015","https://openalex.org/W2123203220","https://openalex.org/W2126661865","https://openalex.org/W2126825432","https://openalex.org/W2127157751","https://openalex.org/W2127288864","https://openalex.org/W2127355650","https://openalex.org/W2128441277","https://openalex.org/W2128632867","https://openalex.org/W2129550444","https://openalex.org/W2131259125","https://openalex.org/W2134252728","https://openalex.org/W2134644533","https://openalex.org/W2138118112","https://openalex.org/W2140028065","https://openalex.org/W2140673448","https://openalex.org/W2140837840","https://openalex.org/W2141901513","https://openalex.org/W2142757684","https://openalex.org/W2143315546","https://openalex.org/W2147641120","https://openalex.org/W2147659923","https://openalex.org/W2148034076","https://openalex.org/W2150610774","https://openalex.org/W2152064029","https://openalex.org/W2153158811","https://openalex.org/W2153873059","https://openalex.org/W2155451208","https://openalex.org/W2156597165","https://openalex.org/W2157350681","https://openalex.org/W2157843101","https://openalex.org/W2158918659","https://openalex.org/W2160179456","https://openalex.org/W2161383751","https://openalex.org/W2161682223","https://openalex.org/W2162053478","https://openalex.org/W2163108772","https://openalex.org/W2164597453","https://openalex.org/W2165084589","https://openalex.org/W2165719292","https://openalex.org/W2167670743","https://openalex.org/W2168120568","https://openalex.org/W2168756838","https://openalex.org/W2170809190","https://openalex.org/W2170836246","https://openalex.org/W2171858643","https://openalex.org/W2313429931","https://openalex.org/W2316904824","https://openalex.org/W2317668390","https://openalex.org/W2322035830","https://openalex.org/W2331378520","https://openalex.org/W2410575978","https://openalex.org/W2412731228","https://openalex.org/W2413427092","https://openalex.org/W2463731906","https://openalex.org/W2464911767","https://openalex.org/W2470948981","https://openalex.org/W2506528515","https://openalex.org/W2732984786","https://openalex.org/W2889026364","https://openalex.org/W2906151105","https://openalex.org/W2993549321","https://openalex.org/W3209981852","https://openalex.org/W4236299437","https://openalex.org/W4239268392","https://openalex.org/W4254049221"],"related_works":["https://openalex.org/W2579896975","https://openalex.org/W2344634131","https://openalex.org/W1880771360","https://openalex.org/W7026500102","https://openalex.org/W2125677080","https://openalex.org/W7165623574","https://openalex.org/W2915139614","https://openalex.org/W2756086831","https://openalex.org/W3201710021","https://openalex.org/W3212774691"],"abstract_inverted_index":{"Advances":[0],"in":[1,377,416],"medical":[2],"care":[3,12,187,194,286,309],"and":[4,13,67,92,145,188,204,209,241,248,252,264,293,317,329,359,383,392,407,414],"technology,":[5],"population":[6],"ageing,":[7],"policy":[8],"shifts":[9],"towards":[10],"community":[11],"family":[14,28,113,156,290,357,381],"preferences":[15],"for":[16,39,116,192,367,390],"home":[17,217,375],"over":[18],"institutional":[19],"settings":[20],"are":[21],"all":[22],"contributing":[23],"to":[24,48,80,87,168,176,215,271,295,396],"increased":[25],"demands":[26],"on":[27,297,344],"carers.":[29],"Beyond":[30],"housework":[31],"or":[32,63,123,131,135,349,362],"personal":[33],"care,":[34,142],"some":[35],"carers":[36,69,114,157,173,263,291,315,409],"take":[37],"responsibility":[38,240],"\u2018technical":[40],"health":[41,90,151,179,202,265,303,372,393],"procedures\u2019":[42],"ranging":[43],"from":[44,109,269],"changing":[45],"wound":[46],"dressings":[47],"managing":[49,96,301,368],"a":[50,189,228,245,281],"tracheostomy.":[51],"There":[52],"has":[53,165],"been":[54,166],"limited":[55,386],"research":[56,78],"about":[57,83],"carers\u2019":[58,340],"experiences":[59,94],"with":[60,106,111,154,250,385],"such":[61],"roles":[62],"how":[64,84,408],"professionals":[65,152,266],"teach":[66],"support":[68,366],"who":[70,174],"manage":[71,177],"these":[72,97],"procedures.":[73,180,304],"The":[74,305,388],"objectives":[75],"of":[76,95,163,172,207,225,275,284,300,307,311,364,380,400,405],"this":[77,259,345,417],"were":[79,158,347],"develop":[81],"theory":[82,102,162],"families":[85,406],"learn":[86,175],"undertake":[88],"technical":[89,178,302,371],"procedures":[91,98,127,373],"their":[93,117,356],"at":[99,374],"home.":[100],"Grounded":[101],"methodology":[103],"was":[104,182,197,227],"used,":[105],"data":[107],"drawn":[108],"interviews":[110],"26":[112],"caring":[115,334,401],"child":[118],"(20),":[119],"partner":[120],"(3),":[121],"parent":[122],"grandparent":[124],"(3).":[125],"Technical":[126],"included":[128],"nasogastric,":[129],"gastric":[130],"jejunal":[132],"feeding,":[133],"intravenous":[134],"subcutaneous":[136],"medication,":[137],"urinary":[138],"catheters,":[139],"bowel":[140],"stoma":[141],"tracheostomy":[143],"management":[144],"peritoneal":[146],"dialysis.":[147],"In":[148],"addition,":[149],"15":[150],"involved":[153],"teaching":[155],"interviewed.":[159],"An":[160],"overall":[161],"\u2018wayfinding\u2019":[164],"developed":[167],"explain":[169],"the":[170,193,223,272,278,288,298,333,353,360,378],"experience":[171,214],"Wayfinding":[181,219],"motivated":[183],"by":[184,332],"wanting":[185],"good":[186,190],"life":[191],"recipient.":[195],"It":[196],"an":[198,255],"active":[199],"process,":[200,260,280],"utilising":[201],"professional":[203,237],"other":[205],"sources":[206],"learning":[208,229,243,279],"adapting":[210],"them":[211],"through":[212],"lived":[213],"unique":[216],"situations.":[218],"comprised":[220],"two":[221],"processes,":[222],"first":[224],"which":[226,314,338],"journey.":[230],"This":[231],"had":[232],"three":[233],"phases:":[234],"initial":[235],"concentrated":[236],"teaching;":[238],"taking":[239,296],"continuing":[242],"as":[244],"novice":[246],"carer;":[247],"ultimately,":[249],"time":[251],"experience,":[253],"becoming":[254],"expert":[256],"carer.":[257],"Through":[258],"relationships":[261,382],"between":[262,342],"could":[267],"change":[268],"learner:teacher":[270],"mutual":[273],"recognition":[274],"expertise.":[276],"Alongside":[277],"second":[282],"process":[283],"embracing":[285,308],"described":[287],"way":[289],"experienced":[292],"responded":[294],"role":[299],"spectrum":[306,346],"consisted":[310],"five":[312],"positions":[313,343],"adopted":[316],"moved":[318],"between,":[319],"namely":[320],"accepting":[321],"embrace,":[322,324,326],"resisting":[323],"reluctant":[325],"relinquishing":[327],"embrace":[328],"being":[330],"overwhelmed":[331],"role.":[335,419],"Two":[336],"factors":[337],"influenced":[339],"movements":[341],"whether":[348],"not":[350],"they":[351],"perceived":[352],"procedure":[354],"benefitted":[355],"member":[358],"availability":[361],"absence":[363],"appropriate":[365],"it.":[369],"Managing":[370],"occurs":[376],"context":[379],"often":[384],"alternatives.":[387],"challenge":[389],"society":[391],"services":[394],"is":[395],"consider":[397],"what":[398],"level":[399],"should":[402],"be":[403,412],"expected":[404],"can":[410],"best":[411],"taught":[413],"supported":[415],"important":[418]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
